Apologies for the delay in replying, and thank you all for your replies.
I saw the oncologist again - he's a lovely man by the way - and he confirmed best guess at 3 to 4 years.
I've been on a bit of an emotional roller-coaster since then, sometimes feeling quite at peace but in my darkest times I've felt really low. Chief among my worries is the fact that my youngest son could have 70 years without me, he could forget me, etc. Same goes for my wife... Will she be OK, will she have enough money, will she meet someone else, will she forget me? I'm sure I'm not alone. The problem is when I try to talk to my wife, when I'm ready, she's not. I do try to talk things through with my older sons but they don't want to either. So.. In the meantime I'm 'spring cleaning' , getting things sorted, such as critical illness payout, ill health retirement, and my will finalised.
As a result checking the Internet has been well down on my list. Again., profuse apologies.
I don't think I'm as bad now; however, I do find the stupidest little thing can cause the tears to start.
Good news is my youngest son has started an apprenticeship and passed his driving test. He now has a newer car than his mum and dad 😊
I' started on my prostap injections back in early June, with the next one due end of August. The treatment hasn't gone without hitches, the worst of which has been the flaring. The breasts are OK as long as my sons don't t try to hug me too tight. I have also noticed that the constant peeing, that stopped when taking the bicalutamide, returned with a vengeance. It got so annoying that I mentioned it to the nurse at the GP surgery. She arranged a blood test last week to see if there was anything wrong. Hey presto... PSA score is down to 8.2 after a month and a bit of prostap. I've got abnormal liver reading and cholesterol is borderline high but who cares? 🤣 The GP has put me on alpha blockers to help with the peeing issues. I'm not taking them yet as, sods law, I'm feeling OK at the moment.
In other news, I've said I'm happy to join the stampede trial if they will have me. I'm seeing the oncologist early August, so I expect to hear more about that then. I don't expect to be on chemo for some time, if the prostap keeps doing it's job. I've decided that the oncologist knows best, so I'm leaving it to him to decide.
Next blood test is 1st August, just prior to oncologist visit.
I also had a visit from a lovely lady from Macmillan. She told me to push for prescription charge exemption, which I have done. Just waiting for the card now. She also put me in touch with the local St Barnabas hospice, and my wife and I visited last week for a chat. Again, lovely people and very welcoming. I'm there again solo next week to help me box the cancer and get on with my life. And... they do tai chi so I'm inclined to give it a go. I also intend to open up about my family worries I mentioned above.
One final thing... the forms have actually gone off for ill health retirement. I'm now just waiting to hear if/when I get it.
Thanks again everyone for your support.