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RARP Good News

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User
Posted 25 Jun 2020 at 23:49

Originally Posted by: Online Community Member

Bill

Gently advance the curved tip catheter into the urethra using a large amount of water-soluble lubricant. Maintain the catheter in the 12 o'clock position during passage (curved tip pointing up). 7. Insert the curved tip as... 

OK I can see the possible misinterpretation. If you are doing this yourself whilst standing up. Then up is the surface of the penis opposite the frenum, but if you are a nurse in training doing this to a patient lying on his back (and most are) then up is the surface of the penis on the same side as the frenum i.e. 180degrees different. Isn't it annoying people are taught by wrote by people who learnt the wrong way by wrote, rather than taught how to analyse a problem, and will then persist in their errant ways, passing on misinformation for the rest of their life.

And on the related subject of inserting a metre of copper cable in to bladder, surely any sane person would have stopped at 50cm.

Edited by member 25 Jun 2020 at 23:50  | Reason: Not specified

Dave

User
Posted 26 Jun 2020 at 00:24
πŸ˜‚πŸ˜‚πŸ˜‚
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jun 2020 at 08:59

Originally Posted by: Online Community Member
My mates wife did a stint in A&E and treated a chap who had fed 1m of copper core flex up his urethra for fun.

Adam Kay's book "This is going to hurt" has many similar stories, told with much humour.

User
Posted 26 Jun 2020 at 11:44

I'm glad my predicament sparked a bit of amusement for some.


BTW I hope he took the plug off. Or maybe he was going to switch it on like the bloke in the linkπŸ˜‚

https/drive.google.com/file/d/1Bi965DGw9-atiH4ZsfEs9DihIAmKgi6N/view?usp=drivesdk

 

 

Keep smiling if you canπŸ˜€

Cheers
Bill

Edited by member 26 Jun 2020 at 15:56  | Reason: Tried to fix link

User
Posted 26 Jun 2020 at 14:07

Hi Bill, to activate a link,
- click on edit
- move your cursor to the end of the supposed link
- click enter
- save

I think though that in this case, the link is not shareable - I tried to copy & activate it and it says there is nothing there. 

 

 

 

Edited by member 26 Jun 2020 at 14:09  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Jun 2020 at 16:15

Thanks, ya that normally works but not in this case either. Never mind

CheersB

Bill

 

User
Posted 26 Jun 2020 at 17:32

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Bill

Gently advance the curved tip catheter into the urethra using a large amount of water-soluble lubricant. Maintain the catheter in the 12 o'clock position during passage (curved tip pointing up). 7. Insert the curved tip as... 

OK I can see the possible misinterpretation. If you are doing this yourself whilst standing up. Then up is the surface of the penis opposite the frenum, but if you are a nurse in training doing this to a patient lying on his back (and most are) then up is the surface of the penis on the same side as the frenum i.e. 180degrees different. Isn't it annoying people are taught by wrote by people who learnt the wrong way by wrote, rather than taught how to analyse a problem, and will then persist in their errant ways, passing on misinformation for the rest of their life.

 

Yes that's exactly what I was thinking. So now if I have to use the Tiemann tip I will have to challenge the nurse as to why the difference between her advice and all I have read. Or I just do it the opposite to her and say nothing. Also bearing in mind that she did successfully get it in her way.

Cheers

Bill

User
Posted 28 Jun 2020 at 12:54
Well I have just managed to get the 14f in. On Thursday I wasn't sure because only a small amount of urine came out, not enough to fill the catheter. So I thought maybe I just peed into it.

This time with a partially full bladder no doubt at all.

Mid week I'll try 16f.

Still intending to get to 18f eventually if possible.

Then who knows, maybe even electrical cablesπŸ˜€

Thanks for all the advice and support guys

Cheers

Bill

User
Posted 09 Dec 2020 at 19:50

Hi All

Almost four years post RARP

Update:

I just had latest PSA at 0.02, that's three in a row after three years of <0.01 so hopefully it's settling there.

Structure wise I've been self Catheterising since the June dilation and have progressed to an 18f most of the time. After the first six weeks I was told to go from twice to once a week but it quickly became to difficult and I reverted back to 16f and not always successfully. I have gone back to twice a week now and back on 18f. Still peeing like a horse so worth the effort.

ED wise not much improvement but not giving up on that either. 5mg/day Tadelafil topped up with approx. 75mg Sildenafil as and when needed. Still excercising daily with the pump too.

So all in all still good news and living with the side effects of RARP but the ED is becoming depressing.

All the best to you all.

Cheers
Bill

Edited by member 09 Dec 2020 at 19:52  | Reason: Not specified

User
Posted 09 Dec 2020 at 21:55

Bill 

Great news really pleased for you, long may it continue .πŸ‘

Thanks Chris

 

 

User
Posted 09 Dec 2020 at 23:38
Good update - whatever you are doing, keep on!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Jun 2021 at 14:45
Hi All

Update 4.5 years post RARP

My thread has been quite since my last follow up review which is a good sign.

Latest PSA 0.02 again, that's four in a row following three years <0.01.

Cathertirising continues and is no problem at all now. All the difficulties in the beginning were obviously just about technique, in particular mental control of relaxing the sphincter.

ED wise, recovery seems to have plateaued but is not total and practice continues.

All the best to all especially those who are struggling and those who are supporting them at what ever stage they are at.

Cheers

Bill

User
Posted 10 Jun 2021 at 14:54

Bill 

Great news,long may it continue. On ED, never give up, I still get surprises seven years on.

Thanks Chris

User
Posted 10 Jun 2021 at 21:24
That's a great update Bill πŸ‘
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Jun 2021 at 22:42

Great news Bill.

Ido4

User
Posted 23 Jan 2022 at 18:18

My five year update:

Next week will be five years post RARP. Latest PSA 0.02.

ED no further improvement for about a year and not satisfactory. I've been on 5mg/day Tadalafil for 3 years, use Sildenafil for events with very limited success. Still using the pump most days. I can't use caverject due to priapism. Invicorp is not available yet in my area but that's work in progress. This is having an effect mentally now and if nothing happens reasonably soon I will consider implants.

Urge and frequency is still an issue but manageable. Flying is the worst and I fear the seat belt sign.

Still self catherterising to keep stricture open which after the initial couple of months is now no problem.

Regarding PSA of 0.02. I am still interested in how it could be undetectable for three years and then steady at 0.02 for the last two. I know PSA is a misnomer and can be produced by other organs apart from the prostate but if that were the case why undetectable for three years? The same for prostate cells left behind. I expect a further rise at some point.

Cheers
Bill

Edited by member 23 Jan 2022 at 18:20  | Reason: Not specified

User
Posted 30 Nov 2022 at 13:47
Nearly a year since my last update. PSA in May was 0.03 and same this week. Ii seems to be going up very slowly.

My logic says if undetectable for three years then very slow rise there must be something somewhere. Any opinions anyone? Still so low nothing to worry about yet.

Stricture getting more difficult to manage. I'm now self catheterising twice a week and using a size 16 to enable the 18 to follow.

ED not so good and don't think invicorp is available here yet. I still take 5mm day Tadalafil and use event dose or Sildenafil but side effects of flushing and head cold symptoms are unpleasent and its not really very successful anyway. Caverject is out as I think i said earlier in this thread last time it gave me a prolonged painful erection once for 6 hours and once for 9ish.

Best of luck to all of you

Cheers

Bill

User
Posted 30 Nov 2022 at 14:05
Checkout my thread on this, similar figures to you mine now 0.096 after 7 years..
User
Posted 01 Dec 2022 at 06:17
Yes Francij fairly similar, I'm about 16 months behind you. Hopefully a long way off BCR if ever at all.

Good luck

Cheers

Bill

User
Posted 28 Nov 2023 at 13:35
I just realised I forgot to update this.

December 2022 PSA 0.03

May 2023 PSA 0.03

November 2023 0.05

So approx:

>2 years undetectable

<2 years .02

1 year 0.03 (6 months ago)

Now 0.05

A slow rise but with increasing velocity. I think I'm heading for BCR although not for some time yet. Annual meeting with CNS next week.

Re ED

I'm now using Invicorp with very varying degrees of success. Ranging from absolutely nothing to rock hard for 3.5 hours which is uncomfortable. Average when it works is about 2 hours.

PDE5Is are now fairly ineffective

Now self cathaterising with a size f16 and f18 every 3 days. I think I'll need another dilation sometime.

Not sure the title of this thread is still appropriate!

Cheers

Bill

 
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