Husband age 54 stage 4

User

Posted 16 Aug 2018 at 15:23

Chris, I reread "clitoral" several times to make sure that's what it said 😂and it very briefly crossed my mind that Bollinge's autocorrect had some very interesting suggestions!

Oh has moments in every day where the enormity of what is happening overwhelms him, I am thankful he is a stoical man and that after having a cry or grumble he seems to tuck the situation away and get on with whatever he can, which mostly consists of popping to the shops, doing the washing or making coffee.

He's just said it's a relief knowing he can just be at home with us, doing the every day things and that he might even take over the cooking (Fray Bentos, mash & beans) , I hope not.

User

Posted 16 Aug 2018 at 15:30

I suppose I am lucky enough to have cancer where there is nothing wrong with me - except I have cancer - and I have looked at the statistical predictions of demise and they are very slim as a result of my disease.

I am 62 years old and am of the opinion that there has to be something written on your death certificate. Hence my flippant attitude to it all. Others in more unfortunate situations to me might not appreciate such levity.

All I say is keep breathing, in-out, in-out.

Cheers, John

Edited by member 16 Aug 2018 at 15:34 | Reason: Not specified

User

Posted 16 Aug 2018 at 15:32

I’ve been doing LOADS of fancy cooking and really enjoy planning a nice meal. Sounds like hubs should apply for Masterchef !! Quality tucker. Replace the beans with mushy peas though lol

User

Posted 16 Aug 2018 at 15:42

Originally Posted by: Online Community Member

Chris, I reread "clitoral" several times to make sure that's what it said...

Some of my friends are in what I call the “death insurance” business = ‘Financial Advisor‘ and ‘clitoral’ is what they call ‘critical’ insurance by way of a joke.

We are all ex-pubic schoolboys in our sixties who have never grown up.

Fortunately!

Edited by member 16 Aug 2018 at 16:01 | Reason: Not specified

User

Posted 16 Aug 2018 at 16:56

Bollinge, on diagnosis, one of the first things we both did was get out the policies to see if the mortgage was covered. On reading the small print, we realised that to claim the funds OH had to be classed as terminal outside of the last 2 years of the policy!

"Well, let's hope that I am, otherwise we're f****d" was his response.

I've worked in insurance claims departments but I'd not come across this before. In terms of policy knowledge, this last year has been a steep learning curve.

P.s Chris, mushy peas are yuck.

Edited by member 16 Aug 2018 at 16:57 | Reason: Not specified

User

Posted 07 Sep 2018 at 22:12

Latest results.

Psa 20

Appointment was brought forward to today, Dr has changed treatment from Bicalutimide to Abiterone. It'll be a couple of weeks before oh starts the regime.

Oh is disappointed that none of the treatments so far have worked for very long. Anyone out there in the same position?

What can he expect from the Abiterone? I've read the side effects but it's much more helpful to have your first hand experiences.

Feeling a bit down :(

User

Posted 08 Sep 2018 at 14:59

Kentish, I had nearly three years on ago before it began to fail. No symptoms at all. Some men don't get the benefit for so long as I did, but there may be a few for whom longer treatment works. I hope your oh is one such.

User

Posted 14 Oct 2019 at 06:46

Hi, I’m new to this site. My husband was diagnosed in sept 2017. Advanced with a Gleason 9. Bone mets in his hip both sides and right shoulder. Started hormone therapy straight away for life and had 6 sessions of chemo. We also have children 15,13,11

So far the 4 monthly checks have been fine and his psa was back to 0.5. However we are due for the next check up this week and worried as he’s been feeling quite off. The side affects from the hormone therapy really affects him. He gave up work a year after diagnosis as he just lacks the energy he used to have.
How are things with your husband and how do you get by every day? We’ve been having as many lovely holidays and experiences together as we can now which has been a real positive.
I feel it is good to talk to people that are going through this as not everyone understands.

User

Posted 14 Oct 2019 at 08:30

Vicki unfortunately Kentish lost her husband earlier in the year and hadn't visited this site since July.

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