Welcome to the forum, sounds like we have gone through a very similar journey. I have had numerous dilatations about ten I think. Three years post op my PSA had slowly risen to 0.27 and I was advised to have SRT. Just prior to RT I was performing progressive self-dilatation three times a day with size 14 to 18 catheters and my flow had improved immensely.
I was offered bladder removal and stoma as a solution to a "possible" urethral closure and told that surgery to an irradiated urethra would be "challenging". I declined the bladder removal and my consultant recommended I see one of his colleagues for a second opinion. This proved quite useful and he recommended that I have a super pubic catheter inserted as insurance against urethral blockage, followed by urethral reconstruction subject to a favourable PSA result.
I still carry out self-dilatation twice a day using 14 and 16 catheters and do manage on occasions to pass no more than 100 ml of urine through the penis, bladder spasms are quite frequent and quite uncomfortable.
My next PSA test is 8 weeks and I need to wait until the end of August before knowing what routes are open to me. Providing the PSA level has dropped and if I do not regain my normal urination I will then see a consultant in London with a view to carrying out urethral reconstruction. I was advised that this particularly professor is probably the only one in the country that can carry out the surgery and was also recommended by three private consultants in my area. The procedure involves taking skin from the inside of the mouth and grafting it into the urethra. If that is a success but compromises my continence I may also be offered an AUS.
I am now one month on from completion 33 sessions of RT. I can still pass size 14 and 16 catheters but do not seem to release much urine. The consultant seems to think that the bladder has shrunk, I have a flip flow valve on the catheter and do try to keep it shut in order to keep the bladder operating as it should. The Catheter is giving me some problems and I think it is affecting how much and how often I currently pass urine through the penis.
To summarize the jury is still out.
It is always useful to give a history of your journey in your profile, how long since op which sort of op, PSA on DX , current PSA, Gleason etc ? What treatment is being offered if SRT is not going to happen ?
Have a read of my profile for more details, click on name or avatar to bring up profile menu.