Hi all, as the wife of a 63 year old who has just been diagnosed, can I firstly say this site has been a great help over the last few months whilst hubby has been undergoing tests, so I felt it was now time to join this club that nobody really wants to be a member of!
On finding that my husband had a PSA of 33 in June, he has since had a DRE which felt slightly irregular, an MRI which came back clear, bone scan clear, TRUS clear then the last test was a Template biopsy.
So last week we went for the Template results and were told that cancer had been found but not to worry as it was contained and totally curable. He told us that a team of consultants and various medics would be meeting in a couple of days to discuss H's case and to review whether surgery or radiotherapy would be the best option. We would then have another appointment to discuss the treatment. I asked the Gleason (which I only knew about thanks to this site!) and this was 3:4.
So the second appointment was yesterday which I couldn't attend and hubby was happy to go alone as it was only to discuss treatment and he had already decided that he wanted surgery if this was possible. We were shell shocked to say the least to find out that surgery was not an option as the cancer had spread out of the prostate to the base of the bladder and was T3. H asked what had changed in the course of a week and the reply was that sometimes one piece of information was not enough and that the whole team had to meet to discuss the case.
What we cannot understand, and H didn't ask as he was so shell shocked, why on earth was he called for an appointment prior to the team having met. In the space of a week we have gone from feeling really positive to being shot down in flames.
Any advice would be much appreciated.