Thank you Barry!
I do appreciate any constructive input-as previously stated=,and am grateful for other's thoughts, experiences and signpostings.As I am for PC Uk's ongoing campaigning for better information provision and treatment..
Not everybody is in a position to seek treatment abroad,and whilst I am very happy for those who can,I feel for those who would like to have that option but simply can't-ourselves included.
I also feel there is room for opening up dialogue with medics at a local level-human beings, often bogged under by time constraints and pressures from higher up.. unless it is recognised that patients have valuable input to offer (should they wish to do so),things will not necessarily improve..In conversation with a manager in cancer services a while ago, the NHS was described to me as a business,a 'service provider'-paid for like any other service (Phone,gas..).
The most successful businesses apparently use 'customer' feedback and concerns raised as free consultancy-and,given the expressed wish and encouragement (in literature and online)to giving feedback within GP and hospital setting,that seemed to tie in line with that sentiment.