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"The road ahead"!

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User

Posted 30 Nov 2018 at 10:50

Great to hear that you are making good progress Valleyboy.

Best wishes

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 04 Dec 2018 at 19:05

Thanks for the inspiring support ive found

the support group brilliant great to meet up with people in person I can’t message yet for some reason

User

Posted 04 Dec 2018 at 19:24

The bear—don’t panic we do like you😂 it’s just that you need to post online for a while before they give you access to personal messaging. (Not sure of timescales).

All the best.

User

Posted 05 Dec 2018 at 14:19

Hello Braddalad

I saw your post on Acupuncture to help with the hot sweats. My husband suffers really badly with hot sweats from Zoladex injections.

Do you mind me asking how often you have acupuncture?

User

Posted 14 Dec 2018 at 16:45

Just had blood results for 6th and final Radium 223 infusion on the 27th. ALP down again to 82. With PSA back up 23pts. But as this treatment doesn’t really affect the PSA all previous reductions have been a bonus. All other bloods seem ok so it’s another meeting with my Onco on Monday and if all’s well then off the Bristol for the last time on the 27th.

Just a point as it’s seems to be working well, eg. A marked reduction in my ALP levels, has anyone out there had more than 6 sessions of Ra/223? And if so what were your final results?

User

Posted 15 Dec 2018 at 12:14

Thanks for the update. It’s good to hear from you.

Hope the Radium 223 does a good job.

Ido4

User

Posted 17 Dec 2018 at 15:15

Just back from meeting with oncologist and video call to the nurses in Bristol. Bloods all ok for 6th and final Radium 223 treatment on the 27th. Then if all goes well, other than another full blood test on the 11/02/19 and a scan sometime in late March it’s a 3 month treatment holiday for me. Yippee!!

We had a Brief discussion on way ahead, which may include immunotherapy, various trials etc etc. All to be discussed in more detail in March/19.

Also 2 year diagnosis anniversary during 1st week of Feb so as Delia once said “cmon let’s be havin yer”!!😂

Nadolig Llawen a Blwyddyn Newydd dda. = Merry Xmas and a Happy NewYear —to all.

Keep the Faith

User

Posted 17 Dec 2018 at 16:11

Hi J

It will be good for you to get a wee break.

I'm every 3 months now myself, next meeting with oncologist in Jan. But it's a good feeling knowing no more hospitals for a while.

Have a great Xmas and all the best for the new year.

Onwards and upwards.

Sandy

User

Posted 17 Dec 2018 at 18:20

Good news valleyboy best wishes to you and your family i’m starting aberiterone this week hoping for the best.

Have a good christmas to everyone

User

Posted 17 Dec 2018 at 21:10

Hi Valleyboy ,

I have read your first post and whilst my diagnosis was not as severe as yours , I had PSA of 19 odd with Gleason 6 + 7 , Tumour the size of the gland mid 2014. Mine continued to spread outside . Went to lymph nodes in groin , chest and now travelled to my spine . PSA now 500 . So far I refused Chemo . Not keen on the stuff . still debating it . I came across a guy called Chris Woollams and canceractive.com . I read his book , How to Beat Cancer . The guy got a degree in Biochemistry at Oxford Uni and specialised in Cancer. His Daughter got Brain Cancer and that's why he set the site up etc . I am still building my own treatment plan from reading his book and using the site . At the moment I do the following

: Take Vitabiotics Vit D every day , Vitabiotics Immunace Mon / Wed / Fri , Cannabis Oil twice daily , Apricot Kernals ( 8 ) morning , every meal and evening and Biobran 1 sachet of an evening with my herbal sleep stuff

I take Ayurvedic medicine for Hot Flushes as well as Vitabiotics Menopace Plus

Only Oncologist medication is Bicultamide 150mg daily ... I stopped taking Zoladex and reverted back to Bicul. after horrendous problems with Insomnia on Zoladex . I am also in discussion with my oncologist regards Chemo options after Cancer went to my spine in Jan 2017 and PSA rose to 500 summer 2018 . At the moment plan is to monitor PSA and continue what I'm doing . Chris Woollams is an amazing guy . Also I have found from researching about Gut Health ( thanks to Chris ) another amazing bloke ... Dr Stephen Gundry MD and the Plant Paradox .... I am building on this knowledge , trying to build more knowledge about NK Killer cells too . I hope this helps you and very best wishes with your journey . I don't get much time but I'm hoping to look through the site to get some information to help me , especially from fellow lads having a tough time of it all . Good luck mate

Bill&Ben67

User

Posted 27 Dec 2018 at 15:10

Ok, just back from Bristol following my last Radium 223/6 infusion. So that’s this course of treatment finished for now. Therefore other than full bloods during 2nd week of Feb. Followed by a scan sometime in late March, its a treatment holiday for me. 😂 As outlined earlier thats also the end of basic conventional treatments for me with immunology/trials/new innovations now on the horizon. Obviously I ll keep you all informed as to the “way ahead” as/when I know it. I ll also update after bloods in Feb. So until then Happy New Year to all.

Keep the Faith

User

Posted 27 Dec 2018 at 16:11

Happy New Year to you too.

Ido4

User

Posted 27 Dec 2018 at 16:13

All sounds good enjoy the holiday and a happy new year R

User

Posted 27 Dec 2018 at 21:02

Hi Valley boy,

Wishing you all the best in your treatment I am sorry if it goes over my head a bit as i don't understand the amazing treatments and cross treatments they do for you and others, good luck.

John.

User

Posted 12 Jan 2019 at 09:05

Just a quickie? Went shoping yesterday and suddenly felt very light headed when walking around the store. In fact if I hadn’t had a trolly to hang on to for a few moments it felt a bit scary. All ok again later in the day and now back to normal??. Took BP when I got home 90/66 so a bit low?

So basically has anyone else out there had had such symptoms and if so what did you do about it?

Keep the Faith

User

Posted 12 Jan 2019 at 10:24

Hope your ok now I had a urine infection after biopsy led to a trip to A&E by ambulance after I had passed out due to low blood pressure antibiotics for a week then ok hope this helps R

User

Posted 12 Jan 2019 at 11:57

Thanks, Yeah all ok now and gearing up for the big game later—Quins v Bargoed!!😂 with 4 x days golf booked in Portugal next week!😜

Hope ur feeling better too?

User

Posted 12 Jan 2019 at 18:04

As someone prone to low blood pressure, best way is to make sure you are drinking plenty of water. Sipping rather than gulping throughout the day will keep you hydrated and return your blood pressure to near normal. It is very easy to not realise you have not been drinking enough.

Best regards

User

Posted 23 Jan 2019 at 20:46

Just a quickie. Just back from a golfing break in Portugal and had the most horrendous headache for past 3 days. (No alcohol involved). And it hurts more when I touch my head? Finding it a bit better today but just wondering if anyone else, (with skull mets), has had problems with flight air pressure?

Keep the Faith

User

Posted 24 Jan 2019 at 09:20

I don’t know the answer Vallyboy, but I’d be calling the doctor if I were you just to make sure. Three days is far too long.

love Devonmaid xxx

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