Anyone with similiar presentation

User

Posted 01 Mar 2017 at 01:37

My hubby who is 53 has been having prostate concerns for some time, as in frequency and urgency during day and night. He was put on Tamufusin ( not sure if spelt right) about 6 months a go. He had a DRE at the time and it was normal, just enlarged and his PSA was 2,4, so all ok. The symptoms just got worse so he ŵent back to GP last month. She did a DRE and felt abnormal prostate, as in hard on the one side and enlarged. She was concerned so arranged urgent appointment with urologist. We saw him and he felt the same on DRE, he booked ultrasound and MRI. Well we had the ultrasound today and the dr said the prostate didn't look that enlarged, though hubby has been waking up about 6 times in the night. So obviously something is pressing on his urethra. My concern is that as his PSA is quite low they will put us on a weight and see programme, depending what MRI shows. What I was wandering if any of you guys have had quite a low PSA 2.5, age 53 with an abnormal DRE, as in hard nodules and gone on to be positive for cancer. I have read some concerning research on web about an aggressive form and this is my concern. I know the web can be a mine field, but Im a retired nurse and it's natural for me to gather as much info. as possible.

I'm very grateful for anything you can share on this

Karen

User

Posted 01 Mar 2017 at 10:09

Hello Karen and welcome.

I am pretty sure that it is possible to have a fairly low PSA and aggressive cancer and I am sure that the members who have knowledge of these will be along to advise you. I'm just moving you up the list.

I can understand your desire to gather information. I did the same and I'm not a nurse so it must be perfectly normal for us wives to be proactive in this way.

Hang in there until an "expert" comes along as I'm sure they will. You could, in the meantime, look up Lyn Eyres as I believe her husband had a low PSA and aggressive cancer.

We can't control the winds - but we can adjust our sails

User

Posted 01 Mar 2017 at 11:15

Hi Karen,

When I was sent for my DRE I had no symptoms apart from Microscopic blood in my urine,but after samples taken i had a PSA 2.19 and a gleason score of 3+4 =7 and was offered a full removal or Brachytherpy and decided to take the Brachy route in September 2016 and five months on i have a PSA 0.81 and recovering well but on tamsulosin for the near future.

I think the sooner you get results the better it will be for you both to decide the way forward,I wish you luck on your journey but please keep in touch as there are many people on here with a lot more knowledge than me that i am sure will help with your worries and help with their vast experience.

John.

User

Posted 01 Mar 2017 at 13:20

Welcome.

Do see my profile .. my brother dx with psa 3.57 he is 70.

My comment would be. What is his very latest psa ..has he had just the one reading.

Also many on here including me are / were asymptomatic.

Is he having a mpMRI ? or basic MRI.

My brother had BPH however his DRE were always normal.

Hope this helps and accurate dx found.

Gordon

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User

Posted 01 Mar 2017 at 10:09

Hello Karen and welcome.

I can understand your desire to gather information. I did the same and I'm not a nurse so it must be perfectly normal for us wives to be proactive in this way.

Hang in there until an "expert" comes along as I'm sure they will. You could, in the meantime, look up Lyn Eyres as I believe her husband had a low PSA and aggressive cancer.

We can't control the winds - but we can adjust our sails

User

Posted 01 Mar 2017 at 10:50

Thanks for the reply Joshan and moving me up the list. I will check out Lyns post. We have an appointment with a colorectal specialist today as GP had some concerns there, so we shall see how that goes shortly.

User

Posted 01 Mar 2017 at 11:15

Hi Karen,

John.

User

Posted 01 Mar 2017 at 13:20

Welcome.

Do see my profile .. my brother dx with psa 3.57 he is 70.

My comment would be. What is his very latest psa ..has he had just the one reading.

Also many on here including me are / were asymptomatic.

Is he having a mpMRI ? or basic MRI.

My brother had BPH however his DRE were always normal.

Hope this helps and accurate dx found.

Gordon

User

Posted 01 Mar 2017 at 14:41

Hi Gordon

Thanks for your reply.

He's PSA were 2.4 and 2.5 about 3 months apart, he's due to have another just before seeing consultant again. I just think he has a lot going on with medication that may be keeping this low. I know it's rare, but sometimes the cancer can be so aggressive that the PSA doesn't have chance to rise so quick. If his DRE was normal I wouldn't be so concerned, but I know hard nodules are not a good sign. I'm just hoping the consultant doesn't go primarily by PSA as we would like to have a biopsy too, depending on result of MRI.

User

Posted 01 Mar 2017 at 14:48

Hi John

Thanks for your reply, hubby has many relatives who have had PC so I think that's why we have progressed with tests so quickly. It's reassuring to know they don't just go by PSA levels. Luckily hubby is a happy go lucky chap and doesn't tend to worry, he leaves that to me!

User

Posted 01 Mar 2017 at 15:15

Hi Karen

You will know I assume NHS well. I was dealt with extremely well. I've learnt a lot more since and brother lives in Australia. The key difference is I had to ask for all info whereas he was given a lot more information. . I mean technical medical .. not just info pamphlets.

You will be fine. Google pi-rads , I never knew mine however things are moving and analysis pre biopsy is getting more detailed. Obviously biopsy is the gold std however not risk free nor to be undertaken without underlying evidence. My brother only had his one and only biopsy as myself incidentally after mri. He has private med. and had paid for his originally in 2014. He had pi rad coding of 3 originally. I think there a member on here with pi rad 5 .. The highest. Again this indicates suspicion. .ie size and potential lesions. I incidentally was told post biospy there were calcium deposits in my prostate. Which I understand are not that uncommon. . Seems cause may be a result of prev. Prostatitis. . Um . I can't remember having any problems at all. Never had a UTI in my life.

So all the best. Me and wife went to all meetings so medical jargon used is now better understood.

User

Posted 01 Mar 2017 at 15:37

Thanks for that Gordon

I didn't know anything about pi rads, so have been taking a look, that is useful. So I take it they will give us this reading from the MRI when we see consultant again.

The consultant has been great, luckily we are being see at a private hospital which NHS use to meet time scales. We were back to day to see a bowel consultant and colonoscopy has been arranged, so it's all go right now.

User

Posted 01 Mar 2017 at 15:51

http://sperlingprostatecenter.com/pi-rads-score/

Here you can find information.

My husband has pi RADS 5. Having a biopsy next tuesday.

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