I have posted already in another community, but as I am having a gay relantioship I wondered here I could share something of my story and get something of others' stories from fellow friends.
I am 49 years of age and have a partner but I find these communities best ways of sharing fears and anxieties as well as bravery and happy moments
I only found these communities after my decision of treatment, which was very difficult. Also in my country, believe it or not, I don't find people wanting opnely to speak about this problem and definetly not gay people.
As quick as I could and thought I needed I saw a few doctors and specialists to support my decision. Before that I did ultrasound, MRI, biopsy and PET exams.
I decided for a robot surgery and my doctor is advising me for an adjuvant RT depending anyway on the pathological report.
I have a gleason 8 (4+4) lesion n0m0 likely t3a. My psa was 12,7. MRI and PET showed no seminal vesicles and lymph nodes invasion and body scan was also free. However MRI feared there was tumor on the capsule already.
Surgery was on April the 5th. A month after surgery I became aware of the pathology report:
It is a pT2. So no extra-capsular invasion after all and it is of the usual acinar type. No seminar vesical nor lymph vascular invasion nor ductal invasion. No chirurgical margins involved except one on the right side in the apex with 1 mm. Doctor said that till 3 mm it would have no statistical impact ... Lymph nodes (18) removed also cleaned. However confirmed a Gleason 8 and it was a big thing in both 2 sides of the gland.
Doctor said, opposite to initially thought, it turned out to be not so bad and he is not so convinced of adjuvant treatment right after surgery anymore unless the PSA says otherwise. So next step is check PSA in July 2018.
After 3 days completelly continent when catheter was removed, I started having leakages on day 4 and they haven't stopped so far. I don't see a positive trend till today, but as the healing process moves and I fell myself better I move myself more, I walk more, I do more things and maybe this is the reason why I don't sense any improvement unfortunetely.
I am taking cialis from day 10 after surgery and - precribed by doctor - and I know now what an orgasm without erection is. They were very weak though in the beginning, but have been getting better over time.
Thank you all,
Edited by member 30 Jun 2018 at 00:14
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