Very sorry to read of the tardiness of your diagnosis which should really have been followed up with PSA tests sooner than 12 months after 2016.
In my own case my raised PSA was discovered in November 2017 and my surgery was this June, and that delay was largely due me deciding on what biopsy to have, when and where and which surgeon to carry out the operation, and advice from oncology as to whether surgery was the way to go rather than radiotherapy.
At almost every step of the way, I have had to be pro-active, chasing up results and sweet-talking consultants’ secretaries to arrange appointments.
The end result is I have had very good service from the NHS, apart from no PSA testing from 2010 (2.2) until 2017 (16.7). I trotted off annually with a phlebotomy form ticked ‘Full blood count’ naïvely assuming that included a sample for PSA testing, which of course it did not. A GP also declined a requested DRE whilst I was on his couch in my underpants for something else, with the words “We don’t do that these days”, which was news to the urology department when I was finally referred to them.
If I had been passive and waited for envelopes to arrive from the NHS I shudder to think what the outcome would have been.
The best advice I can give you now is to check out the credentials, experience and outcomes of your surgeon, as this could seriously affect your recovery for years to come. My local surgeon shows results for 184 prostatectomies, whereas the one I ended up with has done over 3000 worldwide, and I couldn’t be more pleased with my result, except if I had been diagnosed much earlier, before my cancer had spread to two out of fourteen lymph nodes removed post-operative, which may affect my lifespan.
I wish you the best of luck.
Edited by member 14 Oct 2018 at 16:47
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