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Treatments for erictile disfunction

User
Posted 01 May 2018 at 22:12
Had my prostate removed in jan and having no joy in the sex department wondered if anyone had tried the injections and how successful they was
User
Posted 01 May 2018 at 22:27

The injections work well for some but not all men - there are also pellets (Muse) and cream made of the same stuff. But when you say you are having no luck, what have you tried? Are you using a pump regularly? Do you have daily Cialis on prescription? Have you tried Levitra and Viagra?

If not done so already, reading these two threads may help you

https://community.prostatecanceruk.org/posts/t9839-One-wife-s-story-of-ED1#post119001

https://community.prostatecanceruk.org/posts/t10993-Erecting-the-Erection---Medication#post134233

 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 May 2018 at 22:44
Use the pump daily tried viagra no efect at all . Its now getting seriously frustrating and dont know which way to turn i hate needles but needs must
User
Posted 01 May 2018 at 23:21
Steve

I use Invicorp 25. The other injections, which do work for many men, had me literally doubled over in pain. The creams and pellets for me were useless. It's a matter of trial and error until you find what works for you.

Ulsterman

User
Posted 01 May 2018 at 23:26
It’s early days mate

I had slow gradual improvement but it took about 6 months for things to return to almost normal

Daily 5mg cialis was effective

User
Posted 02 May 2018 at 00:31

John had 5mg Cialis for 3 years or more - he found Levitra more successful than Viagra and it works rather faster.

They don't always warn you that Viagra has to be taken on an empty stomach - and although it varies from man to man, it doesn't work immediately so are you waiting long enough? If John wanted sex in the evening, he had to take the viagra in the late afternoon, or if he took it at bed time, it worked the next morning. Worth a try?

If you don't like needles, I would certainly try Levitra, Cialis and Muse or cream before you resort to the injections.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 May 2018 at 07:12

You do need to steer your own path and work your own recovery. That may mean calling for more ED clinic help or hassling your Dr orvtaking the risk and buying things privately over the internet. At your stage the pump should be getting used every day just for exercise or intercourse if it works. Try all the diff tabs in turn. Try to get low dose Cialis of your doc. It is now so much cheaper for them to prescribe as it’s come off label. As above , Alprostadil products left me in agony , however the Invicorp25 injection is a doddle. A willing partner Is key so budget for flowers too :-))
It is early days. I’m exactly 3 yrs post op and only just back to pre op form , despite being nearly 2” shorter in penis length

If life gives you lemons , then make lemonade

User
Posted 02 May 2018 at 07:40

Hi Steve

I am a year ahead of you op wise. I am on Viagra 100mg roughly every other day and have used a pump from about last July, I think I should have started that earlier. I had no responce at all untill a year post op and then only a stiring. Then at about 14 months another improvement which seems to have plateaued. So still nothing useful.
Its only been 5 months for you. Look at how Chris has done above after three years.
Lots of good advice on here.
Its obviously different for each of us and I find it particularly demoralising and depressing.
We live in hope and I wish you and everyone else living with this curse all the very best of luck.

Cheers

Bill

User
Posted 02 May 2018 at 08:48
Took over 2 years for me and nearly 3 years in I think it's still improving. Jabs worked, Pills were hit and miss for me, pump works but GF at the time didn't like it said it made it look gross!! obviously didn't like purple!!! - think that gave me an aversion to trying it for sex. Now happy in a stable relationship and all seems OK but it definitely takes me a lot longer to orgasm (sometimes it won't happen) but erection seem to be entirely sorted without any intervention.
User
Posted 02 May 2018 at 22:06

Hello stevelev,

Your recovery may seem to be extremely slow. Actually it's not. And you may have to come to terms with the fact that you are not a statistic among all the other statistics. You are your own statistic.

Recovery of any function, UC or EF will take time. Time is the variable. And that time is - YOUR - time.

When I had my RRP and met my GP later, we discussed patients who after RRP leapt off the table with a hard on, and perfect urinary control. He said then, we don't talk about those bsatrads. Made I larf.

What are you doing to encourage and promote your own rehab?

I'm a bit out of touch, but did they used to say, who ever TF they are, that after 1 year or after 2 years your recovery was as good as it will eat? Rubbish. Absolute rubbish.

You can wait for help or you can do whatever you can to help your rehab.

So, exercise it, massage it, manipulate it, swing it, twirl it, do whatever you can to get blood flowing to it, in it and and around it.

A pump, used daily, excellent. Several times a day? Even better Tablets? Cialis daily, if you have them, get through the potential side effects, headaches leg cramps. They may last for a week or three, but the benefits are worth it. Take paracetamol or ibuprofen, but worth persevering with.

Remember this. What you do, or do not do now, may well shape the rest of your sexual life.

It's a tihs position to be in. Most of us have been there. Many of us are there. Do whatever you can to give you hope.

atb

dave

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 02 May 2018 at 23:21

Originally Posted by: Online Community Member

I'm a bit out of touch, but did they used to say, who ever TF they are, that after 1 year or after 2 years your recovery was as good as it will eat? Rubbish. Absolute rubbish.

 

 

I don't think it is total rubbish. The expert view is that if you haven't been able to regain erections in any way by the 2 year point, you aren't going to regain erections. The difference for many of you (including my John) was that there was some engorgement, even if that was quite sporadic or limited, to some stimulus or ED treatment. Men who have had zero success with anything in the 2 years will have suffered such atrophy that there is no prospect of recovery. Fortunately, many men get some response from something. 

 

We were told wherever you are at 2 years, that's as good as it gets - that was clearly untrue as J made most progress between years 2 and 3. However, even in year 1 he had had small successes occasionally, and the pump helped to minimise atrophy so there was still something to work with in the third year :-/ 

Edited by member 03 May 2018 at 00:34  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 May 2018 at 00:35

I stand corrected, rightly so. Or do I?

It "may" not be total rubbish?

Only probably mostly rubbish.

When I first came here 5 years ago, I was presented with, and told what my future may hold. It was pretty much doom and gloom.

Quote:

"WE WERE TOLD WHEREVER YOU ARE AT 2 YEARS, THAT'S AS GOOD AS IT GETS - THAT WAS CLEARLY UNTRUE".

Ergo, total rubbish.

To any man going through this siht "journey", I have always said, don't give in. Don't quietly accept the "expert" view.

The most informed expert on your "journey" is you.

As a total amateur, but an expert sufferer, so called "expert" views are to be considered, then, if they go against you challenged and overturned.

For all we know, the difference between becoming a tihs statistic and a good statistic may just be attitude, and a bit of luck.

Never. Never give up.

atb

dave

in remission post RRP 13 May 2018. PSA running at undetectable since then.


Do all you can to help yourself, then make the best of your time. :-)
User
Posted 03 May 2018 at 00:51

Bad mood tonight? :-/ Not sure why you are having a go at me when I said the same as you - if you can get any response then it may still improve after the 2 year mark. But even you cannot deny atrophy; men who have had nothing - no response at all - in 2 years are not suddenly going to find it is alright in the end. I think some of the guys on here with total and permanent ED will confirm that is the case AND that it is not down to a lack of effort or attitude on their part.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 May 2018 at 07:18

I’m one month away from three years post op. Whilst I’ve worked at recovery from week 8 in every way shape and form with satisfactory results , the real magic has happened between years 2 and 3.
Never give up hope and keep Mr Wriggly’s ego inflated literally each day.

If life gives you lemons , then make lemonade

User
Posted 03 May 2018 at 08:08

Originally Posted by: Online Community Member

Bad mood tonight? :-/ Not sure why you are having a go at me when I said the same as you - if you can get any response then it may still improve after the 2 year mark. But even you cannot deny atrophy; men who have had nothing - no response at all - in 2 years are not suddenly going to find it is alright in the end. I think some of the guys on here with total and permanent ED will confirm that is the case AND that it is not down to a lack of effort or attitude on their part.

 

 

Bad mood?  Not at all. Very upbeat actually.  And in equal measure keen to ensure that someone in a bit of a pickle doesn't get the wrong end of a statistical stick, and maybe give up prematurely.    

 

Statistics are relevant to the group of men tested. 

 

Aaah, having just re-read my posted the bit where I wrote "so called "expert", is that where you think I "had a go at you?"

 

For clarity, the so called "expert(s)" I was referring to the white coats who interpret the data and then predict outcomes without allowing for anomalies.

 

Is it bees that should not fly according to scientists?  Any man suffering ED has the chance to be a bee unless they get put off by scientists.

 

To get back on track - stevelev - it is partly up to you how successful your recovery may be?  It depends on so much, but the one aspect you can control is how much effort you put in.  It can take a while before results come if they do.   Be a bee. 

 

all the best

 

dave

  

Edited by member 03 May 2018 at 08:21  | Reason: Not specified

Do all you can to help yourself, then make the best of your time. :-)
 
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