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What should I do-advice please

Posted 21 Sep 2018 at 08:57

hi All, so I’m 44 and for the last few years have had on and off pain in my lower abdomen and pain in lower back and tip of penis. My dad sadly died of prostate cancer at 64 having been diagnosed 2 years previous with metastatic PC and had all the treatments going but nothing worked. When he was diagnosed they advised I get my PSA done.I have a PSA every year and always been 0.45ish . Ive had an ultrasound and went to see a uro because of the pain I was having at that time and to put my mind at rest re PC Also had DRE.  I have some calcification of the prostate and he said my prostate was slightly enlarged but felt fine and nothing recommended Other than yearly PSA.

since then I have continued to have pain in groin or in my penis sporadically and a pain after but not during peeing, it goes away and it’s manageable so I don’t stress 4 too long. for the last month the pain after peeing has been there and I now feel as if I need to pee but don’t. I only get up for a pee once during the night now and again but the feeling as if I need to go is new. I went to see the doc recently but it seemed pointless, he just confirmed the PSA was consisten, the DREs have been fine and the uro I saw said wvwrything is as it should be at my age. He prescribed tamsulosin but it’s not doing much good and it just makes me stress and I’m constantly aware of this feeling now. My question is what more can I do , i just feel it’s pointless going to the gp, wondered if I should go private and see a uro again, get a ultrasound etc etc so I’d appreciate some advice  

Posted 21 Sep 2018 at 16:04

If I were you I would request a referral back to urology sharpish, and then if your consultant concurs, go for an mpMRI scan (3T hi-def resolution scan is best) of your pelvis. You are obviously at much greater risk of prostate trouble because of your father’s cancer.

I sometimes wonder why GPs don’t automatically refer cases like yours to specialists, because they are, as one of my GPs admitted, “We are generalists” when I asked him about suture removal he said: “Go and see the nurse, she knows more about stitches than me”.

I am sure I know more about prostate cancer than my GP does, but not as much as Matron, obviously! (AKA LynEyre, she’s a stalwart on this forum).

Edited by member 21 Sep 2018 at 17:03  | Reason: Not specified

Posted 21 Sep 2018 at 16:39

Thanks for that, the wait to see a uro is ages though , last time it was 6 months so I went private back in sept last year and saw th top guy in Cardiff and he said all fine that’s why I’m struggling on what’s different now 

Posted 21 Sep 2018 at 16:49
Dan you have had appropriate tests and you are being monitored. The symptoms you describe are not typical for prostate cancer.

Do you have problems with anxiety?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

Posted 21 Sep 2018 at 16:56

It’s always in the back of my mind because of my dad but when I get a symptom I do get stressed.


Posted 22 Sep 2018 at 18:47
I concur with Lyn. Are you getting enough regular exercise - to give you aches and pains that you have earned and to take your mind off what you have received?


Posted 22 Sep 2018 at 19:19
Pain in the groin and penis is not a typical symptom of prostate cancer - sounds more like a urinary tract infection.


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