Hi all. This may be my only post and sorry it's a long one but need to get it off my chest as no one else to unload on.
My name is Stephen, I'm 62 years old. I first reported to my GP one year ago with what turned out to be a urinary tract infection. She asked my family history. Told her my dad died of PCA at 68. She did a DRE and referred me for bloods and an ultrasound, plus a referral to urology at a different Trust as my own doesn't provide the service. PSA was normal, ultrasound identified a micro cyst on a kidney, and "heterogeneous enlargement of the prostate".
GP noted on scan result "micro cyst on kidney, nothing else of note. Patient to take copy of scan result to urology appointment". No mention of the enlargement.
Had to wait another three months for the urology appt at King's College Hosp. Was seen, they did a urine flow test followed by an ultrasound of my bladder. Was then ushered into consultant who told me all ok. Showed him my ultrasound report from three months previous, he said "ah, heterogeneous is not a word you want to see". Did DRE then referred me for urgent MRI.
Had MRI done two weeks later, followed by five weeks of silence with me constantly chasing. Finally got called in to see head honcho who told me MRI had identified large lesion on my prostate and the chance was 65% it was cancerous. Went in for trans perineal biopsy in January then was called back for two weeks later to be told of the 32 samples they'd taken 31 were clear, one was cancer. Told it was confined to my prostate. Consultant said although only one sample was cancer that wasn't to say there wasn't more cancer in areas they didn't sample. Said it was unlikely to cause me problems in the next 10 years. Put on the Active Surveillance programme.
I know that relative to the overwhelming majority of the people here my case is mild. However, being human after all, once you hear the C word it has a big impact mentally. I don't believe there's any comfort to be drawn from only having a little bit of cancer! Especially when my dad died of it at 68 and no action is proposed to treat it. Kind of leaves you in limbo. Problem compounded by the fact I've been under psychiatric care for severe treatment resistant depression for years now. My marriage ended seven years ago, and I had to take early retirement. I now live a very solitary life and struggle with alcohol addiction which has only got worse over the last six months as I come to terms with thoughts of my own mortality. I know I'm shortening my life with the booze but think, what does it matter anyway.
Sorry for rambling on and whining so much. I hate self pity and I know full well how fortunate I am compared to you guys. As I said this may be my only post. Just needed to unburden. All the best all