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Never give up

User
Posted 08 May 2018 at 16:11
I certain admire what younhave achieved in the face of severe adversity. I’m Gleason 4:5 T2c and once I get radiotherapy over with I would like to emulate your fundraising efforts, albeit in a reduced scale, cycling, as I cannot run due to degraded discs caused by too much road running in my 30’s!
My problem would be the incurred costs of entering and travelling on state pension.
User
Posted 20 May 2018 at 19:08
I don’t come on here very often so Ive only just seen your update mate (although I had kept up to date with your progress as you know) Just wanted to say thanks for the shout out at the cheering point during London marathon. It defo gave me a big lift!
User
Posted 23 May 2018 at 21:33

I always feel a little uncomfortable writing good stuff when I know that many are having a tough time of it but i hope that those new to advanced prostate cancer or worried that there is no future but currently treading water read this and take some hope.


T4n1m1a Gleason 9, I have been on abiraterone now for 28 months and today  my PSA was it’s lowest ever at 0.06 


my onco has always said that as my PSA was 342 on diagnosis an increase in PSA will be the signal that stuff is not going right so a further drop this month (0.08 last and a few months ago the lowest was 0.11) has left him speechless and me happy. 


Those who have been here a while know that I run (well shuffle) ultramarathons, I have done a few this year already and have loads more lined up. they All raise funds and profile  for Pcuk (my change in avatar is me running in the Sahara this year) so my lower score just means I can carry on doing so for a bit longer. I know it won’t last forever but I feel I am making the most of it every day, even the rubbish ones.


hope those that can don’t waste the days now. I was presenting recently and said, on my demise, I won’t wish I watched more tv, felt sad or was selfish but I may wish I worked harder to keep  the friends I had,  went out and enjoyed life every day and did something to help others. If you can make the latter a reality as I try to then when the sad day comes we may not have so many or any regrets.


hope you all have a great day tomorrow, no matter what, never give up.


kev

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 23 May 2018 at 21:47
Thanks Kev as always wise words and hope .
Gary had his 8 weekly app yesterday and the PSA is still undetectable,fatigue is the main factor but he’s still managing to work full time and enjoy our 4th grandchild born on Sunday (4 in 22 months !)
Best wishes
Debby
User
Posted 24 May 2018 at 05:46
Hi Irun

Dont feel "uncomfortable writing good stuff" its encouraging and your achievements are absolutely amazing and inspirational.

Cheers

Bill
User
Posted 24 May 2018 at 09:26
Good to hear about your news Kevin,

Keep on shuffling.

dave
User
Posted 24 May 2018 at 11:17

Brilliant news Kev,


It is great to read your positive posts.


I will soon be on Abbi and can only hope that my results are as positive as yours


Regards


 


Dave


 

"Incurable cancer does not mean it is untreatable and does not mean it is terminal either"
User
Posted 24 May 2018 at 21:08

Great to read your treatment is keeping your PSA amazingly low Kevin.


You are so right about making the most of each day. 


Thanks for your inspirational post and the positive news.


Ian

Ido4

User
Posted 24 May 2018 at 22:15
Thanks Kev.

I have been very negative but your posts are inspiring.
User
Posted 25 May 2018 at 18:37
Well said Kev.

Paul
User
Posted 26 May 2018 at 11:06

Superb stuff. Really inspirational and the more stories like yours the better. 

User
Posted 26 May 2018 at 19:54
Never feel guilty Kev for trying to encourage others to make the most of their lives.

You are leading by example.

We can't control the winds - but we can adjust our sails
 
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