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Just started T2 (3+4)

User
Posted 21 Apr 2018 at 18:41
Hi. My name is Ian and I am 58. Have just been told that I have T2 3+4 which is contained. To say I was shocked is an understatement. No one in my family has this. I have two sons 26 and 30 and my wife was with me when I was told. The good news is it is contained so I am having a prostatectomy via robot keyhole shortly. Jus would really like to hear from anyone who has been in my position and come out the other side. Thank you for reading this and I look forward to your support.
User
Posted 30 Apr 2018 at 13:25
Hi Ian,

Just seen your entry and thought it worth mentioning my position as it is very similar. I am 60 and was diagnosed with T2 and Gleason of 4 plus 3. On the basis of advice that everything was contained and my age being a positive element, I had no problem deciding on the prostatectomy which I had on the 10th April. I know everybody is different, but personally my experience so far has been better than I could have hoped beforehand! Having the catheter in for about 11 days was far less of a problem than I thought it would be. Yes, it was a little fiddly using the bags, but not a problem. I would add, however, that from a practical perspective it was vital to have my wife to help with showering to ensure I was able to do this properly and keep the vital areas clean, important to help stop any infections. Despite my slight worry of pain when having the catheter out, I can also add that this took a mere few seconds and was not in the slightest bit painful.

I feel very lucky at this point that I haven’t had any problems regarding continence at all which I must say I had basically accepted that I would. I wore proper padded men’s pants for just 2 days then decided it wasn’t necessary.

I have had minor tingling when urinating since the catheter came out just over a week ago, but this has not been a problem. Of course if it continues, I will check it out.

My wounds from the op have healed well and apart from the first 2 or 3 days where I was very stiff, it didn’t take long to loosen up. I am actively walking each day but it is important to ensure you don’t go stretching or lifting too early.

Of course I now await the follow up on the 23rd May and hope that this will tell more they have taken it all away so to speak.

Good luck to you an£ hopefully my comments will give you something to feel positive about.

Jes

User
Posted 21 Apr 2018 at 21:13
Hi there

I’m 49, was diagnosed 3 years ago as t2c 4+3 Gleason 7 - PSA 8

Had robotic surgery November 2014, made a rapid recovery continence wise - fully continent at 6 weeks

ED took a lot longer, 6 months before I could have sex again but I used daily cialis and I’m convinced this helped recovery

Unfortunately I had a recurrence in July 2017 and have just finished 33 sessions of salvage radiotherapy - all feels well but need to wait for a few years to see if I’m cured or not

It’s a journey and no mistake but I don’t know what the future holds - keep positive tho

User
Posted 21 Apr 2018 at 22:38
Ian

Your life will change but it won't be ending anytime soon. I was T3b and Gleason 9, 46 years old. I think as yours is contained, you'll have nerve sparing surgery, but worth asking the surgeon. The operation for me wasn't as bad as I feared, so try not to worry about it.

I have found this forum tremendously helpful and the best piece of advice I can give is to stay active here. It's an essential education, even if it is a subject none of us chose to study. Also, do contact the specialist nurses from PCUK if you have any questions - they're brilliant.

Ulsterman

User
Posted 22 Apr 2018 at 08:59

I am bit further on than you. 57yrs old diagnosed T3a Gleason 4+3. Had robotic surgery in December, took 3 months for incontinents to recover , ED still a problem. PSA down from 9 to <0.03. Feeling fit, running and swimming again. Not drinking beer so losing weight. 

Good luck with your treatment 

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User
Posted 21 Apr 2018 at 21:13
Hi there

I’m 49, was diagnosed 3 years ago as t2c 4+3 Gleason 7 - PSA 8

Had robotic surgery November 2014, made a rapid recovery continence wise - fully continent at 6 weeks

ED took a lot longer, 6 months before I could have sex again but I used daily cialis and I’m convinced this helped recovery

Unfortunately I had a recurrence in July 2017 and have just finished 33 sessions of salvage radiotherapy - all feels well but need to wait for a few years to see if I’m cured or not

It’s a journey and no mistake but I don’t know what the future holds - keep positive tho

User
Posted 21 Apr 2018 at 22:38
Ian

Your life will change but it won't be ending anytime soon. I was T3b and Gleason 9, 46 years old. I think as yours is contained, you'll have nerve sparing surgery, but worth asking the surgeon. The operation for me wasn't as bad as I feared, so try not to worry about it.

I have found this forum tremendously helpful and the best piece of advice I can give is to stay active here. It's an essential education, even if it is a subject none of us chose to study. Also, do contact the specialist nurses from PCUK if you have any questions - they're brilliant.

Ulsterman

User
Posted 21 Apr 2018 at 23:02
Hi,

Sorry you are here. Your situation is very similar to mine having been 58 when I was diagnosed. I'm 62 now and moving on. Please feel free to see my profile and PM me if you have anything you think I may be able to give you the benefit of my experience on.

Paul

THE CHILD HAS GROWN, THE DREAM HAS GONE
User
Posted 22 Apr 2018 at 08:59

I am bit further on than you. 57yrs old diagnosed T3a Gleason 4+3. Had robotic surgery in December, took 3 months for incontinents to recover , ED still a problem. PSA down from 9 to <0.03. Feeling fit, running and swimming again. Not drinking beer so losing weight. 

Good luck with your treatment 

User
Posted 22 Apr 2018 at 21:05

Hi Ian,
I have had surgery 2 weeks ago. I am waiting for the pathology report so to be sure surgery was fully successful. Technically it went ok. My pre-data surgery was gleason 8 (4+4) psa 12.7 and all scan exams showed no invasion elsewhere, but unsure about extracapsular invasion. Doctors said by seeing they think it is not invasion of the gland capsule, but only the report will confirm it.
So too early to give you much of your experience, but at least I can tell you I am recovering well and quickly from surgery, no big hurdles or pain but a few leakages every day are driving me mad, even though it is clear it is normal to have full continence.
Waiting for doctor appoitment and of course hoping for good news so far but the road has just started and you need to understand this is a long path.
All the best to you,
Paulo

User
Posted 30 Apr 2018 at 13:25
Hi Ian,

Just seen your entry and thought it worth mentioning my position as it is very similar. I am 60 and was diagnosed with T2 and Gleason of 4 plus 3. On the basis of advice that everything was contained and my age being a positive element, I had no problem deciding on the prostatectomy which I had on the 10th April. I know everybody is different, but personally my experience so far has been better than I could have hoped beforehand! Having the catheter in for about 11 days was far less of a problem than I thought it would be. Yes, it was a little fiddly using the bags, but not a problem. I would add, however, that from a practical perspective it was vital to have my wife to help with showering to ensure I was able to do this properly and keep the vital areas clean, important to help stop any infections. Despite my slight worry of pain when having the catheter out, I can also add that this took a mere few seconds and was not in the slightest bit painful.

I feel very lucky at this point that I haven’t had any problems regarding continence at all which I must say I had basically accepted that I would. I wore proper padded men’s pants for just 2 days then decided it wasn’t necessary.

I have had minor tingling when urinating since the catheter came out just over a week ago, but this has not been a problem. Of course if it continues, I will check it out.

My wounds from the op have healed well and apart from the first 2 or 3 days where I was very stiff, it didn’t take long to loosen up. I am actively walking each day but it is important to ensure you don’t go stretching or lifting too early.

Of course I now await the follow up on the 23rd May and hope that this will tell more they have taken it all away so to speak.

Good luck to you an£ hopefully my comments will give you something to feel positive about.

Jes

 
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