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Good start to 2018

User
Posted 08 Jan 2018 at 18:39
Well I am such a lucky guy - just back from seeing onco and PSA undetectable for the second time.

Had RALP in 2015 followed by salvage RT in 2016 but as PSA continued rising I started HT in 2017 and since starting on Prostap 3 I have had two clear results.

Next appointment in 6 months.

For others who might be following a similar path - there is hope.

All the best

Kevan

User
Posted 08 Jan 2018 at 20:59
Hi Chris

Following the op I have total ED but due to medical problems that my wife already has this has not caused us any undue distress. As far as incontinence is concerned I have a little bit of stress incontinence occasionally. These were things we were expecting and so we were ready for it. I have a few aches and occasionally get a bit tired but I know how to handle these side effects and the hot flushes are receding. I feel great and am doing all the things we enjoy. I am enjoying being out and about on the motorbike even in this weather and am still driving the school minibuses all over the place with trips most weeks. Still doing the garden and odd jobs for the neighbours, so for me life is great.

Every day is still an adventure and all this is in no small part as a result of the love and support of a wonderful wife. As the onco says, any side effects of treatment are just the side effects of being alive.

In short Chris I am very happy and very lucky.

All the best,

Kevan

User
Posted 04 Feb 2018 at 21:23
Just a little add on.

I had the appointment letter from the hospital for my onco visit in July and was pleasantly surprised to see that it will be a telephone appointment with the specialist nurse. I guess this is one more sign that they must feel that things are progressing well at the moment.

Again, I hope that others might take comfort from the fact that for me the pathway of RALP, followed by salvage RT, followed by HT is having a positive effect. I know this could change at any time and it is only my Gleason 9 T3b story but I felt the latest little piece of news was worth sharing.

User
Posted 08 Jan 2018 at 18:39
Well I am such a lucky guy - just back from seeing onco and PSA undetectable for the second time.

Had RALP in 2015 followed by salvage RT in 2016 but as PSA continued rising I started HT in 2017 and since starting on Prostap 3 I have had two clear results.

Next appointment in 6 months.

For others who might be following a similar path - there is hope.

All the best

Kevan

Show Most Thanked Posts
User
Posted 08 Jan 2018 at 20:11

Great news! Although our condition and treatments are different it’s a good feeling getting the undetectable result isn’t it?

Take care

Dave

User
Posted 08 Jan 2018 at 20:16

Great news Kevan

Bri

User
Posted 08 Jan 2018 at 20:28

Good New Year news. Long may it continue. How are you feeling life wise generally can I ask ?

If life gives you lemons , then make lemonade

User
Posted 08 Jan 2018 at 20:59
Hi Chris

Following the op I have total ED but due to medical problems that my wife already has this has not caused us any undue distress. As far as incontinence is concerned I have a little bit of stress incontinence occasionally. These were things we were expecting and so we were ready for it. I have a few aches and occasionally get a bit tired but I know how to handle these side effects and the hot flushes are receding. I feel great and am doing all the things we enjoy. I am enjoying being out and about on the motorbike even in this weather and am still driving the school minibuses all over the place with trips most weeks. Still doing the garden and odd jobs for the neighbours, so for me life is great.

Every day is still an adventure and all this is in no small part as a result of the love and support of a wonderful wife. As the onco says, any side effects of treatment are just the side effects of being alive.

In short Chris I am very happy and very lucky.

All the best,

Kevan

User
Posted 08 Jan 2018 at 22:12

Originally Posted by: Online Community Member

In short Chris I am very happy and very lucky.

 

 

What a wonderful thing to be able to say x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Jan 2018 at 22:14
We live in hope, Kevan. Wonderful news and long may it continue.
User
Posted 08 Jan 2018 at 22:18
👍

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 04 Feb 2018 at 21:23
Just a little add on.

I had the appointment letter from the hospital for my onco visit in July and was pleasantly surprised to see that it will be a telephone appointment with the specialist nurse. I guess this is one more sign that they must feel that things are progressing well at the moment.

Again, I hope that others might take comfort from the fact that for me the pathway of RALP, followed by salvage RT, followed by HT is having a positive effect. I know this could change at any time and it is only my Gleason 9 T3b story but I felt the latest little piece of news was worth sharing.

User
Posted 04 Feb 2018 at 22:21

Great news. You’ve been through the mill and back !!

If life gives you lemons , then make lemonade

User
Posted 05 Feb 2018 at 07:07

Long may it continue ,being of similar scores but starting with chemo it’s great to see your progress .
Best wishes
Debby

 
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