Hello, completely new here and a little unsure of some of the terminologys.
I’m here because I’m very concerned about my dad.
My Dad is now just coming up to 7 weeks post op.
My Dad had radical prostrate removal and some lymph nodes.
It’s a long story, my dad was discharged 10 days after surgery. When he was discharged his right leg was swollen so much it looked like an elephants leg, his stomach was also very swollen. He couldn’t really walk and was shuffling instead.
A few days later he had his catheter removed even though he didn’t pass any urine, they let him come home (nurse checked his pad and found it wet and said this was good) About 5 days after my Mom was getting my Dad dressed as his mobility got worse and realised he had slept for over 12 hours and his pad was dry. My mom phoned the ward my dad was on and was told to bring him to A&E.
For the next 20 hours my dad deteriorated even more and was diagnosed with Lymphoedema, pneumonia and sepsis. He ended up in Intrnsive Care. He nearly died.
My dad really battled and made it through. He had his catheter refitted and had 2 drains inserted one each side of his tummy.
we are now 4 weeks after and he is still in hospital.
he has his drains still and has this very strange substance coming out that no doctor can seem to identify.
weve been told it’s meldrew down to crystals in the fluid, but when we google nothing comes up. It’s very sticky and white (similar to chewing gum)
we have now found out that my dad also has MSSA.
Its not on his notes on the hospital computer but apparently it’s in his written notes.
As a family we feel like we are being lied to, the doctors always dodge around answering our questions. The nurses aren’t helpful and feel like you have to nag at them. His main surgeon seems to be avoiding us.
Thank you for reading this, any feed back or help is more than welcom.