The above post from notabene sounds like an advertisement for the [Hospital name removed by Moderator]!! Notabene claims no biological progression in any of the several hundred cases they have treated. Rubbish !! No centre has ever achieved anything close to 100 % success. They themselves only claimed 60% cancer free after 5 years for high risk gleason 8 and above cancers when I asked them what their success rate was.
For anybody considering Prague, please note my proton therapy treatment at the [Hospital name removed by Moderator] went EXTREMELY BADLY.
For the first 4 days of my treatment I was at the centre for most of the day because they had great difficulty executing their treatment plan. I had severe bleeding from my rectum from the second day and yet when I reported this to the doctors at the centre they said it was because I had haemorrhoids which was untrue.
After 4 days I refused to continue with the treatment and they then eventually agreed to do a seond treatment plan . With the second plan they were able to do the daily treatments without any problems. However, the damage had been done. Towards the end of the 21 day treatment I started to feel very ill but the doctors at the centre continued to insist that it was only haemorrhoids. I barely made it on to the plane to get me home. When I arrived back I was so ill that I was immediately transferred from the plane to hospital.
I ended up staying in hospital for 5 months. The doctors at the hospital discovered that I had large deep ulcers in the rectum consistent with severe radiation related colitis. I had to undergo a 5 hour surgery where it was discovered that I had a hole in my bowel caused by the very inaccurate proton therapy treatment I had received at [Hospital name removed by Moderator]. I had to have part of my bowel removed due to the extensive and severe radiation it had received. They were not suppsed the be radiating my bowel at all. I got sepsis, double pneumonia and lost 25 KG in weight. I very nearly died. Nine months after my treatment finished I am still 12KG less than I was before commencing treatment, am always tired and am still in pain. [Hospital name removed by Moderator] have not contacted me once since I finished treatment even though they undoubtetly know that they caused me great harm.
My advice would be think very carfully before you have proton therapy. I now think that it potentially carries as many treatment risks as photon therapy and it is of course much more expensive unless your insurance covers the cost. However, if you do decide to get proton therapy I would certainly recommend avoiding the [Hospital name removed by Moderator]. Based on my experience I do not believe that it deserves it's reputation as one of the leading proton therapy centres in Europe.
Edited by moderator 27 Sep 2021 at 12:39
| Reason: Not specified