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First appt after radical prostatectomy

User
Posted 28 Jun 2018 at 16:26

What usually happens at this appt please? My husband had a radical prostatectomy on 15.05.18. 2 weeks later he had the catheter removed & a PSA test which came back at 0.51. He had his follow up appt 5 weeks post op & his PSA was 0.04. The Dr he saw said the histology results weren't back due to staff shortages & he could have them at the next appt in 3-4 months. Has anyone else been told this please?

Edited by member 28 Jun 2018 at 16:52  | Reason: Not specified

Abigail

 

User
Posted 28 Jun 2018 at 16:57
Suggest you talk to the Urologist's Secretary or a specialist nurse about getting the results sooner. That sort of wait is absurd.

AC

User
Posted 28 Jun 2018 at 17:21

Abigail

Agree with AC  My surgeon said he would ring me about three weeks post op with histology report, I did have to chase him but he did ring back with not so good news about my removed prostate. Not good that the histology report is not done. The two week PSA test sounded far to early and the subsequent test shows why early tests and not recommended by NICE.

Thanks Chris

Edited by member 28 Jun 2018 at 17:23  | Reason: Duplicate word

User
Posted 25 Jul 2018 at 20:41

That seems to be the new normal Abigail. I was told it would take up to three weeks to get results from my biopsy. Did it private and got them within 3 days. You readings are not bad. Post op histology can take time. The big news is that if you are already at 5 weeks hitting 0.04 then you are on the right track

Fresh

Base jumping without a parachute should be frowned at, never criticised. Fresh

User
Posted 26 Jul 2018 at 00:36
I had a PSA test at 5 weeks post-op which was <0.1 “undetectable”. It took seven weeks to get the post-operative histology as there is a shortage of pathologists at my hospital.

I chased up the results like a dog after a rabbit, and frankly now, I wish I hadn’t asked! 😁

Let’s hope your husband’s news is better.

Good luck.

Cheers, John.

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User
Posted 28 Jun 2018 at 16:57
Suggest you talk to the Urologist's Secretary or a specialist nurse about getting the results sooner. That sort of wait is absurd.

AC

User
Posted 28 Jun 2018 at 17:21

Abigail

Agree with AC  My surgeon said he would ring me about three weeks post op with histology report, I did have to chase him but he did ring back with not so good news about my removed prostate. Not good that the histology report is not done. The two week PSA test sounded far to early and the subsequent test shows why early tests and not recommended by NICE.

Thanks Chris

Edited by member 28 Jun 2018 at 17:23  | Reason: Duplicate word

User
Posted 25 Jul 2018 at 20:41

That seems to be the new normal Abigail. I was told it would take up to three weeks to get results from my biopsy. Did it private and got them within 3 days. You readings are not bad. Post op histology can take time. The big news is that if you are already at 5 weeks hitting 0.04 then you are on the right track

Fresh

Base jumping without a parachute should be frowned at, never criticised. Fresh

User
Posted 26 Jul 2018 at 00:36
I had a PSA test at 5 weeks post-op which was <0.1 “undetectable”. It took seven weeks to get the post-operative histology as there is a shortage of pathologists at my hospital.

I chased up the results like a dog after a rabbit, and frankly now, I wish I hadn’t asked! 😁

Let’s hope your husband’s news is better.

Good luck.

Cheers, John.

User
Posted 26 Jul 2018 at 10:16

After complaining to PALS we finally got the results & appointment with the surgeon at the end of last week. Gleason remained at 3 + 4 but grade went up to T3a, negative margins & completely excised. Next PSA test will be mid Sept. Recovery from op has been quite good, dry at night from catheter removal & was 2 pads a day initially but now 1 & improving. ED bad but starting Ciallis now. 

"What if" is no good but my husband asked his GP for PSA test in his early 50's & was told not necessary as no symptoms & not in high risk group. 2 friends both 58, one in London & one in Cornwall have been told the same recently. I thought that according to NICE guidelines if a patient over 50 asks for the test they are entitled to have it.

Thanks Base & John for your helpful comments & I wish you both the very best outcomes on this journey none of us wanted to be on.

Regards Abigail 

 

 

Abigail

 

User
Posted 30 Sep 2018 at 14:39
Hi Abigail,

Have you had the September PSA results yet? Hopefully nothing to report 🤞

Cheers, John.

User
Posted 01 Oct 2018 at 13:17

Hi John, thanks for your enquiry. Since that f/up appt in July he has had 2 PSA tests & thankfully both have been undetectable. In Sept he started on the Add Aspirin Trial which is being run by the Clinical Oncologist at the hospital where he had his RP & it seems he will be followed up by that team & the surgeon's team. Consequently Sept was a mass of appts including the ED clinic & today he collects a pump. He has another f/up with Add Aspirin team at the end of Oct & another PSA. 

He has been busy advising all his friends to have their PSA done. 3 of them asked their GPS & initially were refused but all insisted. One has come back at 4.35 & been referred to UCLH & awaiting MRI. We're hoping it won't be PC but know very well it could be.

Hope things continue to go well for you too. Regards Abigail 

Abigail

 

User
Posted 01 Oct 2018 at 14:53
Hi Abigail,

Yes, I too have become a PSA test evangelist since my diagnosis after a seven year break between tests.

A friend told me yesterday that thanks to my nagging he asked for a PSA test and DRE as part of his company medical, and they found a hard patch on his prostate. He was referred for an MRI which found nothing, but at least he has a baseline PSA of 2.2 to see if there is any increase next year.

No hardness of my reproductive gland at all at the moment!😉

Surely a PSA test on the NHS for men over 50 who want it, followed by a subsequent test a year or two later that would identify any increase that might be of concern, is not too much to ask of our health service?

Cheers, John.

 
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