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Muscle aches and fatigue

Posted 16 August 2017 13:24:32(UTC)
Hi, I'm 68, diagnosed with metastatic prostate cancer just over twelve months ago. Gleason score of 9. I was put on HT in the form of Triptorelin straightaway with a 4 month course of CT (Docetaxel) following in October. I came through the chemotherapy relatively unscathed but now 6 months on I ache from head to foot and physically tire very easily. This is compared to previous to treatment where I had a pretty active job and ran & cycled most days of the week. Painkillers barely have any effect. I am able to keep reasonable active but sometimes find myself being put off because I know my muscles will react as if I'm doing something for the first time. I would have expected, as time went on this sort of thing would improve rather than get worse or am I being too impatient. Current PSA undetectable. Thanks
Posted 16 August 2017 15:09:30(UTC)

More likely to be the Triptorelin and therefore ongoing. PCUK was running a project to support men suffering HT-induced fatigue so it would be worth calling the specialist nurses on the phone number at the top of the website page. Some members have found swimming helps.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Posted 16 August 2017 21:29:03(UTC)

Some men find HT affects muscles and stamina severely even after quite a time. Whilst one doesn't want to over exert oneself, it is important to continue to exercise as much as you reasonably can.

Posted 17 August 2017 07:38:21(UTC)

I agree with those above - it's probably the hormone therapy.

I had radiotherapy + Zoladex (HT) started 2.5 years ago (ish). The radiotherapy zonked me for a good six months, but but even though I knew I was past that, it left me with a tiredness, lassitude, and every other word in the thesaurus!

Over the many months, it has eased a little, but it was clear from the start that I'd have to force myself forward, or slip back. Still do. And that in itself can be exhausting some days.

Walk, be active. On days when you have nothing to do, do something. At our time of life we're like sharks; we have to keep moving.

But two small points:

1. It will probably get a little better as you progress. Keep that in mind!

2. Be self-aware: the lassitude you're likely stuck with, but be sure there's nothing else going on (eg cardiovascular, depression) which may be eased by intervention.


-- Andrew --

"I intend to live forever, or die trying" - Groucho Marx
Posted 17 August 2017 09:21:48(UTC)

Thanks a lot for the responses. I have just seen my GP who thinks it is most likely HT related but to be on the safe side has arranged for a full blood test when I go for my next PSA check - which is tomorrow. Dave

Posted 22 August 2017 17:08:18(UTC)
Just back from latest hospital visit. The blood tests ordered by my GP show no other issues so muscle and fatigue are almost certain to be HT related. On a positive note - PSA remains undetectable for the second time.
Posted 22 August 2017 17:17:04(UTC)
Well done on both counts Dave. Hope that things will gradually improve for you.
Posted 22 August 2017 17:53:39(UTC)
Glad to hear your PSA is still undetectable. I hope the fatigue etc reduces for you in time. Best wishes, Ian.
Posted 22 August 2017 20:24:18(UTC)

Hi , my OH Gary found since chemo and hormones that his Achilles are really painful .also continuos fatigue .
Gary continues to work which he feels helpful .Its been over a year since chemo finished but is on stampede arm j which I think contributes to muscle loss and pain . Gary was extremely strong and active with work but has had to scale back a lot .
Best wishes

Posted 08 September 2017 16:10:59(UTC)
Thanks for the good wishes and sorry about the delay in replying. I have been having my strength seriously tested by all five grandchildren. It's been an absolute delight but goodness know how long it will take to recover 😀

Posted 07 March 2018 11:26:40(UTC)

Just an update on the muscles and fatigue. I had my latest Oncologists appointment two weeks ago. The aches are now deemed to be a combination of weaker muscles due to HT, age related and my tendency to overdo it. The fatigue has eased and I’ve more or less got used to the aches. And I have no intention of learning by my mistakes re overdoing it 😀


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