I am back after posting a couple of months ago re symptoms in my husband. He has been suffering weak flow, urgency, dribbling, hesitancy and incomplete emtpying of bladder. He has had recurrent UTI's, some showing infection others showing nothing. Over the last 7 years he has been to the GP on more than one occasion and given anti biotics with no follow ups.
Fast forward to now - He had a PSA test in July which came back at 8.8. Referred to Urologist and given 2 weeks of cipro and an mri. Had a PSA at the end of 2 week cipro and a drop to 4.9 (this test was done AFTER a DRE so am thinking it may in reality have been lower). He did have a PSA which he was unaware of in June 2016 which was at 2.5 this came to light from his records on initial consultation and was done by a heamatologist as part of a complete blood work up...no correlation was made between this and his urological symptoms. In fact they stated it was normal.
Then the phone call from the Consultant to say that his MRI was not so reassuring for inflammation, which was their initial thoughts upon looking at the clinical symptoms). They say there are 2 spots on his prostate which do not look like inflammation. He cant have the TRUS biopsy due to a surgery for Ulcerative colitis and the formation of a jpouch where his colon used to be. The risk of infection and damage to his pouch is too high and so a transpereneal is being asked for....this means a longer wait.
I am now convinced in the absence of a diagnosis that this can now only mean that that he has Prostate cancer that became symptomatic oer 7 years ago. So 7 years of untreated growth. He has a pain in his hip radiating into his thigh which starte 2 years ago (they diagnosed neuropathic something or other) and has sufferd chronic lower back pain for over 15 years so any pain in his back due to advanced cancer wouldn't necessarily be noticed.
Am just waiting the results of a PSA test yesterday and if PSA has risen will be asking for a private referral for biopsy as I am scared it may be too late already.
I really can't think it could be anything else now...the consultant ony said it didn't look reassuring..so if he doesn't think inflammation then the spots must be cancer...and if it is cancer it has become symptomatic and at the age of 49 he is staring at his own mortality because they didn't think to give him a PSA years ago when he first presented with symptoms. Sorry for the length of this post. Don't really know why I am posting other than it helps to know that people going through this awful journey are reading and may be able to offer hope/advice.
Thanks for reading.