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Enzalutamide Fatigue - Enzalutamide,fatigue

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User
Posted 08 Mar 2018 at 14:39

Hi, my first conversation. Diagnoised in 2016 with advanced PC, I am now into my second month of Enzalutamide hormone therapy. All seems to be going well my PSA is down to 2.2 but suddenly I've started feeling really tired and lethargic. I know fatigue is a side effect but what I'd like to hear experience of is: Does this extreme tiredness come and go? are some days worse than others? and will it remain while I continue treatment? Also I find it hard not to sleep during the day which makes night time sleep difficult.

I realise that fatigue is a small price to pay for a lower PSA but I'd be grateful for any advice.

Kind regards.

Edited by member 08 Mar 2018 at 17:07  | Reason: Not specified

User
Posted 08 Mar 2018 at 18:40

Hi Bob
I've been on Enzalutamide now for 38 months together with HT Prostap.
I've got to say that the fatigue has increased over that period.
At the moment I'm struggling a bit with weak leg muscles and tiredness/concentration.
Some days are better than others.
It doesn't stop me hiking however but some days I struggle the next day.
Yes if I relax I nod off, I can last ok till around 20.30/21.00
But it's possible to minimise the fatigue by just keeping physically active and keeping in a cooler area.
I believe that stepping ones exercise level helps too.
I hope this is of some help to you.

Paul

User
Posted 08 Mar 2018 at 19:09

A favourite member here in the past was Old Al (who was in his 50s so not old at all) - he was in a wheelchair, the fatigue and loss of mobility was so bad. Then he took up swimming and got a new lease of life - I don't think he ever needed the wheelchair again although he died too young.

PCUK ran a project around fatigue & HT - worth calling the specialist nurses for a chat ans I think they have info sheets based on what they learnt

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 08 Mar 2018 at 18:40

Hi Bob
I've been on Enzalutamide now for 38 months together with HT Prostap.
I've got to say that the fatigue has increased over that period.
At the moment I'm struggling a bit with weak leg muscles and tiredness/concentration.
Some days are better than others.
It doesn't stop me hiking however but some days I struggle the next day.
Yes if I relax I nod off, I can last ok till around 20.30/21.00
But it's possible to minimise the fatigue by just keeping physically active and keeping in a cooler area.
I believe that stepping ones exercise level helps too.
I hope this is of some help to you.

Paul

User
Posted 08 Mar 2018 at 19:09

A favourite member here in the past was Old Al (who was in his 50s so not old at all) - he was in a wheelchair, the fatigue and loss of mobility was so bad. Then he took up swimming and got a new lease of life - I don't think he ever needed the wheelchair again although he died too young.

PCUK ran a project around fatigue & HT - worth calling the specialist nurses for a chat ans I think they have info sheets based on what they learnt

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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