Well we saw the urologist privately, because of the SPC and kidney issues and it’s worth the money because he immediately phoned our onco (we’ve been transferred to Oxford from Swindon for the duration of the Radium) and he said that John is on his radar for a January appointment and will be discussed in the MDT in Swindon (which our urologist attends) next Thursday). Our concern was that our last Radium is 12th January and then we might disappear down a hole as we get transferred back to Swindon and how long it might take to get a further onco appointment here. Anyway, I don’t think we need to worry about that too much now. Our oncologist did tell us that the Radium does cause a lot of inflammation and that does cause the PSA to rise, so that was new information for us and that helped the anxiety a lot. John does have increased pain in his hips, so that’s a worry, and he’s been generally unwell this month, cold, hideous cough etc, but hoping that will improve. He also has the dreadful cancer blues, and has been hard to live with. I’m sure you guys get that.
So we will wait patiently and be grateful for the current treatment and wonder what’s next. Whatever it is, it will be next year. I’m quite relieved about that If I’m honest. Let’s hope we get a peaceful New Year this year, it’s often been our nemesis in the past!
On the good news front, I’ve left my job and am applying for carers allowance but have also managed to get a two day a week job (it’ll take a few months before I can start for security reasons, nuff said). It’s perfect as the days can be to suit. I’m relieved to be out of corporate work.