I never got thet ED clinic appointment due to staffing issues and cancellations. However I now have a repeat prescription for 5mg daily tadalafil with viagra for events. Things are still slightly and slowly improving in that department.
Urinary urge and frequency is manageable.
My next PSA test will be in about two weeks with follow up appointment another week on.
I posted the below in CJ's thread about a week ago.
‘’I so far have undetectable psa following RARP almost two years ago but with extracapsular extension there is a fare chance of recurrence. If if it does recur I too will resist scattergun RT to the prostate bed without something to target as I already suffer with IBS, fissures, hemorrhoids urinary frequency and urgency, ED etc and fear making things worse.’’
Lyn replied pointing out that a PSA increase now, after being undetectable since RARP would be typical indication of a recurrence in the prostate bed and salvage RT would likely be successful.
My thoughts are that if they don't know where in the prostate bed the cancer is they would zap the whole area and due to previous existing issues and ongoing ED and urge/frequency issues I would not want to risk making things worse so would resist RT.
I hope that if there ever is a recurrence I could wait until it could be seen on a scan so that there is a specific area to target, therefore limiting damage to other organs. I have not heard of this approach though.
Hopefully my PSA will not rise, but if it does I would rather be prepared with the right questions and arguments if appropriate at any future consultations in advance.
Any thoughts anyone please?