You can click on my name to read my profile.
In a nutshell: diagnosed after a routine DRE check at age 55, zero visible or physical symptoms. Fair to say from the start I was blinkered about wanting it OUT OUT OUT.
MRI showed PCa contained well within the gland*. Beware the asterisk!
Local NHST did not offer RRP. Asked for, got referral to Royal Reading Robot. RRP MAY 2013. My local NHST surgeon who could only offer open surgery came to observe my op on his day off.
RRP Surgeon explained to me that the POTENTIAL consequences of RRP were: 1 out of about 400 die on the table. I did ask if I was his 400 th? I was not, he'd not lost anyone on the table. Not specified but much lower % chance I might suffer bowel and or urinary incontinence. A chance I might end with permanent ED.
My stated priority to him was
1. save my life
2. take out whatever you need to or want to to save my life, don't take a chance in the mistaken belief that you are doing me a favour by leaving any race or shred of cancer in me. I was that blunt
3. then worry about saving bowel control
4. then worry about saving urinary control
4. then worry about saving EF
If I was constantly poohing or weeeing and never erect I wanted to be alive to moan about it.
So, RRP in May 2013 at The Royal Reading, pelvic floor exercises were a complete waste of time for me, just wore me out. NB hey may work for some folks? I was dry day and night after about 6 months. EF resumed after a couple of months. I can drink a lot, still have urinary control. I can drink lots and lots without affecting EF. My GP explained that the more I drink the more mentally relaxed I become, the less I am either consciously or subconsciously thinking about EF, so EF happens. Can EF in the morning without needing a wee first. I am fortunate. 5 years ago other treatment options offered similar potential outcomes with in potentially fewer side affects.
It will be 5 years down the line for me in May, my PSAs are all coming back at -0.01.
You've read about people that made a treatment choice, and later regretted it.
This is entirely understandable, but it's irrational. We all make our preferred decision, our best choice for us on the information and evidence we have at that time. It's like buying a blue car that and when that breaks down, wishing you'd bought the red one.
I made a promise to myself that I would choose robotic surgery after I had looked at other treatments! Actually, I didn't. I wanted it OUT. But, I would never regret my choice. I would make the best choice for me with the information I had at that time and I would go for it.
In my view, I am cured of that Prostate Cancer. I love life. I live life. Another Cancer may get me later? A bus may knock me down? I'm a tad overweight, enjoy a drink, a heart attack may get me one day. Cest la vie.
In my view, the most important fact to consider is that whatever treatment choice YOU UNDERGO, it is only YOU that will Have to live with the consequences.
RRP worked for me. If you elect to go that route, it may not work for you? Or it may, work even better than me, or not?
It's a horrid choice to have to make. All we can do is make the best choice for US on the information we have at the time we make that choice.
If you want to chat, PM me, but NOTE that I will not persuade you either way. It is, has to be, your choice.
All the best