The pump arrived two weeks ago (huge thanks to you Lyn) and OH is happily practising and delighted at how it works, though no "action" yet!! He needs to get used to getting the ring on and there's still a lot of stretching out to be done. However he says it's great to feel the blood returning to areas it hasn't been in for the past 11 months and he can orgasm successfully and painlessly himself.
I went to see the surgeon with OH for his 3rd check up (PSA normal thankfully!!) ...the day the pump arrived coincidentally! I spoke to surgeon about what we discussed here and asked about changing the meds regime as the 20mg wasn't working. Well that Dr is hooked on the 20mg and wants OH to keep taking it twice a week and add in using the pump. He didn't agree with going 5mg and something else for an event. He is going to see OH again in 2 months time and introduce some gel or tablet (You put in the top of penis....any idea what that is?) and that's where we are now.
Hubby wants to do what his doctor is saying and doesn't want to go against him. I understand that but I am not so trusting that he is getting the best information neccassarily! Also the 20mg Cialis is a mega passion killer as not having taken it for a few weeks OH has terrible back pain and is snoring like a trumpeting elephant due to being totally blocked up with it too. After 2 nights of no sleep I have bailed out!
The other thing going on is T is through the floor and while endocrinologist wants to start replacement therapy, the surgeon has said he will never prescribe it. He cited a recent study (Something to do with Nice) that I can't find, but apparently it goes against the more positive ones out there. Seems we are caught every way. The growth of a boob on just one side is destroying OH's confidence and while it doesn't bother me....it IS getting noticeably bigger. I told him he could have a boob job (reduction) if I could have one too!! (Not a reduction!) At least we can still laugh but sadly he won't swim in the sea this summer.
He is scheduled to see another doctor for a 2nd opinion on the one sided development complete with tenderness. He has already been told it's not cancer but the surgeon wants to know what it is as he thinks it should be double sided growth with low T. I was thinking about getting panicky and anxious at that....but I have googled asymmetrical gynomastasia and it is apparently quite common. Fingers crossed... not sure I can go through another year of extreme anxiety like last year before definitive diagnosis, when I thought the boob was a sign PC was in the lymph nodes and stiffness and pain from too much driving meant it was in his bones.
So that's the update! Good and bad in this ongoing tale! As a matter of interest while T levels were through the floor 1 year prior to surgery, there were no other symptoms. We made the most of the year knowing what was ahead...so not sure if it's a factor now in the lack of reaction to Cialis. I'm sure it cant be helping.