Leo Robot spares some nerves

Another 3 months have elapsed, but not a lot has changed. My blood was extracted in the tent outside my GP's surgery by the same nurse wearing the same "Darth Vader" mask.

A week later I received another phone call from the Clinical Nurse Specialist telling me not to bother turning up to my pre booked appointment with my consultant. My PSA is unchanged at 0.1, so once again nothing is to be done other than another PSA test in 3 months time.

By way of a change I was also informed that since Treliske already had a sample of my blood I had been randomly selected to receive the added bonus of a Covid-19 antibody test. That was negative.

Which reminds me that I've been waiting for an appointment for a CT scan at Derriford for 3 months or more. By way of another change that's for my heart and lungs rather than potential mets.

Hi Lyn,

My fingers and other appendages are currently all firmly crossed, in the hope that your "new normal" theory is correct.

I've also finally received my appointment for a CT scan at Derriford Hospital in Plymouth at the end of the month. Chest not lower abdomen!

Jim

Hi Jim,

Well, by the time the quacks had performed a zillion scans and still couldn't find any mets to explain my initially sky high PSA reading I was suffering from lymph node involvement and perineural invasion. Leo managed to remove several nodes whilst sparing my main nerves but despite his best efforts I was left with a positive margin of 1.6 mm.

Currently my regime seems to be keeping my opponent at bay, and I like to think that the solution to the problem is at least as much "mental" as "physical".

Paraphrasing only slightly, please don't let the b****** grind you down! 

The other Jim

P.S. I seem to have fallen foul of the PCUK rude word police. My apologies!

Edited by member 01 Aug 2020 at 10:26  | Reason: Not specified

Hear, hear Lyn!

I was on the point of pinging the PCUK powers that be.

Except I don't know how!

Jim

oh dear!!! To all people on this site.

My heart goes out to each and everyone of you and anyone else who has had to go through the awful journey cancer takes us on.

Maybe I am passionate about spreading my uncles and my whole family's story (as cancer pulls us all in, does it not?), and maybe my approach was wrong. But it was and always will be from a good place.

We went from hopeless to hopeful to a miracle and I will never play down our experience as a family.

If someone had not been brave enough to suggest something to my Uncle which may not have been what's considered the 'Norm', my Uncle would not be here today and that is a fact.

Your messages will always get thru and I feel it's important for people to be able to discuss especially such a painful topic that is responsible for taking beautiful people from us way before their time.

I am NOT selling ANYTHING, neither am I a spammer.

I am a normal person trying to be a good husband, father, friend, definitely Nephew etc and I care immensely about this subject and what information is out there for people like me to be able to research and share with people like you.

Whether we agree or not, surely is not important. Is not sharing our experiences the way forward? Does it matter that we have different experiences? If you had a good experience, would you not want to share it with other people that may also be suffering?

Considering that cancer is rifer now than ever (1 in 2 male or female currently as we all know) is it not our duty to be doing our own research to try and help other people including the amazing people in the medical community, or do we like sheep keep our heads in the sand and our fingers crossed that it does not happen to us?

It did happen to us and we did have our heads in the sand and had never bothered to educate ourselves on what is quickly becoming the biggest killer.

We now as a family have self-funded our own research into cancer prevention and cure, we realized that we have access to all the same information that the professionals do. It's in the public domain. There are literally thousands of people across the world that are doing the same and we have been privileged to connect with many like-minded people. 

I will again apologise for my approach, my wife always says I am like a bull in a china shop.

But I stand by everything I say as I can back it up and have done for the last few years on a regular basis.

Whether you believe me or not I genuinely care about people in general and all of you that may have or currently are gone/going through awful times with this horrendous disease. My heart and positive energy go out to all of you.

I would say this, if I did not have thick skin I would have been driven away from this platform by now.

Having different opinions is what makes people, people. 

I assure you I am as loving, as caring as empathetic as you are.

I want the same outcome as everyone here which is to help fight cancer.

Love to you all x

I'm definitely a Hammer but never been a spammer.

I'm also definitely guilty of not reading the rules of the site, didn't even think to.

I went straight in with what I believe in and believe to be true as this is the approach I appreciate.I don't beat around bushes but I appreciate that may have been insensitive.

So again I apologise to all.

My information stands true however and the more of this back n forth the better as someone will have a look into the three amazing people I have referred to (even if it's only initially to debunk what I have said. Or what these incredibly knowledgeable people have said for years and have a plethora of evidence to support their claims) then I will have succeeded. 

If there is anyone reading this who wants to know the names of the 3 people I referred to in previous messages I am sorry but this site apparently does not let you mention respected professional medical people who specialise in this area.One of the 3 is recognised as being responsible for, and accepted by the main stream medical governing bodies across the world for introducing the Endocannabinoid system. He has been nominated for 25  awards for his specialist research and work in thid area and won many of them. He is an Israeli Gentleman and if you type ask Google who introduced the Endocannabinoid system to the world you'll find him. What you'll find (in my opinion) could not be more relevant to what this site is surely all about.

As always, sending loads of love your way!!!!

Sharing information is Caring information

Good Night hope you have a good sleep.

Other Jim

Tell you what Jim,

Why don't you go and expand at length about your thoughts/feelings/theories on a "personal story" thread of your very own rather than filling mine up with irrelevant verbiage that is of no interest to me?

Thanks in anticipation

I don't know about you Jayman, but I'm going to be hunched over my keyboard for the next couple of days preparing a bid for some of our glorious Government's alleged "Covid-19 recovery" R&D funding.

Maybe with a bit of luck I'll be able to cool off in the North Atlantic later in the week though?

Namaste,

Jim