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Degarelix pain - Hormone treatment,Degarelix

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User
Posted 22 Nov 2017 at 13:08

Hello

Thanks for all your posts, which I am reading with great interest. This is my first post, so be gentle :-).

I was recently diagnosed with advanced prostate, which has spread to my spine and chest (bones). Since I found out I have been exercising, eating healthily and doing everything in addition to medical treatment that I can to reduce the cancer and prolong my time here. I had been feeling really good as a result of my new lifestyle changes. 

Yesterday, I had my second injection of Degarilix (hormone treatment to reduce my testosterone level prior to chemotherapy). Four weeks ago, after the first dose (actually two injections into the abdomen), I felt great. In fact, it almost immediately removed the severe pain I had had in my lower back area. However, yesterday within minutes of the injection I had a terrible pain in my stomach area where the needle was inserted. I had to cancel a meeting as I was in no state to focus on anything. Almost 24 hours later and I still have the pain, although it appears to be receding. 

Has anyone had this same pain? Is it expected after each injection? Is there anything to do to avoid it? 

Regards

Michael 

User
Posted 22 Nov 2017 at 17:03

Hi
I too have advanced PCa with extensive bone mets and I’m due for my 11th degaralix injection next week and I’ve found that I have some discomfort/pain/burning at injection site for about 3–5 days after each injection. Most of the time I just grin and bear it but if it gets too annoying then I take 1x co-codamol tablet as required which usually gives immediate relief.
I’ve also had 6 x chemo infusions all of which went quite well with limited side effects eg hair loss, (back now), but no loss of taste/appetite etc.
I’ve also completely changed my diet and drinking habits and feel much better for it, and just for reference my PSA at diagnosis (March/17), was 1547 whereas it’s now 94 and decreasing?! Long may it reign!!!
Currently on a chemo and steroid holiday with the next meeting planned with my oncology specialist in Dec/17.
Hope this helps and try to stay positive as I’m sure that helps too.
J.

User
Posted 22 Nov 2017 at 18:31

My husband had degarelix injections for nearly all of his 5 year battle against his cancer. He nearly always had a fever a few hours after the injection and the injection site was tender for a few days but paracetamol was all he needed to take. On one occasion a different nurse gave him his injection, didn't get him to lie down and just stuck the injection straight in. He presumed this went into the muscle instead of just under the skin as he had a lot of pain for quite a few days. On the whole degaralix really did a wonderful job and he had nearly 5 years of a good quality of life. When he was first diagnosed it wasn't used much and from day one all his symptoms disappeared it was just a pity he had an aggressive cancer that would manage to keep reappearing after we thought treatments were working.

Linda

User
Posted 22 Nov 2017 at 20:55
Hi,

I am also in the same boat, having advanced PCa, I’m on prostap, 2 injections so far, next one due next week. My PSA has dropped from 1027 to 22 in 6 months, hope it keeps the downward trend going!! Not had any issues from the injections.

I’m also on the chemo pathway, had my 4th of 6 infusions last week, this was the first time I’ve suffered afterwards with fatigue and an ache in my left hip (had RT at diagnosis).

Hope our journeys are long ones

A

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User
Posted 22 Nov 2017 at 17:03

Hi
I too have advanced PCa with extensive bone mets and I’m due for my 11th degaralix injection next week and I’ve found that I have some discomfort/pain/burning at injection site for about 3–5 days after each injection. Most of the time I just grin and bear it but if it gets too annoying then I take 1x co-codamol tablet as required which usually gives immediate relief.
I’ve also had 6 x chemo infusions all of which went quite well with limited side effects eg hair loss, (back now), but no loss of taste/appetite etc.
I’ve also completely changed my diet and drinking habits and feel much better for it, and just for reference my PSA at diagnosis (March/17), was 1547 whereas it’s now 94 and decreasing?! Long may it reign!!!
Currently on a chemo and steroid holiday with the next meeting planned with my oncology specialist in Dec/17.
Hope this helps and try to stay positive as I’m sure that helps too.
J.

User
Posted 22 Nov 2017 at 18:31

My husband had degarelix injections for nearly all of his 5 year battle against his cancer. He nearly always had a fever a few hours after the injection and the injection site was tender for a few days but paracetamol was all he needed to take. On one occasion a different nurse gave him his injection, didn't get him to lie down and just stuck the injection straight in. He presumed this went into the muscle instead of just under the skin as he had a lot of pain for quite a few days. On the whole degaralix really did a wonderful job and he had nearly 5 years of a good quality of life. When he was first diagnosed it wasn't used much and from day one all his symptoms disappeared it was just a pity he had an aggressive cancer that would manage to keep reappearing after we thought treatments were working.

Linda

User
Posted 22 Nov 2017 at 20:55
Hi,

I am also in the same boat, having advanced PCa, I’m on prostap, 2 injections so far, next one due next week. My PSA has dropped from 1027 to 22 in 6 months, hope it keeps the downward trend going!! Not had any issues from the injections.

I’m also on the chemo pathway, had my 4th of 6 infusions last week, this was the first time I’ve suffered afterwards with fatigue and an ache in my left hip (had RT at diagnosis).

Hope our journeys are long ones

A

User
Posted 24 Nov 2017 at 09:14

Thanks for your replies. I will indeed have to just grin and bear it, valleyboy. I think I was just surprised that it was fine after the first one. Spoke to the nurse yesterday and she did say it is not uncommon.

M

 
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