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Post RP and SRT journey - August 2020 update

User
Posted 20 Aug 2020 at 08:46
4 months with a view to easing yourself into 6 months - seems to me that no crisis can result from that.

We have just been holidaying with a man who is a somewhat public figure; his wife confided that he had RP over 10 years ago with "one of the best urologists in the country". I asked how his PSA is now and she replied that he has never had PSA tests since the op because the surgeon was "confident that they got it all." I tried to explain but they were having none of it - apparently, if the best urologist says you don't need to have monitoring, you don't 🤷‍♀️
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 20 Aug 2020 at 15:21

Lyn, re the somewhat public figure not having had a PSA test since the op. Wow, if I had not tested  mine after Prostatectomy I would probably not be here today.


 


 


 

Ido4

User
Posted 21 Aug 2020 at 11:58
Yikes

That is madness. Like most here with ART/SRT, I'd be in trouble without post RP monitoring.

I have always been led to believe that many surgeons have big egos but putting someone at risk because you believe in youself so much would, I would argue, go against the Hippocratic oath.
User
Posted 21 Aug 2020 at 12:19
My cousin died a couple of years ago at the age of 52. His surgeon also stated that monitoring was unnecessary because the surgery had 'got it all' and he even put it in writing when the GP queried it. Consultants with egos are almost as dangerous as GPs with accountants.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 21 Aug 2020 at 16:36
"I have always been led to believe that many surgeons have big egos but putting someone at risk because you believe in youself so much would, I would argue, go against the Hippocratic oath."

Maybe he took the Hypocritic oath instead...
User
Posted 25 Aug 2020 at 14:41
Interesting...

I got my next three month test letter (may request four months when I get a chance).

I noted it also had Testosterone on it.

I never specificaly asked for it but I remember honking about feeling tired a lot of the time and having wipe out days so I wonder if the Dr decided to add that when (assuming they did) the nurse briefed him on my feedback. This next will be two tears post end of SRT.
User
Posted 25 Aug 2020 at 15:38
What was it?
User
Posted 25 Aug 2020 at 16:13

Sorry, what was what?


If you mean the T, I never had it on the last test - the nurse added a request for it on the next one.

Edited by member 25 Aug 2020 at 16:18  | Reason: Not specified

User
Posted 25 Aug 2020 at 21:27

I'm only occasionally on this site at the moment, though I probably should be more with my PSA creeping up 4 years after RP.


But I do want to say how the sentence "Consultants* with egos are almost as dangerous as GPs with accountants" lightened my day. A concise summary of around half the problems with the NHS.


[*I assume this really means "surgeons" though I have enountered cardiologists who possibly qualify].

User
Posted 26 Aug 2020 at 22:00

Going back to the interval between PSA tests. I’m on 6 monthly with a rising PSA. My view is that it’s not going to suddenly shoot up to levels where they need to act. So why put yourself through the angst of an unnecessary test 🤷🏻‍♂️


Bri

Edited by member 26 Aug 2020 at 22:01  | Reason: Not specified

User
Posted 27 Aug 2020 at 11:48
I’ll probably move up to four then six if that goes well
User
Posted 23 Oct 2020 at 22:00
Moved my next test to Jan after talking to the nurse about pre-test blues. I suggested a month delay and she suggested January as a test just before Xmas, well, duh!
User
Posted 23 Oct 2020 at 23:42
Good plan Pete
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 23 Oct 2020 at 23:51

Pete, just spent the past hour or so reading your full thread. Trying to pick up hints and tips as my husband awaits his first session of RT. He will be 14wks post RALP when he begins. PSA was 0.2 post op.


Prior to reading  your thread I spent an age trying to locate his “tattoos” 🧐🧐


Wishing you well.

User
Posted 24 Oct 2020 at 10:51

That seems sensible. 

Ido4

User
Posted 24 Oct 2020 at 16:11

Originally Posted by: Online Community Member


Pete, just spent the past hour or so reading your full thread. Trying to pick up hints and tips as my husband awaits his first session of RT. He will be 14wks post RALP when he begins. PSA was 0.2 post op.


Prior to reading  your thread I spent an age trying to locate his “tattoos” 🧐🧐


Wishing you well.



 


Hi Lexi


Hope it helped. I can be a bit of a drama queen so don't let that worry you :)


My main takeaway from doing all this is as follows:


Make time around the hospital trips to get ready and rest afterwards - it can get tiring


Stick to the restricted diet to allow the bowel to empty easily


Get Sudocrem as the laxatives can make the bum sore


Keep an eye on the emotions - the HT plus the stress of the routine can cause wobbles


Be on the look out for an emotional "drop" once the treatment ends - going from 100 to 0 overnight is unsettling


Stay positive


Expect and work around fatigue but keep exercising


Cheers


P

 
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