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Kidney transplant plus pca

User
Posted 01 Aug 2018 at 17:19

Hi everybody, I am fairly new to this forum,

I had a kidney transplant in 2016. Now I have been diagnosed with locally advanced prostate cancer, Gleason 9 (5+4). I am on hormone treatment. The urologist recommended high dose brachytherapy as the treatment least likely to damage my kidney, but the hospital did not have this equipment. He referred me to a hospital that had this equipment. The team at this hospital recommended prostatectomy as the treatment most likely to lead to a cure! because they thought the seminal vesicles were most likely affected. My kidney consultant (a third hospital) suggested I get a referral to the urologist at his hospital as they were more likely to have  experience of this situation and could more easily discuss it with my kidney consultant. So that's where I am at the moment, waiting for another consultation.

Are there any kidney transplant + PCa patients out there so we can discuss any treatments they have had and whether they were successful.

Any help would be much appreciated.

User
Posted 03 Aug 2018 at 23:12
Hi Barbara

There is evidence that some anti rejection drugs help to suppress cancer. These drugs are Sirolimus and Everolimus. One of the side effects with these drugs can be that they increase bleeding. So they might not like to give one of them until the transplant has healed. My kidney consultant is reluctant to start me on them because I might be having a prostatectomy. They are also more expensive than the usual drug Tacrolimus. They are approved by NICE.

Regards George

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User
Posted 01 Aug 2018 at 22:02
Hi George, you could look at the YANA website (you are not alone now) - it is an international group so many, many more members and more chance of you finding someone that has been in your situation. You could also call the specialist nurses at PCUK (number at the top of the web page) to see what they think.

For what it is worth, it seems sensible to me that your best way forward is with a urological surgeon at the same hospital as your kidney consultant.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Aug 2018 at 22:22
Hi George

really hope you can find some help, my husband is in a similar situation gleason 9 T3b and now has ckd 5, cannot find much info on this . he has had prostate cancer since 2006. hope you find someone who has some info on this.

regards barbara.

User
Posted 02 Aug 2018 at 09:52

Many thanks Lyn and Barbara for your support. Barbara - is your husband on the transplant waiting list?

Regards George

User
Posted 02 Aug 2018 at 10:36
Hi George

no he cannot have a transplant due to having active cancer, he has been told the anti rejection drugs could make the cancer worse. He is quite lucky that his Oncologist (whom he has been seeing since diagnosis 12 years ago) liases with his renal specialist before making decisions on treatment and vice versa.

good luck on your journey

regards barbara

User
Posted 03 Aug 2018 at 23:12
Hi Barbara

There is evidence that some anti rejection drugs help to suppress cancer. These drugs are Sirolimus and Everolimus. One of the side effects with these drugs can be that they increase bleeding. So they might not like to give one of them until the transplant has healed. My kidney consultant is reluctant to start me on them because I might be having a prostatectomy. They are also more expensive than the usual drug Tacrolimus. They are approved by NICE.

Regards George

 
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