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Recent diagnosis for my father

User
Posted 21 Feb 2017 at 20:36

Hi everyone,

 

This probably gets asked all the time but I'll give it a shot anyone. My father was recently diagnosed with prostate cancer. We're in the early stages of the diagnosis and lots of things still seem unclear. A few bits of information and things that I've gleened so far:

 

- My Dad's in his late 50s and is otherwise very healthy.

- The fact that he found blood in his semen was the thing that prompted his visit.

- He's had an MRI scan, which is what secured the diagnosis. He's got a CAT scan booked in for the end of the week. I believe that he's supposed to have a bone scan too, but it doesn't sound like a date's been established yet.

- During the meeting after the MRI, the Doctor said that 'it looks like it's trying to get out'.

 

Initially, I wasn't overly worried about the diagnosis of prostate cancer. I realised that it's pretty life altering, but I'd looked up the survival statistics and if you had to get cancer it looked like a good one to get.

However, I've grown more concerned based upon what I've outlined above. Am I reasonable in thinking that the blood and the Doctor's description suggest that it's pretty late stage and therefore much more dangerous? Or am I jumping the gun a bit here.

 

Thanks for taking the time to look at this.

 

 

 

User
Posted 21 Feb 2017 at 21:30

Hi Tom,

The initial diagnosis is a troubling time, neither you, your dad or indeed his doctors actually know exactly what he confronts until all of the tests have been completed.

So all you can do is take a deep breath and take one day at a time, all will become clear in a few weeks.

Once your dad knows what stage the prostate cancer has reached, it will also be a good time to pause and reflect on the various treatment options, no need to hurry a decision, let him take as long as he needs to make his choices. 

When you look up 'survival statistics', bear in mind that they are out of date, science moves on and treatments improve, the treatment I had 10 years ago has been superseded, so your dad's odds should be better than the statistics suggest.

One of the hardest things to deal with at diagnosis, is the worry we cause to wives, sweethearts, friends and family, so try not to trouble your dad with your worries, I know that is difficult, but by the sound of it he has enough worries of his own, and he will tell you what he wants you to know. 

I know that when I was first diagnosed I just wanted all my friends and family to carry on as normal.

:)

Dave

 

User
Posted 21 Feb 2017 at 21:35
Thank you Dave.

Yeah, despite what the above may suggest I think I'm doing a good job of remaining calm and pragmatic so far. I agree that it's important to help keep things on an even keel.

Thanks again.

User
Posted 21 Feb 2017 at 22:01
We are both on the same ship

We don't have the final results yet. My husband is seeing his urologist tomorrow. The MRI shows st suspicious.I am scared but let's both calm down.

We must be ready to help them in case things went badly. And PCa can be treated, so don't get into panic.

My best wishes for your dad.

User
Posted 21 Feb 2017 at 23:22
Hi

You are jumping the gun. Has he had a biopsy or not ?

Do have a look around this site and download toolkit .

The key will be staging and Gleason.

. Gathering all the facts

Cross each bridge etc..

Is your dad going to appointments with anyone else ?

Click my profile to see my basic info. There's a fair amount to understand

At your dad's age and assuming he is fit and healthy , numourous options will be available.

Again that decision to be made when all facts assimilated.

http://prostatecanceruk.org/prostate-information/just-diagnosed/what-do-my-test-results-mean

Tnm stage and gleason . Key indicators.

Psa less so at this stage. However together with a mpMRI will give the team and yourselves the best data available currently to ascertain where dad is currently.

Both myself and my brother were intermediate. Ie medium risk . Even though the amount of lesion/mutant cells where small.

All the best and welcome

Edited by member 21 Feb 2017 at 23:36  | Reason: Not specified

User
Posted 22 Feb 2017 at 00:53

Not everyone needs a bone scan, initbut - at our hospital they only do bone scans if there is a strong reason to think it could have spread there.

You can't usually get an official diagnosis of prostate cancer without a biopsy - the exception is where the PSA is so high that it cannot be anything else and the other tests are showing that it has spread. The MRI is indicative only, ie it can see the grey area and predict how likely that grey area is to be cancer but that is all.

Blood in the semen does not indicate how early or late the diagnosis might be.

So how high is dad's PSA?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Feb 2017 at 08:52

Hello all,

@LynEyre: Thank you for your kinds and thoughtful replies. My Dad's had the biopsy and that came back positive for cancer.
I'm not sure re the PSA. I'll check and come back.

@robgsr: Thanks, I'll take a look at all of that. He's got an appointment with a Oncologist today. And thank you very much for the welcome.

@lola52: Sorry to hear about your husband too. What you say makes a lot of sense. Best of luck with the appointment with the urologist tomorrow.

Thanks all. Will post more when I know more.

User
Posted 22 Feb 2017 at 09:12

Apparently his last PSA was 20, down from 24 after taking antibiotics.

User
Posted 22 Feb 2017 at 09:45

Hello and welcome from me too Tom.

When dad goes for his results it would be a good idea for somebody (you perhaps?) to go with him. There is such a lot to take in when all that information is being thrown at you.

It's also a good idea to write down any questions. If you have managed to download the Toolkit from Publications as has already been suggested, it might give you ideas on what questions to ask.

Good luck to dad for his results anyway.

We can't control the winds - but we can adjust our sails
User
Posted 22 Feb 2017 at 11:04
Hi Tom

As JohSan. Agree.

Hope all goes well today. A lot to digest for all. A lot of positives. Ie you are already informed and aware. Some dad's etc keep it all to themselves. .

Ive been in both position. .Like many others. Albeit years apart. I was the one to inform our 3 children..

.. All over 25 yrs old.

All the best

Gordon

User
Posted 22 Feb 2017 at 19:41

Hello all,

So the appointment went ahead today. My mom went along with my dad (as I live quite far away and it's difficult to judge when's best to draw me in), but we'd discussed some of the basic things that she needed to ascertain.

The meeting with the Oncologist was intriguing. From from I understand it's a T3 and graded 8. Apparently he's had it for quite a long time and it's spread outside to the glands just behind the prostate. And it's recently become aggressive too. All pretty bad so far. However, the oncologist was very positive and she said she felt confident that it could be contained. They're doing the CAT scan and the bone scan as a precautionary measure apparently.

My Dad's still shaken but my Mom left in a much more positive place than when she went in. Given all the sigs and signs we'd got before, I was expecting a much worse prognosis that what we've got.

So by no means over the hill with this and we're not deluding ourselves that everything's fine and dandy but it isn't over yet and it's not the death sentence that we feared. All in all we're happy and grateful for what's happened and the support that we've received.

I now have a long list of tasks to do, swatting up on Prostate cancer and various other diagnosis related tasks that have dropped into my inbox. :)

Thank you everyone.

User
Posted 22 Feb 2017 at 20:02

Fortunately one of the first things you learn is that 'aggressive' does not mean what you think. It simply indicates that the Gleason was over 7 - in your dad's case G8 so that is fairly obvious. It does not indicate how far it has travelled or how quickly it could travel, purely how distorted the cells are.

So all in all, a decent set of results - but did mum say the specialist hopes the cancer IS contained or COULD BE contained'? They mean very different things in the PCa world :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Feb 2017 at 22:46
Hi Tom

Thanks for update.

Feel free to ask anything. . CT and bone scan will give more information.

Do cut / paste key info. Into your profile please so will help others should you post more or start another thread.

As Lyn states..agree.. tell dad the term aggressive is a relative term.

Gordon

User
Posted 22 Feb 2017 at 23:51

Hi Tom,

It might help you to know that I was T3a + T3b, and Gleason Grade 9 when first diagnosed in 2007, and I am doing fine right now.

:)

Dave 

User
Posted 28 Feb 2017 at 21:37
Hi Tom I just wanted to send you my support, for you and your Dad. This forum has been an amazing support to me as I go through the prostate journey with my Dad too. He is a T3b Gleason 9. Initially this scared the living daylights out of us. We had very little information initially however have become quite the experts as February has progressed! He got his diagnosis 01/02. Four weeks on we are slowly coming to terms with everything and doing our best to support him. I've called the nurses from PC UK about eight times now and they've really helped me with any questions I've had. Anyway I just wanted to let you know you're not on your own. Wishing you all the best.
 
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