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A new phase

User
Posted 29 Jan 2020 at 12:37
I’m literally EXHAUSTED with stress having to wait till 19th Feb for scan results to confirm advanced cancer to spine and lymph’s. I’ve been a right mess yet physically fine. I desperately don’t want to go on HT forever more

If life gives you lemons , then make lemonade

User
Posted 29 Jan 2020 at 17:00

The testing and waiting on results takes its toll. Fingers crossed for you PP and everyone else too.

Chris J, I feel for you, waiting is hell.

Ido4

User
Posted 09 Feb 2020 at 13:27
Stress levels have been very very high this week (eye twitches driving me mad) and had three day virus as well. Still no job. Life generally uphill on all counts with no end in sight (unless you count dying early). Suddently switched from stress and anxiety to feeling really really REALLY angry today. Test results tomorrow. Luckily the anger is keeping me from feeling sad.

Just needed to rant :(

User
Posted 09 Feb 2020 at 13:35
No problem mate. Rant away. Just try and contain the anger lol. I’m in the same boat. Scan results have been 4 weeks due to Xmas backlog. So I find out Feb 19th whether I am advanced with spine and tissue mets and on the downward slide towards the unknown. I just keep working and smiling and painting but I’m all fu**ed up inside tbh. Good luck

If life gives you lemons , then make lemonade

User
Posted 09 Feb 2020 at 15:12

Rant anytime you like. Sorry you’re feeling this way. 

Ido4

User
Posted 09 Feb 2020 at 19:14

Feel sure that when results of various tests approach, we all become a trifle tense as to what the outcome will be. It’s only natural so stop beating yourself up. I see my urologist tomorrow for my latest PSA result, and even though I attempt to disguise my concern with a smile, inside I am bubbling away like crazy. Truly hope your result(s) are positive for you.

User
Posted 09 Feb 2020 at 19:22
Thanks guys. I blew off a lot of steam and am feeling more steady now.
User
Posted 09 Feb 2020 at 20:28

Pete

Was expecting to get my result Friday, but not come through. Got telecon with one of the onco nurses on Wednesday, unusually had a bit of anxiety this time.

Finger's crossed for both of us.

Thanks Chris

User
Posted 10 Feb 2020 at 06:41

Good luck Chris. Keep Us posted

User
Posted 11 Feb 2020 at 11:56
0.09 - "very stable" the nurse said. Next test in three months.

Pheeeewwww!!!

Time for celebratory glass.

Thanks for all the kind words and may all your results be good!

User
Posted 11 Feb 2020 at 12:38

I’ll have a celebratory glass with you, too. Cheers! - because my PSA reading was considered undetectable when I saw my Urologist yesterday. We limp from one hospital visit to another so when we get good news it’s the best feeling one can have. Well done and best of luck to all the other guys who have test results to face soon.

User
Posted 11 Feb 2020 at 13:13

Glug glug 🥃 

That was for you and me 😂

Well done!

And good luck to everyone else!

Edited by member 11 Feb 2020 at 13:17  | Reason: Not specified

User
Posted 11 Feb 2020 at 13:58

Good result. Celebratory glass well deserved!

User
Posted 11 Feb 2020 at 14:11
I’ll have a hangover by teatime 😈😈😈😈
User
Posted 11 Feb 2020 at 14:37

Great result! Had my first post-op bloods today. Didn’t drink enough water so slow coming out 🤷🏼‍♂️🥴😂 Result Thursday so a bottle in the cooler either way 😛

User
Posted 11 Feb 2020 at 15:09
Great news mate. I don’t need any encouragement to raise a toast to you lol

If life gives you lemons , then make lemonade

User
Posted 11 Feb 2020 at 16:19

Fantastic news. So pleased for you. Cheers!

Ido4

User
Posted 11 Feb 2020 at 16:25

Pete

Great news, hope it continues.

Thanks Chris

User
Posted 11 Feb 2020 at 17:58
Yayyy
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 May 2020 at 11:06
Bloods today and call on Tuesday. What with the lockdown, family being stressed and my own negative self talk I’m in a bit of a dark place worrying about it rising and my life being cut short. Way too much time to think 😰
User
Posted 07 May 2020 at 12:18

Fingers crossed for a good result Pete.

Ange 

User
Posted 07 May 2020 at 13:57
Hope results good Pete. Mine were really bad but expected. My psa is so high now I never ever worry about it lol. I concentrate on all the other bloods to see if my organs and bones are ok , and make my decisions based on that. I’ve been in very very dark places too , and recently my excellent lady councillor of two years has decided to pack in totally which has caused me a real panic tbh. My call from Onco is on 15th and he is very on board with my decisions as is my GP. I’m hoping he won’t push me for HT and instead give me another 3 months for double scans and review.

If life gives you lemons , then make lemonade

User
Posted 12 May 2020 at 10:59
Hi all

Latest results: 0.05

History

Feb 2019: 0.07

Jul 2019: 0.05

Nov 2019: 0.09

Feb 2020: 0.09

April 2020: 0.05

Nurse was pleased but seemed surprised at this large turn around. We both agreed it’s trend not numbers that counts but this looks good to bank.

User
Posted 12 May 2020 at 11:17
Maybe you are just going to be like John with a naturally high benign PSA - nearly 8 years post SRT his PSA has ranged from 0.08 to 0.11 and then settled again at <0.1.

We did start to notice a pattern; the PSA is usually highest in August which immediately follows our month in France cycling, drinking red wine (him, not me) and cooking a lot of red meat on the BBQ (also him, not me). It would have been interesting to test this out again this Summer although in the current situation, we may not get the chance 😢

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 12 May 2020 at 12:54

Pete

Great news, bet she was glad to be the bearer of good news. 

Thanks Chris

User
Posted 12 May 2020 at 13:15

Great news to hear another good result for you Pete.

Ange

User
Posted 12 May 2020 at 15:53
Hi, Pete,

If you lived in the West Midlands near me all your results would have come back as <0.1, “undetectable”, which might have saved you some anguish.

Not saying an additional decimal place is right or wrong, but it saves me worrying, as my PSA is undetectable too.

Stay alert! Control the virus!

Cheers, John.

User
Posted 12 May 2020 at 16:31
Hi all

@Lynn - I think my great white whale is stress. I've worked hard to bring that under control. Why not replicate your holiday with exercise bikes and a BBQ in the garden!

@Chris and Spaniel - cheers!

@Bollinge - yes I do worry a lot about the numbers. I asked about sensitivity and they go down to 0.04 as measured and then >0.04. So I am effectively two points off of undectetable within undetectable :)

As my wife and son both said, time to stop moping and start living :)

User
Posted 12 May 2020 at 21:42

Fantastic news. Definitely time to start living. So pleased for you and your family.

Ido4

User
Posted 12 May 2020 at 23:20
Great news 👍
User
Posted 12 May 2020 at 23:32
Great stuff
 
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