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Brachytherapy, now or wait

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User
Posted 23 Apr 2018 at 19:14

Hi, I was found to have prostate cancer in march 2015 PSA 9.9 Gleason 6 after my first biopsy in August 2015.

After 3 years of active surviellance taking only tamsulosin to help my waterworks, my PSA is now 12.2 gleason still 6.

Consultant has always been very laid back with my attitude of just keeping an eye on situation and leaving any treatment untill nessesary.

On my latest visit he asked me if I had thought of any particular treatment options, as I have have done a fair amount of research I mentioned Brachytherapy would be my preferred option, he suggested I meet the consultant responsible for this treatment for more information.

At the meeting it was agreed that I was an ideal candidate for this treatment, and that he could fit me in and could carry out procedure by the end of this May if I passed the required pre tests.

The consultant was very confident that the treatment would cure the cancer and I left feeling quite pleased at the result of the meeting having agreed to go ahead with the process.

As further research the next day I paid a visit to my local support group and met with one person who had the Bracytherapy treatment 5 years ago but was now on hormone drugs as the cancer had not been removed totally, I did not know his PSA and gleason score at time of treatment so I may not be comparing like for like, but I am now not sure about going ahead with the treatment.

If anyone has had similar situation I would welcome any advice on the subject.

Thanks in advance,

Scotty.

 

 

User
Posted 24 Apr 2018 at 13:00

Hello Scotty,

 

I have emailed you offering to share my experiences of Brachytherapy(LDR) in April 2010.

 

Chigwell 2010.

User
Posted 24 Apr 2018 at 17:12

Hi Scotty
I too diagnosed in 2015 with similar stats to yours
Elected for Active Surveillance for about a year and then decided to go for LDR Brachytherapy
Click on my profile and you will be able to read about my journey so far
Hope it helps
Tom

User
Posted 24 Apr 2018 at 17:48

My husband had LD Brachytherapy about 4 years ago after a year on Active Surveillance

He has another follow up in june which will hopefully be as good as the previous ones, in fact he was told last time that if the next PSA was as low then they would sign him off into the care of his GP so we are keeping our fingers crossed.

The person you mentioned was unfortunate, as are those men who opt for total removal and still end up with a creeping PSA and have to have follow up treatment.

There is a future risk in any treatment that is chosen but we went to the cure option and we are just hoping that is what we get

We can't control the winds - but we can adjust our sails
User
Posted 25 Apr 2018 at 10:33

Hi Scotty,

I had low dose seed implant  Brachytherapy in September 2016 at Mount Vernon in London,with a PSA 2.19 Gleason 3+4=7.

The operation went very well went in on the Sunday afternoon operation on the Monday and out the next day.I had a side ward in the ladies ward because of being radioactive and had great service from all the staff and doctors even when they kept coming in and asking who i was as no paper work could be found and it became a running joke and lightened the situation a bit.

I came home with some antibiotics and pain killers but did not need the pain killers after the second day as i was just a bit black and blue. In October 2016 i returned to Mount Vernon for follow up MRI and Cat scan and when i questioned the specialist about them on our next meeting i was told they were for their own follow up checks and was told no more

I took Tamulosin up till April 2017 when i found i could do with out them and after my next blood test in January 2017 my PSA was 0.81 followed by 0.59 in May and 0.44 January 2018.My next blood test is  in July 2018.

Today i have reached 19 months since my operation and so far so good.If i can help with any other questions you may have i would be happy to answer them.

 

Regards John.

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User
Posted 24 Apr 2018 at 13:00

Hello Scotty,

 

I have emailed you offering to share my experiences of Brachytherapy(LDR) in April 2010.

 

Chigwell 2010.

User
Posted 24 Apr 2018 at 17:12

Hi Scotty
I too diagnosed in 2015 with similar stats to yours
Elected for Active Surveillance for about a year and then decided to go for LDR Brachytherapy
Click on my profile and you will be able to read about my journey so far
Hope it helps
Tom

User
Posted 24 Apr 2018 at 17:47
Hi guys, thanks for your replays, as I have just joined the forum I am not allowed to reply privately. Chigwell 2010 if you could email me on milleratbraemar@aol.com with your experience, as it is the seed implants that I am thinking about,It looks like you have had a positive journey which seems to be in the minority on this forum as I suspect most people who have had a positive experience don't bother to post. tp1944, I have read your profile, not the easiest of journeys but gives me an insight into what may be in front of me, thanks for your interest, most appreciated guys.
User
Posted 24 Apr 2018 at 17:48

My husband had LD Brachytherapy about 4 years ago after a year on Active Surveillance

He has another follow up in june which will hopefully be as good as the previous ones, in fact he was told last time that if the next PSA was as low then they would sign him off into the care of his GP so we are keeping our fingers crossed.

The person you mentioned was unfortunate, as are those men who opt for total removal and still end up with a creeping PSA and have to have follow up treatment.

There is a future risk in any treatment that is chosen but we went to the cure option and we are just hoping that is what we get

We can't control the winds - but we can adjust our sails
User
Posted 25 Apr 2018 at 10:33

Hi Scotty,

I had low dose seed implant  Brachytherapy in September 2016 at Mount Vernon in London,with a PSA 2.19 Gleason 3+4=7.

The operation went very well went in on the Sunday afternoon operation on the Monday and out the next day.I had a side ward in the ladies ward because of being radioactive and had great service from all the staff and doctors even when they kept coming in and asking who i was as no paper work could be found and it became a running joke and lightened the situation a bit.

I came home with some antibiotics and pain killers but did not need the pain killers after the second day as i was just a bit black and blue. In October 2016 i returned to Mount Vernon for follow up MRI and Cat scan and when i questioned the specialist about them on our next meeting i was told they were for their own follow up checks and was told no more

I took Tamulosin up till April 2017 when i found i could do with out them and after my next blood test in January 2017 my PSA was 0.81 followed by 0.59 in May and 0.44 January 2018.My next blood test is  in July 2018.

Today i have reached 19 months since my operation and so far so good.If i can help with any other questions you may have i would be happy to answer them.

 

Regards John.

 
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