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Britain's best PCa Surgeons

User
Posted 07 Jun 2018 at 01:34

A few years ago the Daily Mail produced a list of Britain's best Prostate Cancer Surgeons as nominated by their fellow doctors.  This has now been updated, although I recognize same of the names are still the same. as hitherto.  This is not a recommendation and does not mean these surgeons can achieve the impossible and certainly not every result will be great.  Nevertheless, it may help some to know how these surgeons are rated. http://www.dailymail.co.uk/health/article-5808997/Meet-best-urologists-Britain.html 

 

Barry
User
Posted 07 Jun 2018 at 17:59

Originally Posted by: Online Community Member

Given my cancer recurred a year later despite negative margins I have tortured myself since.

Would things be different I.e. better if I had waited those few weeks.

I have lost a lot of sleep over that even although there’s nothing I can do about it. 

How sad, I am so sorry.

Although I have just had my RP carried out by a ”leading“ surgeon, I am not so naïve as to think I have got a “get out of jail free card”. In fact my Nomogram post-biopsy states I have a 37% chance of recurrence within five years. Maybe that will change when they check the histology of the whole of Tommy the Tumour - good riddance you b******!

If it does recur, I won’t blame my surgeon, as we gave it our best shot.

I can understand the doubts in your mind.

Best of luck. 

Cheers, John.

User
Posted 07 Jun 2018 at 19:40

As Cardinal Mazarin, chief minister of France, 1642-61, said the question to ask of a general is not, “Est-il habile?” Is he skilful? but “Est-il heureux?” Is he lucky? 

User
Posted 22 May 2019 at 05:41

I think I had ‘Capitalman’s’ surgeon, Professor Whocannotbenamedhere, and I couldn’t be more pleased. I believe there are others here similarly satisfied with both his NHS and private prostatectomies (£19,950).

‘Nikko’, ‘Rafael’, ‘Mr & Mrs L’ and ‘Maria B’ (their pen names) all spring to mind within the last year just on this forum.

Find a high volume surgeon with good outcomes near you, and go for the DaVinci robot rather than open.

Best of luck.

Cheers, John.

Edited by member 22 May 2019 at 05:56  | Reason: Not specified

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User
Posted 07 Jun 2018 at 08:38
Thanks Barry It was nice to see the guy who did mine on there - as he is s really unassuming fella I would not have expected to see him on this kind of celebrity surgeon list!!
User
Posted 07 Jun 2018 at 08:52
The guy who did my RP on Monday is on the list and four days post-op I am back home and out and about after two nights in hospital - I could have come home after one, but we had a hundred and fifteen miles journey back. Bloody British roads, potholes and speed bumps! Bouncy bouncy.

Some discomfort, I think more to do with bowel function interruption than having a belly like a pincushion. So far so good, couldn’t be more pleased.

User
Posted 07 Jun 2018 at 13:57

Mine is also on there, and in fact he's done the robotic procedure on 5 other surgeons in the same field who all developed PC!

 

David 

Edited by member 07 Jun 2018 at 13:58  | Reason: Not specified

User
Posted 07 Jun 2018 at 15:14

Nice one Barry my surgeon is on there too will be seeing him next Wednesday for my follow up it's nice to know the mail does seem to be very pro active in all areas of cancer. 

User
Posted 07 Jun 2018 at 16:05

The surgeon who was supposed to operate on me is there but due to a farcical mix up and zero communication I ended up with a different surgeon on the day. I only found out an hour before the op and was asked if I still wanted to go ahead or wait. Given the other surgeon had done hundreds of laparoscopic radical prostatectomies and his results were good I decided I couldn’t wait another few weeks and went ahead.

Given my cancer recurred a year later despite negative margins I have tortured myself since.

Would things be different I.e. better if I had waited those few weeks.

I have lost a lot of sleep over that even although there’s nothing I can do about it.

I complained to the heal authority and the health minister and got a sort of apology but no real appreciation of how mix ups/lack of communication affect people.

 

Ido4

User
Posted 07 Jun 2018 at 17:59

Originally Posted by: Online Community Member

Given my cancer recurred a year later despite negative margins I have tortured myself since.

Would things be different I.e. better if I had waited those few weeks.

I have lost a lot of sleep over that even although there’s nothing I can do about it. 

How sad, I am so sorry.

Although I have just had my RP carried out by a ”leading“ surgeon, I am not so naïve as to think I have got a “get out of jail free card”. In fact my Nomogram post-biopsy states I have a 37% chance of recurrence within five years. Maybe that will change when they check the histology of the whole of Tommy the Tumour - good riddance you b******!

If it does recur, I won’t blame my surgeon, as we gave it our best shot.

I can understand the doubts in your mind.

Best of luck. 

Cheers, John.

User
Posted 07 Jun 2018 at 18:29

My surgeon wasn’t there.  Locally, he is held in high regard.  

ulsterman

User
Posted 07 Jun 2018 at 19:06

Mines on the list. And the complimentary comments are entirely accurate. 

After the RP.in Jan 2107 I developed a persitant UTI. He took an interest in the  problem until all the surgical avenues had been explored. I now take nitrofurantoin every day which seems to work.

As often seems the case in the NHS silos he had no interest in oncologists.  So passed me over without ceremony to his colleagues to deal with my rising PSA

 

User
Posted 07 Jun 2018 at 19:40

As Cardinal Mazarin, chief minister of France, 1642-61, said the question to ask of a general is not, “Est-il habile?” Is he skilful? but “Est-il heureux?” Is he lucky? 

User
Posted 07 Jun 2018 at 21:54

Interesting Barry.   The surgeon I had isn't on there although I know he's done hundreds of ops and I was keen that he did it.  Three months after my op they got a robot at Preston.   I'm not sure I'd want to be one of the first patients to have it at a hospital.

User
Posted 07 Jun 2018 at 22:46
Three of the surgeons on the original 'best' list have since died of prostate cancer. Another has incurable PCa. It is interesting to see some lesser known guys on the new list among the specialists that we know do most of the really ground-breaking stuff.

I can't help thinking of Capitalman though; I wonder how he feels seeing the man that he believes ruined his life on a list of who's great. In fact, I wonder if Capitalman is even still with us - I have tried to contact him a few times without success.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Jun 2018 at 23:14

I am sure there are many more capable surgeons than those listed, some perhaps less prominent among their peers for various reasons. However, it does empathize the opinion that some surgeons are more highly regarded than others and to consider this when contemplating surgery.

Possibly of no significance but observed the dearth of lady surgeon listed - maybe fewer do prostatetectomy. (Lady surgeon did my HIFU)

Edited by member 22 May 2019 at 02:56  | Reason: spelling

Barry
User
Posted 07 Jun 2018 at 23:31

Originally Posted by: Online Community Member

The surgeon who was supposed to operate on me is there but due to a farcical mix up and zero communication I ended up with a different surgeon on the day. I only found out an hour before the op and was asked if I still wanted to go ahead or wait. Given the other surgeon had done hundreds of laparoscopic radical prostatectomies and his results were good I decided I couldn’t wait another few weeks and went ahead.

Given my cancer recurred a year later despite negative margins I have tortured myself since.

Would things be different I.e. better if I had waited those few weeks.

I have lost a lot of sleep over that even although there’s nothing I can do about it.

I complained to the heal authority and the health minister and got a sort of apology but no real appreciation of how mix ups/lack of communication affect people.

 

 

Hi Ido4,

I am sad to hear that you are struggling with your situation. You.  No one.  Will ever know, what might have been.  So. No, Zero point beating yourself up about it.  I don't say this glibly or lightly, I was in a similar position that you were in at the point of the op confronting and regarding the op and the scalpel wielder.

 

I had a similar situation to you in that, on the day of my scheduled Robotic Procedure at the Royal Reading a totally new random surgeon introduced himself to me as my future.   I had met a potential  Mister Scalpel at my PRE-op.   On the day off my OP, I met  a new Mister. Scalpel.  

 

Never met him before.  Never heard of him before.  But?  I went for it with him. 

 

Long story short?  Worked for me.  Surgery, Robotic worked for me.  Easily though might not have done?  Sad fact, our outcomes is/are so much down to chance.

 

The point is that on the best information you had at the time, you made your choice.  And with the surgeon presenting on that morning, you made your choice. As I did.

 You may read of those who made a decision on the information available.  Then, regretted it.  But, that regret was based on fresh information that they had not had earlier.

 

You, and I, have had to go with it.  If, and its a big "if", you had had your preferred surgeon, or the surgeon with the best record in the land, there's no guarantee that anything might have turned out better for you or for me. Even the best Surgeon has an off day.

 

I wish you all the best.  But your emotional battle is only one that you can overcome. Took me ma an age before I beat mine.  

kind regards

dave 

All we can do - is do all that we can.

So, do all you can to help yourself, then make the best of your time. :-)

I am the statistic.

User
Posted 08 Jun 2018 at 10:39
Thanks Dave, I agree only I can stop beating myself up about this. Sorry you seem to have faced a similar situation on the day of your operation.

I thought about it on the day and was so ready for the operation that I thought was going to cure me when I was faced with a consultant surgeon who I didn’t know but had heard of him. It seems this can be mor3 of an occurrence than I thought.

In retrospect given my staging was upped to T3a waiting another few weeks for the top guy would have allowed the cancer a chance to spread further. Although there is a chance my disease was already metastatic by the time I had the operation. I will only find that answer out when I stop HT at the end of this year.

I so wish I was five years down the line with an undetectable PSA but as you say there’s no guarantees with any of this.

Thank you for your wise words, much appreciated.

Hope all continues to be well with you.

Ido4

User
Posted 20 May 2019 at 16:14

Hi all, i have come across this site after researching the best surgeon for my father. He is due to have either open surgery of the robotic method and is currently using a surgeon who has show on the dailymail list (updated list and prior) for best surgeons. A few of you have mentioned that you happened to have surgeons on that list but no one has mentioned any names? Is there a particular one that is held more highly rated. Obviously in these situations you want as much advice as possible. 

 

Thanks in advance 

User
Posted 20 May 2019 at 16:16

Hi I have messaged this thread (excuse I’m new to this site). Are you still happy with your treatment and would you mind sharing the surgeon you used? 

Thankyou! 

User
Posted 20 May 2019 at 16:54
Charlotte,

Site rules prohibit the naming of medical staff here, which is why nobody's named their surgeon.

Best wishes,

Chris

User
Posted 20 May 2019 at 19:46

Hi again, thank you for your quick response.

My concern comes after reading Lyn Eyres comment which says something about ‘Capitalman’ and how he had someone of the list- and this just fills me with fear. 

Is there any forums out there that identifies the most highly rated surgeons?

Again I apologise I am new to this and may be asking silly questions.

 

  

User
Posted 20 May 2019 at 21:08
I really wouldn’t lose any sleep over it, Charlotte. Choose a surgeon who does hundreds of RP’s a year and the odds of anything going wrong are vanishingly small. On the exceedingly rare occasions it does happen, though, simple probability dictates that it’ll probably happen to a top surgeon who does lots of such operations; it doesn’t mean they’re a bad surgeon.

All the best,

Chris

User
Posted 20 May 2019 at 21:20

Be careful. Mine was the top of the list! 

User
Posted 20 May 2019 at 22:05

Originally Posted by: Online Community Member

Hi again, thank you for your quick response.

My concern comes after reading Lyn Eyres comment which says something about ‘Capitalman’ and how he had someone of the list- and this just fills me with fear. 

Is there any forums out there that identifies the most highly rated surgeons?

Again I apologise I am new to this and may be asking silly questions.

Chris is correct - any surgeon can have a bad day and no matter how good the surgeon is, if it becomes clear that the cancer was more extensive than first imagined, even the best surgeon in the world can't turn back the clock or undo the op. The issue for people like Capitalman is not so much that the op went wrong or the patient was left with serious side effects, it is the support and engagement of the surgeon in the aftermath. In Capitalman's case (and others on here) the all singing all dancing urologist refused to see the patient or even acknowledge the impact. Bad outcomes can affect their published stats dramatically.  

The best you can do is use your instincts - does this person engage with us? Do I feel they value my dad and are listening to him? Does s/he answer our questions patiently and courteously or do we feel rushed and unimportant? You can also ask the urologist direct questions - the usual ones would be:

- what % of your RP patients go on to need adjuvant or salvage treatment

- what % of your patients are still using continence pads 1 year post-op 

- what % are able to get an erection sufficient for penetrative sex without pumps or medication

- why are you considering open and robotic surgery for my dad - is one likely to have a dramatically different outcome to the other? 

We chose carefully, based on who we felt able to talk to and who gave us confidence. It was a surprise when he recommended open RP but in my husband's case there were really good reasons and so we accepted the advice. Ideally, it should be all about trust and relationships rather than media coverage & marketing or isolated errors.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 20 May 2019 at 23:21

I recall my initial appointment with the surgeon and I'd already looked up how many ops he'd done and found he'd been the lead urology surgeon in a large NHS hospital for over 10 years as well as working at several private hospitals.    I felt it would be insulting and a reflection on the whole NHS if I was to start asking him a list of questions on his stats.   Also what else was I going to do as I wanted the operation quickly.  There was an alternative I'd already been offered at another hospital but I didn't really want it.

On the other hand I met someone who said he'd been asked if he was happy to have the first operation a surgeon had done and he said yes.   He said he didn't regret it as he was still around several years later but he had poor continence and didn't know if it was bad luck or new surgeon.    I'm pretty sure I'd have said no as I had been searching avidly for evidence of the competence of my surgeon.

On the day of the op one of his assistants interviewed me pre-op and seemed a bit offended, I can still picture his face, when I asked with a worried look if the main surgeon was doing the operation.  I didn't realise there was a team of surgeons doing the op, three I think he said.

The only question I'd ask, except for one's about my own case and outcome, is whether the surgeon you expect is doing the op and then look pleased when he says yes.

Edited by member 20 May 2019 at 23:28  | Reason: Not specified

User
Posted 21 May 2019 at 22:44

Thankyou so much for your replies. Annoyingly I can not yet send private messages as I am new to the site and it restricts it until I have used the site more. We are currently in touch with one surgeon and have been since we first found a high PSA and this particular surgeon has since advised of ‘open surgery’ based on scans etc however we are in the early stages and want to be sure that not only he is they right surgeon but also a capable one. As I previously mentioned my concern is that after reading the information on this site that he could be this surgeon that left some poor chap with various side affects and no duty of care- I find this concerning as the surgeon we have been dealing with is on the dailymail top 10 (both years). I’d like to say that I know any surgeon can’t preform 100% every time and each case is isolated but I find it more worrying that it’s been stated he ignored any wrong doing and didn’t follow up with his patient. Can anyone give me any advise on this? On another note I’m finding reading all the comments and conversations rather helpful and giving me a lot of comfort. Thanks in advance! 

User
Posted 22 May 2019 at 00:58
As stated previously, your dad should go with the surgeon he feels confident in rather than worrying about how it went for some other patient; it works the other way as well; he shouldn't go with a particular surgeon because some stranger had a good outcome. The surgeons listed in the 'best of' list are the ones that other urologists would go to if they had prostate cancer; that should be a huge reassurance!

Note that some of us don't accept / reply to private messages.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 May 2019 at 05:41

I think I had ‘Capitalman’s’ surgeon, Professor Whocannotbenamedhere, and I couldn’t be more pleased. I believe there are others here similarly satisfied with both his NHS and private prostatectomies (£19,950).

‘Nikko’, ‘Rafael’, ‘Mr & Mrs L’ and ‘Maria B’ (their pen names) all spring to mind within the last year just on this forum.

Find a high volume surgeon with good outcomes near you, and go for the DaVinci robot rather than open.

Best of luck.

Cheers, John.

Edited by member 22 May 2019 at 05:56  | Reason: Not specified

User
Posted 22 May 2019 at 07:41
What ridiculous advice Bollinge! You bang on about how great it is having ‘one of the best’ but then when another member says that ‘one of the best’ has advised open RP you dismiss that and assume you know better? Her dad gets ‘one of the best’ and you advise that they find someone local instead? Did you even bother reading her post properly? There must be good reason for him advising open; the top ten aren’t going to suggest it just for a laugh.

Not sure that list of happy patients is a great advert ... Rafael is waiting for compensation having discovered that his operation was unnecessary, Nikko had bleeding complications and had to be re-admitted to hospital and you lost 2 inches.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

 
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