"The road ahead"!

User

Posted 08 Apr 2019 at 22:22

Keep the faith Valleyboy.

It is always good to see your positivity shining through

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 30 May 2019 at 20:05

Well just had my blood results in time for my meeting with my oncologist on Monday, and whilst I’m feeling fine in myself and still going about my daily bits and bobs. my PSA has gone up to 1668, which is the highest it’s ever been. And my ALP has gone up to 569, again another new record. Still on month 2 of Abiraterone but no doubt I ll come off that on Monday as during my last consultation in early May she suggested that if my PSA continued to rise then I could well be back on the chemo(doxetaxel) wagon from the 10th.
Also Been finding it a bit uncomfortable to walk long distances now, so I’ve hired a mobility scooter for a week, (try before you buy). And the dog loves it as I’m now able to take him out on his 3 mile daily walk, whilst I sit down and drive alongside him. It’s even got a cup holder!! Which I stick in a mini-flask so it’s hot coffee in my half way round pit stop!!😂
Anyway I ll keep you all informed about what happens on Monday so until then.....
Keep the Faith.
J.

User

Posted 30 May 2019 at 20:50

Hi Valley boy.

Been a wee while since i replied to you.

I too have my blood results back prior to oncologist meeting tomorrow and unfortunately my psa has started to rise. Nowhere near yours but I'm totally devastated.

Keep fighting mate.

Sandy

User

Posted 31 May 2019 at 23:49

Hi Valley Boy

you’ve not had much luck lately hope things improve for you soon my PSA is slowly rising still on abi hope it’s going down after bloods next week feel fine at the moment.

Keep on plugging away J it’s the only way.

Best Wishes

User

Posted 03 Jun 2019 at 21:38

Ok. Had scheduled Meeting with Onco today and as expected 2 months on Abi has failed to make an impression on my PSA so it s back on Chemo(doxetaxel) from next Monday.
During these infusions I ll also be getting a biosophanate infusion to strengthen my bones.
Not sure how many infusions I ll get in this treatment cycle as it all depends on how well I tolerate the chemo this time round. As although I sailed through my previous 13 chemo infusions as I’m now rechallenging “it” after quite a break, we ll just have to see how it goes.
As usual I ll keep you all updated as appropriate.
Keep the Faith.
J.

User

Posted 03 Jun 2019 at 22:16

Best of luck, Valleyboy

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jun 2019 at 08:05

My very best wishes Valleyboy.

Regards

Dave

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"

User

Posted 04 Jun 2019 at 09:59

Best wishes Valleyboy.

Ido4

User

Posted 01 Jul 2019 at 17:37

Ok. Just had infusion no 15 of Docetaxel. All ok. Bone marrow still struggling so I didn’t get the bone hardener infusion this time, (had it with No 14). As they want to get all my bloods back on track 1st. Also been given 2 x calcium tablets per day and a tube of soluable phosphate tablets to add to my ever growing medicine list, and all of this will again be reviewed prior to my next infusion on the 22nd.
3rd blood transfusion also booked for this weds. As Even tho my bloods are moving in the right direct they are still well below”normal”. So I’m getting another couple of bags on weds.
Just for info PSA still on the rise, but Onco is not too concerned with this as I’m still feeling ok in myself. ALP down over 100 so hopefully that’s a good sign too.
Going up Pen Y Fan which is the highest mountain in South Wales at the end of July. On a mobility scooter!! With about 30 helpers to carry it over the drainage ditches etc. And as I’ve already done two charity events for PCa I’m doing this one for the Chemotherapy unit at Glangwili hospital Carmarthen. Looking to raise at least £1000 with over £400 pledged already. So if you fancy making a small donation (only folding money accepted)!, please send me a private message and I ll give you the details of my “just giving” page on FB. As I don’t want to give out those details on this general message board.
All the best
Keep the Faith
J.

User

Posted 21 Jul 2019 at 12:00

Ok. Pen y Fan mountain walk/ride completed yesterday. With the 886 metres taking 4 hours up and down. Over £2500 raised to date with the “Just Giving” page open till end of July. Couldn’t have done it without an amazing team of helpers as by the finish not only had we negotiated the mountain but 216 ditches too!

On the medical front had my bloods done on Thursday, with Chemo No 16 planned for Monday, and they indicate that my PSA is down 300. 😜 With my ALP levelling off too. Other bloods eg. Red and white cell counts also moving slowly but in the right direction. So hopefully once more Chemo is doing its job for me?

Anyway putting my feet up for the rest of the day, oh look there’s golf on the TV all day too!!😂

All the best

Keep the Faith

User

Posted 21 Jul 2019 at 13:34

What a fantastic achievement- well done!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Jul 2019 at 17:46

Brilliant on both counts. Hope you feel on top of the world. Nothing like a mountain walk to make you feel great afterwards.

Best Wishes

Ann

User

Posted 21 Jul 2019 at 18:01

Well done hope you had a good view from the top

User

Posted 22 Jul 2019 at 22:42

Great achievement ValleyBoy.

Ido4

User

Posted 08 Aug 2019 at 12:47

Met with Onco this morning and although my Hb Readings are down its still ok for chemo No 17 on Monday. Also a decision will be made then as to wether i need another blood transfusion on Wednesday. We also discussed the way ahead, and whilst I’m still booked in for at least 2 more Docetaxel infusions. I may then be going onto the Lutetium 177 trial in Bristol. If accepted I ll get a Full Pet/Ct scan prior to any treatment to see if I’ve got the right receptors for treatment. On the down side my Onco who has treated me since day 1 has informed me that’s shes leaving the hospital in September for pastures new. So let’s just hope her successor is just as good?
Anyway that’s all for now I ll update as/when applicable.
Ps
Re my Pen Y Fan Charity ride/climb. over £3500 raised so far, (for the chemo unit in my local hospital).
Keep the Faith
J.

User

Posted 08 Aug 2019 at 13:11

Hope all goes well. Brilliant amount raised, well done on that.

Ido4

User

Posted 09 Aug 2019 at 16:59

Good result with the Pen y Fan climb well done. Keep the faith with the treatment sorry to hear about the Onco best to have some continuity if possible as you say hope the replacement is good.

User

Posted 10 Aug 2019 at 00:39

I hope you get on the trial Valleyboy, no one deserves that chance more. You a a real role model

Lots of love

Devonmaid

User

Posted 10 Aug 2019 at 07:58

Thanks Devonmaid.
Can’t believe with all your issues you’ve still got time to wish me well. Try to stay strong for the family.
Keep the Faith ( Northern Soul Style).
Love
J.

User

Posted 12 Aug 2019 at 16:05

Ok..just had chemo No17. With Zolendronic acid No 3. All ok at mo. Plus Hb back up to 86 so no blood transfusion needed Wednesday. But keep an eye on it till next chemo on 2/2/19.
Also during the infusion I read an article by Dr Michael Mosley (TVDoctor). Stating that told build up calcium levels and red blood cell count. Consider drinking full fat milk, (at the moment I’m on either skimmed milk or soya milk). Eat only mature cheese but not soft cheese.
Plus eat good quality lean red meat instead of bacon, sausages and ham, which I eat very little of anyway. -obviously all the above in moderation?
So as I’m up for anything I ll try it and see how my bloods look next time?
Keep the Faith
J.

Notification

Join the online community now.