Morning everyone.
I've reached yet another crossroad, and thought I share it. Last year, I was diagnosed Gleason 9, T3a, PSA 22 (age 53 then). I had the robotic surgery, but the post-surgery report found cancer in 1 (of 10) lymph node, and I had positive margins on the bladder neck. So I started Bicalutamide 150mg and had lots of radiotherapy to prostate bed and lymph node area. I found the radiotherapy extremely hard, by the end of it the fatigue had effectively laid me out.
Throughout all of this, I'm a parent to a lively 10 year old daughter, a rock climber, and self employed therapist. My life requires sharp mind and active fit body. So that didn't work!
PSA score 6 months post radiotherapy was <0.003. Today's (12 months) is also <0.003. I'll take that! The issue I have is with fatigue caused by the Bicalutamide - it is extreme. In fact, too extreme, so I have stopped taking as of this week. 14 months was enough for me, the onco wanted two years. Can't happen.
So there's my crossroad - I have chosen the path of no meds, crossing fingers and hoping the PSA keeps the same. Have I made the right decision to come of the Bical? Who's to know. The first leg has been very hard, but now in the past. Second leg of the journey commences here...!