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User
Posted 09 Jan 2019 at 18:37
Hi

Tony was seen by his oncologist today , his PSA was 26 before chemo and has come down to 3.5 after 4 treatments, he would like Tony to have 10 if possible but if not at least 6, he will arrange a scan after the 6th and will see him again at the end of feb and before his 7th chemo. Hopefully his PSA will have come down more and the scan will not show up any more spread.

regards barbara

User
Posted 09 Jan 2019 at 20:46
Brilliant Barbara, that’s a good start to the new year :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 10 Jan 2019 at 12:01

Thats great news indeed! 

User
Posted 10 Jan 2019 at 20:40

Thats a fantastic response. Great news.

Ido4

User
Posted 11 Jan 2019 at 17:20

Hi Barb

Great news!

I have been following your postings since I was diagnosed, encouraged by the way Tony has lived life to the full despite his treatments

At the time I thought I would not be around for long not having any experience of how this cancer rolls out. That was 10 years ago. So, as an encouragement to those newly diagnosed please don’t let your fears work on your imagination

One day at a time and enjoy the ’now’

Follow Tony’s example and try to live life as normally as possible. We don’t know what the future holds

Kind regards

Ray

Edited by member 11 Jan 2019 at 18:25  | Reason: Spelling mistake

User
Posted 11 Jan 2019 at 18:51
Hi Ray

I did panic when Tony went on chemo but now have calmed down, he is having a blood transfusion on tues due to anemia but that is mainly due to his kidneys although the chemo hasn't helped, he is having a scan in feb before the 7th chemo treatment so I am hoping for good news there. onwards and upwards as they say. It will be 13 years in april that he actually got the diagnosis but 13 years last sept when his journey actually started.

all the best

Barbara.

User
Posted 11 Jan 2019 at 23:31

x

Ray

User
Posted 27 Feb 2019 at 10:32
Tony has just seen onco, psa down again to 2.7 and lympth nodes have shrunk a bit so good news, is going to have the full 10 chemo sessions and after that maybe RT to the lymph nodes if his kidneys are ok, for some reason his kidney function has gone up from 9 to 11, so hopefully they will remain stable like that for a while.

barbara.

User
Posted 27 Feb 2019 at 10:39
Great news. You two are real fighters and an inspiration to us all!
User
Posted 27 Feb 2019 at 20:20
Well done. Hope the improvement continues.

Keep up the fight.

Ray

User
Posted 27 Feb 2019 at 21:27

Hope things stay stable Barbara , you continue to inspire us new guys. 

Chris.

User
Posted 24 Mar 2019 at 07:57
Hi

Tony had chemo no 8 on Friday and since then the last 2 nights he has been leaking urine whilst asleep, has anyone else had anything like this? thanks

barbara

User
Posted 12 Apr 2019 at 08:56
Hi

Tony is off for chemo no 9 today and is still keeping quite well, lots of tiredeness and a dodgy stomach for a few days after chemo, tends to spend a lot of time sleeping no 10 and the final one on may 3rd and then see onco the following week to see how it has all gone and next steps, hopefully get a holiday in before next lot of treatment.

regards barbara

User
Posted 13 Apr 2019 at 16:32

That’s great Barbara, John did all 10 and even though his PSA was clearly creeping up from 6 plus we don’t regret any of it. 

Fingers crossed for a great result and a fab holiday.

Love Devonmaid xxxx 

User
Posted 13 Apr 2019 at 18:11
Fingers crossed for you, Barbara
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 May 2019 at 08:31
Tony was fine all through no 9, couple of little niggles in the first couple of days but that was all, he had no 10 yesterday will see the Onco next Wednesday and then see hopefully what next steps will be, hope to get a holiday in before any more treatment starts.

barbara xx

User
Posted 04 May 2019 at 20:40

A

ways think of you both Barbara, hope you get your holiday, you so deserve it xxxx

love Devonmaid 

User
Posted 04 May 2019 at 22:20
Thanks Devonmaid

hope John is feeling a bit better hopefully get back on treatment xxxx

love barbara x

User
Posted 09 May 2019 at 16:05
Tony saw his Oncologist yesterday, his psa has risen slightly to 3.7 which is disappointing asked about holiday and he said he was happy but would like to do more blood test at the end of the month to make sure all is still ok, wanted to go at end of the month as zoladex is due 11th june and renal appt on 17th june but hey ho. has to be weaned off steroids over about 8 weeks and will then go on to another treatment not sure what one yet as the one dr wants to put him on might react to his clopidogrel he is on so is being checked to see. scan in 2 months , renal doc wants to put tony on epo injections for anaemia but these cause more side effects in cancer patients so we will see.

barbara x

ps. he was also happy for Tony to go on holiday without travel insurance as long as it was Europe .

User
Posted 17 May 2019 at 21:23
Just received letter from oncologist confirming it will be abiraterone will be more suitable for him so hopefully that will work. x
 
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