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My Prostate Cancer Surgery experience

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User

Posted 17 Oct 2018 at 15:40

Just an update to say I got the results of my first PSA Test following Robotic Surgery 5 weeks ago and I was so relieved to be told that my PSA level is now less than 0.1 ng/Ml which is what they hope for. I never take anything for granted and I know I am fortunate. As I think I said previously the surgeon said that on examination the Prostate Cancer was more advanced and aggressive than at first thought and at some stage it would have broken out of the prostate and I was a Gleason 4:3 and not 3:4 . I was at one stage told I could go on active surveillance or have treatment. My wife and I are so relieved that I chose treatment.

Paul

User

Posted 17 Oct 2018 at 16:10

Congratulations.

Long may you have low PSA results.

User

Posted 17 Oct 2018 at 16:49

Pete

Thank you for this it is appreciated

Best wishes

Paul

User

Posted 17 Oct 2018 at 17:45

Hi Paul,

WOOOOOOHOOOOOOO!!!!!!!!!!!!!!!!!!

Fan-bloody-tastic news really really pleased for you mate, get your rags on and party like it's 1999.

Sincerely

Pauly

User

Posted 17 Oct 2018 at 17:58

Thank you so much Pauly C

yes again I shed a few tears when the Nurse rang me. It was a relief

Hope you are doing ok too

Best wishes

Paul

User

Posted 17 Oct 2018 at 21:45

Great news, long may it continue.

Ian

Ido4

User

Posted 17 Oct 2018 at 23:17

Thank you Ian for this

Best Wishes to you too

Paul

User

Posted 23 Oct 2018 at 16:45

Good to hear your positive experience. Thanks for taking the time to post your story. I am having my pre-op checks next week (1/11/18) and then I am waiting for a date for my robotic prostatectomy. Broomfield Hospital in Essex. Feeling more comfortable with the prospect now.Good luck to you. Steve

User

Posted 23 Oct 2018 at 22:49

Thanks for this Steve. I wish you all the very best with the Surgery at the Broomfield hospital in Essex. I was nervous before surgery which is natural but now I am glad I had it. Let us know how you get on.

Best Wishes

Paul

User

Posted 24 Oct 2018 at 09:05

Yes I will. Thanks.

User

Posted 25 Oct 2018 at 10:55

Hi Paul and Chris

Thanks for the story so far, yours mirrors mine in a lot of areas, good luck with the future

If sleeping is an issue, and it was for me, especially as i put it, jumping legs syndrome!

I found taking magnesium tablets from your local independent natural health food shop helped immensely.

my surgery was on the 23rd July, still pain on left hand side, although Raw legal CBD Oil is again helping

just little thought to share, help

Andy

User

Posted 29 Oct 2018 at 10:56

Andy, I suffer from restless legs syndrome already, let alone after I've had my surgery. I used to take crampex which seemed to help but it is no longer available. The magnesium tablets sound like they are worth a try. Thanks for sharing.

User

Posted 30 Oct 2018 at 07:22

Sorry for the late congratulations. What great news to get. That is the kind of feedback everyone hopes for.

Two weeks ago I got the news following my biopsy that I have prostate cancer cT2a, 3+4. There were two recommendations given to me: 1) Have a procedure (removal or RT) or 2) AS. Fortunately, I have a great GP and his advised removal; pointing out I'd really been doing AS for years now, as my PSA levels have slowly risen from 3.9 to 7.9. So, I am checking with consultants to see how soon a surgery can be scheduled. My biggest decision will be whether to go with a standard RALP approach or opt to go with Retzius. Some of this will depend upon timing.

Feedback like yours and the others is so very informative and helpful, and goes well beyond the raw statistics of ops performed and all.

Best wishes on your continuing recovery and return to good health.

User

Posted 01 Nov 2018 at 13:37

Well done long may the results be good

Its a great feeling getting a good result i had my op 19th September 2017 and results are still <0.02 which is great

User

Posted 16 Nov 2018 at 19:01

Hi Guys,

Been a while since I posted as I was waiting to see my urologist this week.

Had my appointment on Thursday which was my follow up to robotic surgery on 10 September 2018 so it was my first post op blood test results that were being provided to me.

Consultant confirmed my PSA is currently 0.1 which he said was the minimum measurable assessment so that was very good to hear but as he reminded me this is very early days and there will still be a long way to go in terms of follow ups and then next one will be in 3 months (February 2019).

Will enjoy this weekend and Xmas on the back of that news.

I wish everyone well and hope for good outcomes for all of you.

Sincerely

Pauly

User

Posted 16 Nov 2018 at 19:04

Great news. Many hospitals now don’t assess psa lower than 0.1 due to reliability issues and over-treatment based on results which could alter purely due to machine and calibration issues. My advice to you ( easier said than done ) is that with a result as low as that I’d just have an utter blast next 3 months. Good luck

User

Posted 16 Nov 2018 at 23:04

Good news Pauly.

Ido4

User

Posted 28 Nov 2018 at 11:43

Originally Posted by: Online Community Member

HI Steve thank you for this and if you have had your robotic prostatectomy I hope it went well and if not let us know.

Best wishes

Paul

User

Posted 28 Nov 2018 at 11:46

Originally Posted by: Online Community Member

Hi Paul and Chris

Thanks for the story so far, yours mirrors mine in a lot of areas, good luck with the future

If sleeping is an issue, and it was for me, especially as i put it, jumping legs syndrome!

I found taking magnesium tablets from your local independent natural health food shop helped immensely.

my surgery was on the 23rd July, still pain on left hand side, although Raw legal CBD Oil is again helping

just little thought to share, help

Andy

HI Andy

Thanks for sharing this and good luck to you too for the future and I hope your recovery is going well

Best wishes

Paul

User

Posted 28 Nov 2018 at 11:49

Originally Posted by: Online Community Member

Sorry for the late congratulations. What great news to get. That is the kind of feedback everyone hopes for.

Feedback like yours and the others is so very informative and helpful, and goes well beyond the raw statistics of ops performed and all.

Best wishes on your continuing recovery and return to good health.

Hi Carl M

I have only just seen this and thank you for your kind comments

Have you decided what treatment to have or had it yet ?

Best wishes with any decision you make and let us know how you get on

Paul

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