I went through RP last summer and am now stuck in my own limbo waiting to see an oncologist as I probably have a re-ocurrence.
Waiting is not fun, I agree.
I kind of fell off the rails a bit as I suffer from anxiety (fitness and diet a little bit, drink a bit more) as a result. I am only now dragging myself back on track.
I have built up a checklist of things to work on:
- Knowledge: Learn as much as you can. Very hard if you have avoidant tendencies but that is where #2 comes in
- Counselling: Get a good counsellor (preferably one with experience of cancer) and start working on the things that cause trouble
- Diet: I am trying to hit several angles - vegetarian / fish, intermittent fasting, lower calories, lower carb and using MyFitnessPal to track calories
- Supplements: I am using Vitamin D, Aspirin and will be asking about statins. I suggest you do the reading on this and see what is best
- Fitness: Have settled on a routine of weights and HIIT (high intensity aerobics) as often as I can
- Meditation: I am forcing myself to look into this but this is my biggest battle
The reason I mention all these is that my avoidance was "oh bugger it is back, it never woirked, why bother" but I reflected that without this it could have been worse and if I leave off it could make it worse.
I realised that it is more important to do something, anything, to keep afloat. In many ways, the more (variety not overload) the better.
It is hard to face up to having this dratted condition but facing up to doing the things that help you press on is a little easier and with luck will help with the bigger battles.