Anyone else out there?

Hi Peter.

Many thanks for responding and your words of encouragement. My wife and myself have our first separate session with our key workers at our local hospice this week - already attend the support group, we feel very supported in this respect.

Thanks for the ‘heads-up’ re ’irun’. 

i hope you’re rollercoaster feels a bit easier

Mark 🏃‍♂️

Hi

I understand your frustration my husband has APC to bones and lymph nodes , my husband had chemo and is now on prostat injections . He is a similar age to yourself 61. We was told at diagnosis it was an aggressive cancer that was 20 months ago! we dont dwell on things but I’m sure you will know it’s difficult planning thing. You seem to have s good network in place we have not been offered any thing like that . Keep positive 

Thankyou jujubirtles

i appreciate your positive comments.

I hope your husband has many more enjoyable and pain free ‘20 months’. You’re correct, the uncertainty is difficult when it comes to planning, even so, we need to go ahead with the planning of occasions and events to look forward to no matter how small.

We are very lucky to have such an excellent PC support group at our local hospice where we regularly have 20 in attendance And appropriate visiting speakers, this is all managed by those living with PC.

Mark

As @irun  mentioned I too am a very keen runner. I was diagnosed in May 2017 when a “groin strain” that was hampering my training to run Comrades in South Africa on 4th June 2017. I was just 60 at diagnosis. I’d actually run Paris and Manchester marathons a week apart at the start of April 2017. Saw a sports injury Doc on 8th May 2017 and had an MRI scan that we had pre-arranged. The scan showed up something untoward and I was sent for blood tests, chest x Ray there and then and CT scan the following day. At 8.00pm on 9th May the Doc called to tell me that he was fairly certain I had prostate cancer. Within 10 days confirmed as incurable, Gleason 5+4, PSA 129 and wide spread throughout the bones. The “groin strain” was stress fractures of the pelvis where the cancer had weakened the bones and I’d been running on it.

As Kev said I got back to running although I find it much tougher than pre treatment. What Kev does is just simply superhuman. How anyone does that without testosterone is beyond me. 

However, I do still run 3 days a week, cross train once a week and still get loads of pleasure from it even though I’ve found it hard going from being a 22 minute park runner to 26 minutes (on a good day) as an example. 

I ran London marathon this year for PCUK and raised nearly £13k. In my previous 19 marathons (run between age 50 & 60) I’d averaged 3.33 but in London ran 5.07. I won’t run another marathon but I’ll carry on running as long as this b@@@@@d disease let’s me.

i can’t set the sort of targets that Kev does as I’ve really struggled with endurance running since starting treatment but I still set targets.

Like Kev I’m an awareness speaker and I am currently doing a series of talks to running clubs called Running Into Cancer. I know that my awareness raising has contributed to helping save two men’s lives through early diagnosis.

In respect of treatment I’m doing pretty well. I struggle with the side effects of hormone treatment, loss of oomph, loss of muscle mass, loss of libido, ED etc. However, after 6 months of feeling sorry for myself I got into the philosophy of “living life to the full” and “living with cancer” rather than “dying of cancer”.

PSA not registered for 13 months and long may it continue.

If you want to touch base about running or about PCa in general please do email me at tony.11laurel@virginmedia.com