Anyone else out there at this stage or has any info on what would be helpful.
Dennis, OH (think I’m Learning the jargon) has been through the mill & now 10 years after diagnosis & all the normal routine meds has been told not advisable to proceed with anymore chemo etc. PSA climbing rapidly (39.50 ng/ml/yr) & is on 151 & was 277 at diagnosis.
Had bad reaction to Enzalutamide in the form of seizures which was like the beginning of the end for us.
After responding so well to treatment previously We got lulled into a false sense of security.
Now body is showing signs of strain! Bowels very slow which has impact on unrine flow. Neuropathy in left leg & starting in arm, skin discoloured & he is sleeping a lot...very fatigued.
Is this the beginning of the end & how do I cope with this.