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Told operation too risky :(

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User
Posted 08 May 2018 at 18:31
I symphysis with your dellema , I have had Prostate Cancer for eight years with out treatment. This may shock my readers . To be honest I have had no major problems since I refused treatment in 2010 when I was diagnosed with ProstateCancer. But I didn't make this decision lightly . I also have A form of MND a muscle wasting illness. I also have COPD and a Spimal condition and heart problems. Enough illnesses one would say . You see two of my other illnesses are terminal . Hence my refusal of treatment for my cancer .

Also I have surprised the Consultant who told me in 2010 if I didn't have the reccomended treatment My life expectancy would be lessened . I have proved him wrong and he is amazed I am still alive. So all I am saying is don't give up on hope .

User
Posted 08 May 2018 at 20:29

That may be a quirk of some hospitals - it isn't true of them all. There again, J always had the 8.30 or 8.45 appointment so perhaps was lucky?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 May 2018 at 22:46
My treatment was rarely on time. Most days it was 15-30 minutes late by which time I was bursting.

Sometimes the team would ask us to delay drinking the requisite amount of water to fit around things.

The delays were often due to how busy they were and the time for some people getting in and out being extended for whatever reason.

Ido4

User
Posted 08 May 2018 at 22:53

I have been at RT suite when appointments have been delayed because very young children and vulnerable adults with learning difficulties etc need so much more time from the staff. I was always just thankful that it wasn't my child or relative; it must be terrible to go through such treatment if you don't really understand what is happening.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 May 2018 at 00:20

No of course (wasn't suggesting you would) - but others in that situation may not realise why delays can happen. It's like when I am stuck at Kings Cross and everyone is getting mad because no trains are running due to an "incident on the line" - I have been known to stand on the concourse explaining to strangers that they might get home a bit late but someone else is never going home again and a family somewhere are hearing terrible news.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 May 2018 at 20:12

S/he may just ask you about any side effects you are experiencing - an opportunity for you to ask about the bowel / bladder changes?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 May 2018 at 22:58

Rich

Not emptying a full bladder is never ideal as it can put pressure on the kidneys. Make sure you stay relaxed, I found changing positions when urinating  sometimes helped the flow of urine, don't quite know why but slightly pushing the base of the penis towards the scrotum increased the flow. 

Constipation can be a cause of retention.Retention is quite painful and if you feel that your bladder is getting too full and uncomfortable get yourself down to your local emergency department. 

Thanks Chris

 

 

User
Posted 26 May 2018 at 23:01
I agree with Chris, go to A & E and get checked out. Retention started me on this path.
User
Posted 26 May 2018 at 23:41

I agree with the previous comments Rich. Go and get checked out please.

Ian

Ido4

User
Posted 27 May 2018 at 09:44

Rich

How are things, did the medication kick in as advised or are you still suffering ?

Thanks Chris

User
Posted 27 May 2018 at 14:47
Glad to here that Richard.

I hope the remaining RT sessions go well.

Ian

Ido4

User
Posted 05 Jun 2018 at 22:57

well done for getting through that! Fingers crossed it' good news in a few months time - Now get this party started!!!

User
Posted 06 Jun 2018 at 00:55
Congratulations
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 06 Jun 2018 at 06:54

It's a great feeling isn't it. Well done.  I hope the side effects wear of quickly and that your results are good.Glad you met some nice people there as that helps you to get through it all.

All the best

Kevan 

User
Posted 06 Jun 2018 at 09:56

Well done getting through the radiotherapy Rich, it is a great feeling to finish the treatment. 

I must admit I was quite sad to say goodbye to those I had talked to in the waiting room and the radiologists who were fantastic.

That’s really nice that you got a birthday card.

best wishes,

Ian

Ido4

User
Posted 06 Jun 2018 at 10:13
Hope your side effects clear up soon and all the best wishes for a positive outcome

Cheers

Bill

User
Posted 15 Jun 2018 at 22:09
Have a fantastic day
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Jun 2018 at 22:24
Have a great day you deserve it
User
Posted 16 Jun 2018 at 23:21

I'm early in my PCa journey, and have just read this whole thread. It's been a great education, one that I really appreciate. I like and appreciate you, Richard, you, LynEyre, and all the other posters here, and indeed the ProstateUK site itself. Hope you had a good day as best man today, Richard. (LynEyre, you referred earlier here to a course of treatment that my doctor suggested might be his recommended course for me, depending on test results Tuesday -- RP + RT + hormones, and maybe even chemo too. I'm in the U.S.)

Edited by member 16 Jun 2018 at 23:24  | Reason: Not specified

User
Posted 24 Jun 2018 at 06:08

Seeing a specialist privately is a great idea you will get time to chat and ask all these questions and get straight answers.

If you are feeling physically ill you MUST speak to your team at the hospital or your GP.

You have had curative therapy, at some point you should be able to stop the hormones, then you will feel better. 

The girlfriends will come as your confidence returns (with or without a hardon! !).

 

 
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