consultant issues

User

Posted 16 Jul 2018 at 20:31

I had my prostate removed in 2015 and have had limited lymphodema below the belt line ever since.

I also suffer from excruciating pain in my Lh leg after standing up for a few hours of when i walk in excess of about 30 mins. I am absolutely convinced that my lymphodema is pressing on a nerve as the pressure builds up and only goes away after rest. My consultant absolutely refuses to acknowledge this is a result of my surgery and a complication of lymphoma. While im grateful for his work on me up to now i am considering changing consultants to one that will at the very least investigate my pain. has anyone changed consultant out there, did it cause any issues?

User

Posted 17 Jul 2018 at 06:16

My surgeon told me that lymphodoema occurs in 3% of cases following prostatectomy combined with lymphadenectomy, and that it can occur years down the line.

Sorry you are suffering.

Cheers, John

User

Posted 17 Jul 2018 at 07:59

Just go to your GP and ask to be referred to Orthopoedic Choice. They are really good and should help you a lot

User

Posted 17 Jul 2018 at 08:44

Orthopaedic choice? Is that a local thing?

A referral to lymphodema clinic may be a good option (if one exists in your area)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Jul 2018 at 14:37

Maybe it is local Lyn but that’s it’s name. Stops people clogging up the hospitals and consultants etc. All run by physio specialist practitioners who can do injections etc. They looked at my PET scans also. My knees are utterly rogered to the extent I can’t walk some days

User

Posted 17 Jul 2018 at 20:15

I checked it out- it is a service owned by your local NHS trust rather than a national thing :-(

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Jul 2018 at 21:26

So did I. Shame as it’s very very good x

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