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Posted 11 Sep 2018 at 19:16

Hi everyone,

As you can see from my profile, I was diagnosed almost a year ago and this site and the specialist nurses have been instrumental in helping me through diagnosis, treatment and subsequent side-effects.  The last 11 months have been a blur where everything seems to have happened so fast and I think I've only recently come to terms with what's actually happened to me.

Finally plucked-up the courage to share.

Posted 11 Sep 2018 at 19:49
Welcome - here's a virtual hug (and I don't give many of those out ... not great at physical contact :-/ )

Glad that the nurses have been a good support - they are brilliant but I think not enough men know that this service is available. John rang them when he was first diagnosed and PCUK was also able to put him in touch with a man who had been in a similar situation.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Posted 11 Sep 2018 at 20:01

Hey Mark welcome. Your profile is close enough to mine but the post op PSA was 0.1 and they said RT is most likely. Why did they say that, was there a post op histology report that gave them some more info.


Base jumping without a parachute should be frowned at, never criticised. Fresh

Posted 11 Sep 2018 at 20:27

Hi Fresh, 

My post op PSA took a while to start going down from 0.1, eventually got to 0.06 but then started to rise again to 0.08.  At this point, and because of the positive margin, I was referred back to Oncology where they were all set to start with HT/RT but they did one more PSA test before giving the go-ahead and that showed it had dropped to 0.06.  I'm now attending Oncology every 6 weeks and it's been at 0.05 the last two visits.  I think the doctor is just trying to prepare me for further treatment if it shows an upward trend, but even he says it may be months, or next year or even further ahead.

Posted 11 Sep 2018 at 22:09
It may do, or it may just settle. John didn't agree to salvage RT until he went above 0.15, which was 2 years 4 months post-op
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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