I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

bicalutamide side effects

User
Posted 05 Jun 2018 at 08:16

Hi just wondered if bicalutamide side effects include a stinging feeling in the pubic area and accros to the hips when sitting up straight and sometimes walking they seem go away when laying down? Thanks started them on 1st of March 2018 150mg Thanks 

User
Posted 05 Jun 2018 at 14:07

I've been on 150mg of bicalutimide since February 2018.  No pain as you describe.  A bit of pain in the nipples and major tiredness.

Ulsterman

User
Posted 07 Jun 2018 at 09:29
Hello

I've had a range of side effects from Bical 150mg - breast growth, nipple pain, big fatigue, crap skin, ED, loss of libido and I'm sure a few others. However, the one you describe is a new one to me. I'm guessing as my body seems to have decided to be a test bed for all side effects, stinging in the groin may not be associated with Bical.

User
Posted 05 Jun 2018 at 08:34
Hi , I’ve had the pains you describe ever since surgery 3yrs ago , especially if I need a wee or poo. I think they said it is adhesions. I never really had any side effects taking 150 Bical for a year other than more tired. Very tired at first. My libido was the same. I don’t think Bical can cause pain symptoms
User
Posted 26 Jun 2018 at 13:47
Thank you so much for your reply and the link. I have only been diagnosed 7 weeks or so and it has been a barrage of information and tests. Really appreciate the support.
User
Posted 26 Jul 2022 at 17:45
Probably got covid (not joking)
User
Posted 08 Aug 2022 at 08:34
Good morning folks. I've been on the Bical 50mg tabs for 12 days now and few serious side-effects really (mind you I have partied fairly often the last 2 weeks and kept a posiitve attitude) - so first injection on Thursday (day 15) then keep taking the Bical for another 14 days.

I've asked for the Decapeptyl (as reportedly there are less side effects) one but so far my GP hasn't confirmed which one I'll get yet (which is worrying and a bit annoying) ..... my question is: How long after the first injection will the side-effects kick in please?

User
Posted 08 Aug 2022 at 09:26
Hi Howard I specifically asked for Decapeptyl after following others. To be honest the hot flushes started in days. The drop of libido is weird and noticeable but not too bad. I’m like 20 months into it and still want some and can manage it with Cialis. Aches and pains start in joints. Memory fog quite an issue. I’ve had zero weight gain nor moobs. In my opinion things get amplified over time even if they are there from the start. Eg my fatigue is worsening each month I feel. Good luck with it ok 👍
User
Posted 08 Aug 2022 at 10:48
Love your positivity and candour. It’s definitely needed when tackling all this rubbish. Yes you are older I know but a lot of it is state of mind and you obviously want to keep active, so keep doing what you’re doing. I swear pump use has saved my little fella in these 7 years and kept him tip top. Keep positive 👍
User
Posted 16 Aug 2022 at 17:11
Permanent knee pain. Had osteoarthritis previously but has worsened since on HT. I soldier on and keep painkillers to a minimum if I can
Show Most Thanked Posts
User
Posted 05 Jun 2018 at 08:34
Hi , I’ve had the pains you describe ever since surgery 3yrs ago , especially if I need a wee or poo. I think they said it is adhesions. I never really had any side effects taking 150 Bical for a year other than more tired. Very tired at first. My libido was the same. I don’t think Bical can cause pain symptoms
User
Posted 05 Jun 2018 at 14:07

I've been on 150mg of bicalutimide since February 2018.  No pain as you describe.  A bit of pain in the nipples and major tiredness.

Ulsterman

User
Posted 07 Jun 2018 at 09:29
Hello

I've had a range of side effects from Bical 150mg - breast growth, nipple pain, big fatigue, crap skin, ED, loss of libido and I'm sure a few others. However, the one you describe is a new one to me. I'm guessing as my body seems to have decided to be a test bed for all side effects, stinging in the groin may not be associated with Bical.

User
Posted 25 Jun 2018 at 18:05
Anyone had a fever or shivers ?

User
Posted 25 Jun 2018 at 20:12
No not had them? And the things I mentioned in my post seem to have subsided now fingers crossed the only thing I have now is slight sore nipples.
User
Posted 25 Jun 2018 at 20:17

No fever or shivers.

im now on it for four months and I’m convinced my body hair is thinning out.  Is that possible?

Ulsterman

User
Posted 25 Jun 2018 at 20:51
I constantly feel unwell and listless since starting the tablets. last one tomorrow then it is injections.

One question, are the injections the same drug as the tablets ?

Thanks guys.

User
Posted 26 Jun 2018 at 13:38

They work in different ways but both starve the Prostate cancer cells of testosterone as a fuel.

Bicalutamide stops the cells using testosterone by blocking their ability to bind to it.

Prostap and similar drugs work by stopping the testes from producing testosterone.

See here for more information. I’ve pasted some information below too.

 

What types of hormone therapy are there?

There are three main ways to have hormone therapy for prostate cancer. These are:

  • injections or implants to stop your testicles making testosterone
  • tablets to block the effects of testosterone
  • surgery to remove the testicles or the parts of the testicles that make testosterone. This is called an orchidectomy.

The type you have will depend on whether your cancer has spread, any other treatments you’re having, and your own personal choice. You may have more than one type of hormone therapy at the same time.

Injections or implants

You may hear this called androgen deprivation therapy (ADT). These work by stopping your brain from telling your body to make testosterone. Injections or implants are as good at controlling prostate cancer as surgery to remove the testicles.

Injections and implants are both given using a needle. Injections are given in a similar way to having a vaccine, where a small amount of liquid is injected under the skin or into the muscle. If you have injections, you will have them in your arm, abdomen (stomach area), thigh or bottom (buttock),depending on which type you’re having. Ask your doctor or nurse whether you will have injections or implants. Implants are given using a larger needle to place a tiny tube under the skin of your arm, which slowly releases the drug.

You will have the injections or implants at your GP surgery or local hospital – once a month, once every three months, once every six months, or once a year. How often you have them will depend on the type of hormone therapy.

LHRH agonists

LHRH agonists (luteinizing hormone-releasing hormone agonists) are the most common type of injection or implant. There are several different LHRH agonists, including:

  • goserelin (Zoladex® or Novgos®)
  • leuprorelin acetate (Prostap® or Lutrate®)
  • triptorelin (Decapeptyl® or Gonapeptyl Depot®)
  • buserelin acetate(Suprefact®).

LHRH agonists cause the body to produce more testosterone for a short time after the first injection. This temporary surge in testosterone could cause the cancer to grow more quickly for a short time, which might make any symptoms you have worse – this is known as a flare.

If you’re having an LHRH agonist, you’ll be given a short course of anti-androgen tablets to stop any problems caused by this surge of testosterone. You’ll usually start taking the anti-androgen tablets before having your first injection or implant and continue taking them for a few weeks.

 

Ido4

User
Posted 26 Jun 2018 at 13:47
Thank you so much for your reply and the link. I have only been diagnosed 7 weeks or so and it has been a barrage of information and tests. Really appreciate the support.
User
Posted 23 Jul 2018 at 22:14

The below side effect of Bicaltumide did strike a similar chord with me. Have been on only 50mg for 12 days (Prostap or Zoladex in a couple of days) and below is what I logged into my diary the other day.

Quote:

So, ten days on the Bicaltumide. No real adverse side effects. Did have a brief hot flush one evening. Also, sex drive on the slide albeit I can still get an erection. Very limited ejaculate. Also feeling a lot of sensitivity around my pelvis, hips and upper arms. Not really pain, but more of a sensitive nerve / achy muscle feeling. This has spooked me a little bit as thinking maybe an indication of a metastasis. This is really overthinking as the bone scan was clear and I’m pretty sure the cancer hasn’t jumped out of the prostate in the last couple of weeks. Again, one of the side effects of Bicaltumide is described as ‘back pain, pelvic pain, joint or muscle pain’ and that is what I’m putting down the achy feelings to.

Unquote.

I also noted on another string on this site of someone advising of the same achy type feelings in these areas when on Bicaltumide.

User
Posted 23 Jul 2018 at 22:47

Originally Posted by: Online Community Member

No fever or shivers.

im now on it for four months and I’m convinced my body hair is thinning out.  Is that possible?

Ulsterman

 

Yes it is a known side effect - and John's back hair (of which there was quite a lot) has never returned :-(  Women often notice that their hair becomes finer as they reach menopause as well.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 23 Jul 2018 at 22:53
The ‘back pain, pelvic pain, joint or muscle pain’ is down to the body feminising - the muscles lose tone and ligaments soften, the pelvis spreads (as it would in a pubescent girl) etc etc.

Never heard of stinging pains being associated though ... would want to have a check for infection instead, I think

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Jul 2022 at 21:36

Hi, I've just started on bicalutamide 150mg. If there is bleeding in the urine can anyone tell me how quickly after starting the drug the it occurs

User
Posted 22 Jul 2022 at 22:22

I've never heard of bicalutamide causing bleeding in urine.

If you get blood in urine that's not explained by a recent biopsy or which your clinical team are not already aware, you need to mention it to them, even if just once.

User
Posted 23 Jul 2022 at 07:14
Not a side-effect I've ever heard of anyone reporting.

Chris

User
Posted 26 Jul 2022 at 12:32
Started Bical just under a week ago, so still early days but since Day 1 have felt increasingly weak and swimmy most of the time. Feels a lot like flu or hayfever without the sneezing and coughing. No pains as yet but walking is becoming more difficult as my thigh muscles seem to be steadily weakening. Overall it's quite debilitating.

However I note no one else appears to have reported the flu-like symptoms so maybe it's just a coincidence and what I'm suffering really is flu or hayfever. If so it's years since I last had these symptoms.

User
Posted 26 Jul 2022 at 17:45
Probably got covid (not joking)
User
Posted 27 Jul 2022 at 14:40

Originally Posted by: Online Community Member
Probably got covid (not joking)
Tbh I'd kind of dismissed the possibility of covid until you mentioned it, so thanks for the heads up! Pleased to say I have now taken the test which was negative.

So the flu/allergy like symptoms are presumably just a coincidence, though maybe I'm a little more susceptible because my immune system has been weakened?

Will ask about this when i go to Lister my injection in a week's time.

User
Posted 08 Aug 2022 at 08:34
Good morning folks. I've been on the Bical 50mg tabs for 12 days now and few serious side-effects really (mind you I have partied fairly often the last 2 weeks and kept a posiitve attitude) - so first injection on Thursday (day 15) then keep taking the Bical for another 14 days.

I've asked for the Decapeptyl (as reportedly there are less side effects) one but so far my GP hasn't confirmed which one I'll get yet (which is worrying and a bit annoying) ..... my question is: How long after the first injection will the side-effects kick in please?

User
Posted 08 Aug 2022 at 09:26
Hi Howard I specifically asked for Decapeptyl after following others. To be honest the hot flushes started in days. The drop of libido is weird and noticeable but not too bad. I’m like 20 months into it and still want some and can manage it with Cialis. Aches and pains start in joints. Memory fog quite an issue. I’ve had zero weight gain nor moobs. In my opinion things get amplified over time even if they are there from the start. Eg my fatigue is worsening each month I feel. Good luck with it ok 👍
User
Posted 08 Aug 2022 at 10:39
Many thanks Chris - your positivity is always good to read! GP practice has just called, and after initially saying they didn't use Decapeptyl they say that they now have it! - so that's a bonus ... as is they say they are going to give me the injection in the bum! ... I'm hoping that the nurse is pretty too! ... sorry, a bit non-PC but being a bit flippant about the whole thing helps me to cope. :-)

Although I'm quite a bit older than you (I've just turned 63) I'm heartened to read that you've still been able to manage it even after 20 months (Well done Sir!) and no moobs either - although I'm imagining that senstive nipples might be a bit of a turn on!? Anyway, not that I've got a girlfriend at the moment (but still working on it - and being honest about my condition) ... not that: 'I've got to use it or lose it! ... errr maybe you could help me?" seems to be working as a chat up line .. yet! :-) Anyway, am taking the 'Use it or lose it!' mantra seriously and have managed to achieve orgasm for just about every day of the 12 days I've now been taking Bical and have arranged a date for Weds night! ..... on the grounds that at 9.15am on Thurs morning might be the herald of RIP to my sex life.

User
Posted 08 Aug 2022 at 10:48
Love your positivity and candour. It’s definitely needed when tackling all this rubbish. Yes you are older I know but a lot of it is state of mind and you obviously want to keep active, so keep doing what you’re doing. I swear pump use has saved my little fella in these 7 years and kept him tip top. Keep positive 👍
User
Posted 12 Aug 2022 at 12:32

Originally Posted by: Online Community Member
Good morning folks. I've been on the Bical 50mg tabs for 12 days now and few serious side-effects really (mind you I have partied fairly often the last 2 weeks and kept a posiitve attitude) - so first injection on Thursday (day 15) then keep taking the Bical for another 14 days.
I've asked for the Decapeptyl (as reportedly there are less side effects) one but so far my GP hasn't confirmed which one I'll get yet (which is worrying and a bit annoying) ..... my question is: How long after the first injection will the side-effects kick in please?
Hi Howard, I'm in much the same boat as you. I have advanced PCa and started a 4 week course of Bicalutamide 150mg on 21 July, followed by an injection of Decapeptyl 3mg IM on 2 August.

Side effects kicked in within 24 hours. I felt REALLY peculiar, dizzy, very weak etc for about 24 hours, but the next day I was much better and to my amazement by Day 3 all side effects from the injection seemed to have washed away and it's been pretty much plain sailing ever since. Just the occasional swimmy head and slight weakness.

Next injection will be a much-increased dose (11.25mg) of Decapeptyl on 30 August, so will have to see how that goes. 

Best of luck to you for your injection, hope it all goes smoothly and you get relatively minor side effects.

Do please keep us posted.

Tony

User
Posted 16 Aug 2022 at 14:25

Hi,

I've now had 2 of the 3 monthly injections, next is due end of September 2022.

Just wondering if anyone is suffering joint pain? Mostly in the knees, however, it also

affects my other joints. It also seems to move around, from one wrist to the other. Knee

pain is continuous though!

I'm being prescribed medication (Diclofenic), Anadin Extra, neither of these help the pain at all.

Anyone help?

Regards,

Peter

User
Posted 16 Aug 2022 at 16:17
Joint pain is a common side effect of HT - swimming may help
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Aug 2022 at 16:35

Been on decapeptyl for 14 months odd bit off shoulder pain but generally tolerable 👍

User
Posted 16 Aug 2022 at 17:11
Permanent knee pain. Had osteoarthritis previously but has worsened since on HT. I soldier on and keep painkillers to a minimum if I can
User
Posted 05 Oct 2022 at 12:44
Commenced HT on 21 July with Bicalutamide and have had two Decapteptyl since, first was a 4-week one at the beginning of August, second a 12-week one at the end of that month.

Plenty of symptoms so far, notably regular hot sweats and spells of very debilitating weakness c/w a swimmy head lasting several hours every few days, but cannot say I've had any real joint pain as such.

I do also regularly get a weird, uncomfortable tingling sensation on the back of my hands on waking up in the morning but does not last long and is only very lightly painful.

User
Posted 19 Jul 2023 at 10:38
The last two nights I have had a skin crawling sensation at night, which made it very difficult to sleep and I would guess I have been waking up at least 20 times a night. I have been on Bicalutamide hormone blocker since early March this year and have just completed around 10 days ago, a one month's pelvic radiotherapy treatment at the Preston Park department of the Sussex Cancer Care Centre. I am considering asking my GP for short term sleep assistance.
User
Posted 19 Jul 2023 at 13:47

Hormone therapy can cause itching with no obvious visible issue on the skin. One consultant told me this is because it can cause fat to be deposited in nerve sheaths and the itching is referred pain, but I've never read that anywhere. I had it on both arms a couple of times - usually lasted about a month and then went away.

 
Forum Jump  
©2024 Prostate Cancer UK