WIND BEFORE RADIOTHERAPY

User

Posted 31 Aug 2018 at 14:19

Hi Husband on the HT/RT treatment plan psa was 16 now is undetectable after 9 months on Prostap (casodex added as Prostap didn't drop it low enough but now undetectable)

10 cores taken 2 were 3+3 1 was 3+4 (low volume 20% of sample) T2c/3 not sure if it is 3 or not but slight bulge so erring on side of caution N0M0 no Vesicle involvement

3 gold seeds inserted last week and planning scan today with a view to radiotherapy in 2 weeks.

Husband a bit down now because they said he had a lot of wind (he is 12 years after bowel resection and he has bad wind because of this). Can he take deflatine/ or windeeze prior to the radiotherapy sessions to help get rid of the wind?

Also they said his bladder wasn't full enough so can he take more water than the 3 glasses he is given? Also does he have to arrive half an hour before the radiotherapy?

Sorry for so many questions - he didn't ask today because he was a bit flat that he may have to have the planning scan done again.

Thanks for reading this - its much appreciated

Jenny

Edited by member 31 Aug 2018 at 15:03 | Reason: spelling mistake

User

Posted 14 Apr 2019 at 18:11

In was advised to go on a low residue diet (easy to find on internet) and had a suppository before every session until it got to the point where my bum was red raw and had to stop taking them. I am surprised they did not advise this duit but it really does seem to be a lottery!

User

Posted 14 Apr 2019 at 18:17

Hi Bob;

All went great.

Basically he cut out onions, spicy food etc but tried to eat more slowly which helped along with being hydrated ( although he loved a glass of red wine occasionally).

we are 5 months post radio and Psa undetectable but lots of wind post radio which can be uncomfortable for him but with a Psa of undetectable we seriously can’t complain .

User

Posted 14 Apr 2019 at 19:30

Can also recommend brisk walk if this can be managed prior to each RT fraction.

Barry

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User

Posted 31 Aug 2018 at 20:27

I would either give the hospital a ring or speak to one of the specialist nurses on here, the telephone number is at the top of the page, they will have a better idea of things he can take that will not interfere with any treatment he is on.

My other half has prostate cancer, diagnosed last November, it's hard being their support and adviser isn't it?

I usually try and go with him to consultations (luckily he is fine with this) so that I can ask things he may not remember, there is so much to take in.

User

Posted 14 Apr 2019 at 18:07

Hi Jenny.

I hope all went well with your husbands treatment and he all is well with him.

I am having similar problems with wind, I am 3 days into my RT and already 2 of those 3 days were delayed because of wind and I have had to administer a suppository (a golden bullet, yellow,on colour and the size of a 45 Magnum)

Did you ever get any advice on how to ease the wind, at the moment I am only drinking water and fruit tea but not sure what foods I should be avoiding

Bob

User

Posted 14 Apr 2019 at 18:11

User

Posted 14 Apr 2019 at 18:17

Hi Bob;

All went great.

Basically he cut out onions, spicy food etc but tried to eat more slowly which helped along with being hydrated ( although he loved a glass of red wine occasionally).

we are 5 months post radio and Psa undetectable but lots of wind post radio which can be uncomfortable for him but with a Psa of undetectable we seriously can’t complain .

User

Posted 14 Apr 2019 at 19:30

Can also recommend brisk walk if this can be managed prior to each RT fraction.

Barry

User

Posted 14 Apr 2019 at 19:59

Can’t manage the walk as all my appointments are around 8 am which means I have to be there for 7 and have a half hour drive.

Will try to eat slower but I have always wolfed my food down, product I’d beigh one of 7 children I suppose.

Will check out the low residue diet.

Great to hear all is going well Jenny

Bob

User

Posted 14 Apr 2019 at 21:12

Bob, it is really important not to change your diet without talking to the radiotherapy team. Some men are told to go on a high fibre diet, some men are told to go on a low fibre diet, some are told not to change their eating habits at all. Most are told that they must not drink alcohol or fizzy drinks at all while having RT. But your radiotherapy has been planned for you by computer, based on your internal layout and changing diet without their approval could cause you further problems.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 14 Apr 2019 at 22:24

You’ll soon get into the rhythm of things, Bob. Everything’s kind of stressful for the first few days of RT, but it’ll quickly become routine.

Hope it all goes well for you. I found RT much less troublesome than I’d anticipated. A few bad days near the end, but quite bearable all things considered.

All the best,

Chris

User

Posted 15 Apr 2019 at 07:47

I was given a booklet by my RT department listing foods etc to avoid, it worked well for me, as already mentioned talk to your RT team before making changes.

Thanks Chris

User

Posted 15 Apr 2019 at 10:40

While some of the advice being given may seem contradictory, don't lose sight of the point of it all - consistency.

To get the best out radiotherapy, safely, everything needs to be in the same place inside you, every treatment session. So it's vital to stick to the diet, vital to follow instructions about drinking - to the mL.

Wind is an issue, purely because it won't be persuaded to be in the same place every day.

When in doubt, talk to the radiographers: in my experience, they'll know, but if they don't, they'll soon find you someone who does.

The motto here is "Don't Change Horses Mid Stream"

User

Posted 15 Apr 2019 at 15:34

For wind, peppermint tea helps ,and as mentioned a walk around especially while loading the bladder with cups of water , will also help. If arriving too early for treatment sitting down doesn’t help . Towards the end most patients get side effects, me I had acute water retention and had to be catheterised for two weeks .

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