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Advanced cancer in the lymph nodes

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User
Posted 01 Sep 2018 at 15:59

Hello

38 months ago my husband was daignosed with advanced cancer that has spread to all his lymph nodes with a very low PSA.  All bones and organs are clear.  We have been informed on many occasions that this very rare.  Anyone else out there know of this. Sadly running out of treatment options.

User
Posted 02 Sep 2018 at 09:46
High Tracy really sorry to hear this. Did he have a biopsy , scans ( obviously ) etc ?? When you say all his lymph nodes do you mean all round his body visibly ?

I had surgery to remove my prostate aged 48 and five of the eighteen nodes they took out were cancerous. However no bone or tissue spread. My psa just rocketed and rocketed after surgery and they still haven’t found spread over 3 yrs on despite psa over 38 and all best scans PSMA available. I’ve always suspected it’s in my lymphatic system. What treatments have you had ?

Best wishes

User
Posted 02 Sep 2018 at 16:45

Hello Tracy, sorry to read this. There are cases when PSA is low and cancer is advanced hence PSA is not a perfect test and must be followed up by scans and biopsy.

What treatments has he had so far and what is he on now?

what is his PSA just now?

Ian

Ido4

User
Posted 02 Sep 2018 at 16:55
If you still have the diagnosis letters, check whether he was diagnosed with adenocarcinoma or a different kind of prostate cancer. There are at least 27 different kinds and some do not produce PSA, some do not respond to hormone treatment in the way that most would, some are more likely to spread to organs rather than bones, etc. If your OH has a rare type, it is helpful to know which one as that helps you to understand why some treatments haven't worked very well.

If you don't have a copy of the diagnosis letter, you could ask at the GP surgery what type of prostate cancer it is.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Sep 2018 at 12:41

Many Thanks for your responses.  My husband has received chemotherapy:- docetaxel and radiotherapy, kept things stable for one year.  Cabazitaxel and Xtandi both were stopped as although a couple of tumours in the neck lymph nodes shrunk, ones around the abdomen have grown and spread.  Presently receiving morphine for pain relief.

 

Has had many scans and 3 biopsies all showing poorly differentiated prostate cancer.

 

Best wishes to you all.

 
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