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Just diagnosed and scared

User
Posted 11 Feb 2018 at 11:21
Hi guys, I’ve recently been diagnose with advanced prostate cancer. PSA 46 and bone mets in 2 places ( shoulder and hip area).urologist diagnosed me from mri scan and bone scan results.i have not had biopsy yet but that will be soon.im 51 with a young family and beautiful wife and I’m scared to death that I have let them down.im usually very outgoing and fun but all I’ve been doing is sitting looking out the window worrying that I will die soon.i know there is people in the world with far more worries than mine and I’m probably being selfish but I’m finding it difficult to cope and keep having melt downs and lock myself away in the bathroom to avoid my children witnessing anything.ive been put on 100mg a day Cupertino acetate tablets and I guess in the future I’ll get an appointment to see someone else at the hospital.im just really scared at the moment.Thanks for listening.Mick.
User
Posted 11 Feb 2018 at 12:27
Cypertone acetate.....sorry for the typo
User
Posted 11 Feb 2018 at 12:38

Hello Mick and welcome to the site

PSA of 46 is high but by no means the highest we have ever had on here. Think in terms of thousands !!

We have members with bone mets, we have members who are incurable. It doesn't mean they are going to die tomorrow though, they have lived their "new normal" for many years and are determined to do so for a long while yet.

Shock of diagnosis is understandable, as are meltdowns and wanting to shut yourself away.

Please don't despair. Once your treatment programme is underway you will settle down because you will have some say in what happens next. At the moment everything is up in the air.

You'll get other replies I'm sure, but weekends are fairly quiet so you might need to be a little patient.

If you want answers to queries when there doesn't seem to be anyone around the you can approach the nurses on the number appearing at the top of the main page, although they too have work hours.

Best wishes to you and your wife Mick

Sandra

 

Edited by member 11 Feb 2018 at 12:39  | Reason: Not specified

We can't control the winds - but we can adjust our sails
User
Posted 11 Feb 2018 at 12:54

I keep a personal database of info on various diseases.  I'll paste it here concerning prostate cancer.  If I had that cancer I would start doing less *AVOID and more *BENEFICIAL Here is the paste:

**PROSTATE- Prostate cancer is a hormone driven cancer so plastic estrogen hormone imitators like BPA from water bottles help drive that kind of cancer.
*DETRIMENTAL
*DETRIMENTAL*ARACHIDONIC ACID - rich foods create arachidononic acid which gives COX-1 ((which is inhibited by low dose asprin) & (which creates Thromboxane A2 which gives abnormal platelet aggregation)), COX-2 & 5-LOX (lipoxygenase)
*DETRIMENTAL*Some kinds of CASH REGISTER RECEIPTS -
*DETRIMENTAL*EGG YOKE
*DETRIMENTAL*RED MEAT - Especially grilling. If you have to grill then marinate it and pre-cook it in a steamer before throwing it on the grill.
*DETRIMENTAL*POULTRY
*DETRIMENTAL*ORGAN MEATS
*DETRIMENTAL*BPH from plastic bottles
*DETRIMENTAL*OMEGA 6 OILS - Creates arachidononic acid which gives 5-LOX (lipoxygenase)
*DETRIMENTAL*AVOCADOS - contain more potassium than bananas.
*DETRIMENTAL*ALMONDS
*DETRIMENTAL*MACADAMIA NUTS
*DETRIMENTAL*PEANUTS
*DETRIMENTAL*BRAZIL NUTS
*DETRIMENTAL*HAZELNUTS
*DETRIMENTAL*PECANS
*DETRIMENTAL*PISTACHIOS
*DETRIMENTAL*SUNFLOWER OIL
*DETRIMENTAL*SAFFLOWER OIL
*DETRIMENTAL*CANOLA OIL
*DETRIMENTAL*GRAPESEED OIL
*DETRIMENTAL*CORN OIL
*DETRIMENTAL*PEANUT BUTTER
*DETRIMENTAL*CASHEW BUTTER
*DETRIMENTAL*PARABENS Parabens are controversial toxins that have been shown to alter estrogen in females, increase allergies, decrease sperm count in men, contribute to skin cancer and disrupt normal fetal development in pregnant women. Learn more: http://www.naturalnews.com/040133_sexual_health_products_toxins.html#ixzz3qWt3EcHQ

*DETRIMENTAL*STRESS - Stress produces a hormone called cortisol. A little cortisol can help. But a steady stream of it is toxic to your immune system. You should banish stress for at least 10 minutes every day. Mediation, yoga and exercise are great stress busters.

*BENEFICIAL
*BENEFICIAL*APPLE PEELS - contain ursolic acid helps kill prostate cancer cells along with turmeric-curcumin and resveratrol.
*BENEFICIAL*BORON - 3 mg. to 6 mg. / day greatly decreases the risk of prostate cancer by 64%. eight apples per day is equal to 3 mg of boron. It is better to take boron supplements because they are very cheap. http://www.lifeextension.com/magazine/2015/11/boron-reduces-prostate-cancer-risk/page-01?sourcecode=CVD500E&utm_source=zMag&utm_medium=email&utm_content=Article&utm_campaign=CVD500E
*BENEFICIAL*BOSWELLIA SERRATA - Inhibits 5-LOX and helps keep the cancer from spreading.
*BENEFICIAL*BROCOLLI - Helps detox and healthy PSA and apoptosis.
*BENEFICIAL*CANNABINOIDS RICK SIMPSON - Coast to Coast AM Nov. 4th, 2017. Good program. Guy cured himself of stage 4 prostate bone cancer.
*BENEFICIAL*CARROTS - A beta-carotene-rich diet may also protect against prostate cancer.
*BENEFICIAL*CURCUMIN - helps kill prostate cancer along with apple peels and resveratrol from grape skins and seeds.
*BENEFICIAL*EJACULATION FREQUENTLY - is linked with a reduced risk of prostate cancer. Dr. Whitaker Vol. 26 #1 p8.
*BENEFICIAL*GRAVIOLA (SOURSOP) - Fruit 100 Fold Stronger At Killing Cancer Than Chemotherapy. Possible side effect is increase risk of Parkinson's. Effectively target and kill malignant cells in 12 types of cancer, including colon, breast, prostate, lung and pancreatic cancer. The tree compounds proved to be up to 10,000 times stronger in slowing the growth of cancer cells than Adriamycin, a commonly used chemotherapeutic drug! What's more, unlike chemotherapy, the compound extracted from the Graviola tree selectively hunts down and kills only cancer cells. It does not harm healthy cells!
*BENEFICIAL*GRAPE SKINS AND SEEDs - Resveratrol
*BENEFICIAL*GREEN TEA - Supports healthy PSA levels and body's natural defenses. Green tea should be grown with lime to keep the plant from picking up the floride from the soil. Drink the tea with a little calcium carbonate. This binds to the floride and greatly reduces it's toxicity. Dr. Blaylock Jan. 2016 p. 5
*BENEFICIAL*FOLATE VITAMIN B9 - Helps Folate or folic acid cannot be used well in 50% of those with European blood. They must use L-methylfolate (5-MTHF) to get a useable form of folate. Life Extension Mag. May 2015 p. 57
*BENEFICIAL*VITAMIN D. 2,000 IU daily. 8,000 IU is optimal.  Get tested for a deficiency.
*BENEFICIAL*VITAMIN C. This vitamin has been marginalized as ineffective. But more than 18,000 studies show its benefits just in the PubMed database alone. Vitamin C raises your number of infection-fighting white blood cells and antibodies. Vitamin C foods that boost your immune system best are guava, papaya, strawberries, kiwi, cantaloupe, orange, and grapefruit — but you'll need six servings of fruit a day. I recommend a supplement of 2,000 mg daily. Take vitamin C in divided doses throughout the day for best results. Take up to 5,000 mg to 6,000 mg a day if you feel like you're getting sick. Don't take 10,000 units in a tablet form.  You will get a kidney stone.  Vitamin C helps reduce the chance of metastasis.   Proline and green tea does also.
*BENEFICIAL*SLEEP well. Your immune system needs sleep. When you're deprived of sleep, your immune system suffers and your body becomes vulnerable to illnesses and infections.
*BENEFICIAL*REDUCE STRESS*Exercise with PACE. Studies show that vigorous exercise four to six times a week boosts your immune system. My PACE program is a great way to do it. Recent studies prove vigorous exercise can increase the number of your adult stem cells.
*BENEFICIAL*GARLIC: This antibacterial agent is one of nature's top germ killers and can help fight infection.
*CAT'S CLAW - This stimulates T-cells to boost the immune system. You can find it in health food stores. Look for a supplement made from the inner bark and take 500 mg per day.
*BENEFICIAL*ANAMU: This Amazon-native herb protects against bacteria and viruses. In one study, anamu increased natural killer cells by 100%.8 These are the cells that kill disease throughout your body. You can buy the dried leaves online or in health food stores to make a tea. You can also take the herb as a capsule. I recommend 500 mg to 1,000 mg per day in divided doses. I discovered this herb when I was in Peru and use it regularly. And I never travel without it.
*BENEFICIAL*IODINE There is evidence that iodine reduces the risk of getting prostate cancer.
*BENEFICIAL*MANGOES - Mangoes are rich in antioxidants including astragalin, quercetin, isoquercitrin and fisetin. What this means is that the fruit does wonders when it comes to fighting leukemia and breast, colon and prostate cancers. Learn more: http://www.naturalnews.com/053592_mango_superfood_healing_fruit.html#ixzz45GlEvO3b
*BENEFICIAL*METFORMIN - See Life Extension Magazine, June 2015 p. 21 Metformin shows promise for late stage prostate cancer.
*BENEFICIAL*PEPPERMINT - Peppermint contains menthol, which may inhibit the growth of prostate cancer.
*BENEFICIAL*POMEGRANATE - Concentrates in prostate tissue, Supports apoptosis, promotes healthy inflammatory response, Inhibits androgen receptor expression and inhibits metastisis.
*BENEFICIAL*PUMPKIN SEEDS - may effectively reduce the growth of prostate cancer cells. This believed due to the fact that the seeds contain protective compounds called phytosterols, which are known for their ability to help shrink the prostate.
Learn more: http://www.naturalnews.com/055239_pumpkin_seeds_health_benefits_cancer_prevention.html#ixzz4Jpy28gCO
*BENEFICIAL*RESVERATROL - Reduces COX-2 and increases the cancer killing effect of chemo and radiation. It must be used in very large doses to fight cancer.
*BENEFICIAL*RESVERATROL - along with apple peel and curcumin.
*BENEFICIAL*TOMATOES - Good for the prostate but bad for the brain.
*BENEFICIAL*TUMERIC & CURCUMIN - Healthy inflammation response and inhibits metastasis.
*BENEFICIAL*VITAMIN E (natural only) Gamma-tocotrienol fights existing prostate cancer tumors and may inhibit growth in human breast cancer cell. Unnatural Vitamin E is made from petroleum and causes cancer.
*BENEFICIAL*VITAMIN K2 - in large portions is very important. https://www.youtube.com/watch?v=Vbd8FqnVT4c&feature=youtu.be&t=2954  

User
Posted 11 Feb 2018 at 13:01

Hi Mick,

Welcome to this forum though sorry for the reason that brings you here. Diagnosis comes as a shock that many find difficult to come to terms with but some take it harder than others, especially when a man is young. Your diagnosis means that you are being treated systemically as your cancer has escaped the Prostate. There are various treatments to slow if not eradicate the disease, with more being developed so you could still have many years. Easier said than done I know but try to carry on as far as you can as if you didn't have it, otherwise you are wasting quality time. Meanwhile, you might find it helpful to contact the forum's specialist nurses that are available to help men diagnosed with the rotten disease. We will also try to help with any general questions you may have although your consultant is best placed to answer questions that are just applicable to you.

Barry
User
Posted 11 Feb 2018 at 13:05
Thanks for the replies and advice, it is greatly appreciated.regards mick.
User
Posted 11 Feb 2018 at 20:05

I was diagnosed last May, Gleason 9 with wide spread through the bones, aged 60, and incurable. It was utterly devastating but I’m still here and feeling strong despite the treatment. It took many months of tears before I could get me head round things but chatting to our McMillan nurses helped a lot as did going to the Maggie’s centre where their philosophy is to consider ourselves as living with cancer rather than the obvious. I’ve since learnt to try to live each day to the ful and not worry about things I can’t change. Good luck

 
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