Another six month PSA result and follow up today and the title of this thread is still appropriate. PSA still <0.01 so undetectable. Phew! PSA test anxiety seems to get worse.
Pee flow steady at 5ml/sec and up twice a night, that's inconvenient but manageable. There is obviously a stricture of some discription, Uro says probably due to scar tissue. The offer of a dilation is still on the table if I want it, but as long as it's manageable I'll leave it alone.
Urge and frequency also inconvenient but manageable.
ED - still some very gradual improvement at 2.5 years post op.
I have almost given up on the Caverject due to the prolonged ache it causes, but I'm lucky to be prescribed both daily Tadelifel and Sildenefel for "events" which has some effect but no full erection yet. I'm not giving up on that any time soon.
Since my DX and op I have done a lot of research, including what I read on this site and as a result have changed my diet and lifestyle considerably, I now exercise regularly and eat a "prostate cancer friendly" diet. I'm about 2. 5 stone lighter than pre DX and fitter than any time in the last 20 years or so.
I would just like to say that I feel very humbled by the past and more recent posts from both men and their carer's/partners who are far worse off than me and suffering from this awful disease and those carers/partners who still post and offer support to others dispite their loss, almost guilty that so far I have got away with it. I have had tears running down my face reading some recent posts.
There is some wonderful support on this site so thanks to all who post here and good luck to you all whether you are suffering from, living with or have lost someone to this awful disease which is to often so irritatingly discribed as one of the better ones to have.
All the best of luck to you all