My Prostate Cancer Surgery experience

User

Posted 06 Dec 2018 at 10:26

steve

Think of the catheter as a friend it will save you getting out of bed at night for a few nights. Sure you have already been told about instillagel or hydra Caine to relieve any soreness. Best wishes.

Thanks Chris

User

Posted 06 Dec 2018 at 15:49

Good to know you are home Steve - the hardest bit is behind you.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 06 Dec 2018 at 18:15

Hi Steve,

Welcome back. Catheter is not easy but is necessary and hopefully it should be taken out within 10 days or less. We've all been there so I can certainly appreciate where you are coming from. Think about how much better you will feel once it's out.

Keep us posted on your recovery.

Sincerely

Pauly

User

Posted 09 Dec 2018 at 16:54

Seven days since my op. Getting on better with the catheter, I have found it easier without a thigh strap, which pulled the pipe to one side with any leg movement and caused leakage. It is coming out on Tuesday.

Not sleeping too well though, suffering from headaches and restless legs at night. Headaches despite still being on the paracetamol.

I stopped the Ibruprofen today, so maybe that was giving me headaches?

Feeling stronger everyday, but it is tough trying to sit around all day not doing anything apart from showering and going for short walks!

Getting there though.

User

Posted 09 Dec 2018 at 20:14

Hope your recovery continues to go well. You will find a big difference with the catheter gone. After such a short time it is initially weird when it comes out but things settle fairly quickly.
Best wishes,
Ian

Ido4

User

Posted 09 Dec 2018 at 20:24

I was told by doctor,just short drives at 3rd week post-op,and at four to use common sense.and drive as far as I wanted as long as I felt comfortable

User

Posted 10 Dec 2018 at 07:44

Hi Steve,

Glad to hear you are home and bored rather than worried, I know how I felt while waiting for the op after I got the news of my staging. Catheter out tomorrow is great news and you will feel much better after that thing is taken out. Boring is good.....watch those dressings and monitor the operation entry areas and keep 'em clean as you can. Good to hear you are mobile. Onwards and upwards from here.

Sincerely

Pauly

User

Posted 16 Dec 2018 at 13:10

Hi,

Glad to hear things went well and you are improving.

Hoping to have my op in the New Year.

Thanks for the insight into the op and after effects.

Paul

User

Posted 17 Dec 2018 at 08:37

Hi Steve

your right about the driving it's the damage that can be done after surgery if you have to do a emergency stop. I started driving after 2 days I have a automatic so found it easier but I did take my time just in case. when I had my catherter removed that's when my problems started I had no control for 3 weeks using up to 6 pads a day, but then all of a sudden things started to improve. I am pad free now after 6 months so don't worry to much at first as it does get better, Do plenty of walking it helps strengthing your pelvic muscle and aid recovery. hope your recovery goes well you will have days when your down but most of the time you should be fine , keep us all up to date and I look forward to your first PSA test results and your continued recovery. have a great Christmas.

eddy.

User

Posted 20 Jan 2019 at 11:18

A long time since I posted last. Had my op on 3rd December... all went well, and catheter out on 11th December, that was a pleasure! Since then my goal has been to get dry. I feel it is taking a long time but perhaps I am being a bit impatient. I am better at night, laying down and sitting down. As soon as I stand up, cough, blow my nose or commit to any body movement etc I leak, but I think it is slowly improving.
Got a good supply of pads and knickers!
Got back driving this Tuesday just gone.
Have you got a date yet for your op Trixiebelle?

User

Posted 20 Jan 2019 at 11:19

Have you got a date yet for the op?

User

Posted 20 Jan 2019 at 13:25

Hi Steve,

Great to hear you are going on OK.

Just had a bone scan and CT scan and I am awaiting the results.

I have had a pre-op assessment date in February and a operation date in March. However this may be brought forward if the consultant adds more lists.

Hope things continue to improve, keep in touch.

Paul

User

Posted 20 Jan 2019 at 13:33

Good luck with the scan results, let's hope they are what we want. cheers Steve.

User

Posted 25 Jan 2019 at 11:03

Not good news following an appointment this morning my PSA is still up and I'm going to have to have hormone treatment and radiotherapy and then in about 3 months time a bone scan to check that it hasn't spread to the bones. Anyway I will keep you all updated, chin up eh?

User

Posted 25 Jan 2019 at 12:59

Sorry to read this Steve. Have you got your post op pathology? What is your PSA level now?

If you read my profile you’ll get a view on HT and RT after prostatectomy.

Ian

Ido4

User

Posted 25 Jan 2019 at 13:23

Thanks for that ian. My psa is 0.7 and of course it should be zero, or very close to it. My father has been through the rt, ht and chemo, so I know what it's all about.
Steve

User

Posted 25 Jan 2019 at 13:33

Just re_ read your profile. Good luck with next test on 2nd Feb. Hope it all continues the way it has for you.
I am not feeling too disheartened as I have high hopes the rt will sort it out. Being negative does not help.
Steve

User

Posted 25 Jan 2019 at 14:09

Hi Steve,
Sorry to hear your results.
Hope the tests go well.
Keep in touch.
Paul

User

Posted 25 Jan 2019 at 16:16

Sorry to hear about the latest score. Keep us posted!

User

Posted 05 Feb 2019 at 15:26

This is an update I've had today the results of my isotopic bone scan and it's not particularly good news looks like I've got cancer on the bone on the pelvic mets which is the bit you sit on, and in my case on right hand side. the next stage is to have a CT and MRI scan in about 4 weeks. my oncologist the guy that does the radiotherapy really nice fellow and really sympathetic and excellent bedside manner couldn't fault him. he didn't seem too concerned about it anf said don't worry and I coming back in 4 weeks for these scans I'll keep you all posted.
Steve

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