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Positive high PSA stories

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User
Posted 29 Oct 2018 at 14:00

Hi,

I'm worrying myself sick because my husband's PSA is 130. Due to see hospital for first time on Wednesday.

Does anyone have examples of a similar PSA and no spread?

Thanks

User
Posted 29 Oct 2018 at 17:46
Gemma, I can't stop you worrying but I can report that I'm still around 11 years after a Gleason 9, PSA 63 diagnosis. Keep your spirits up. All is not lost. You will know more about the prospects when you have a full diagnosis.

AC

User
Posted 29 Oct 2018 at 18:30
I’m 51 yrs old. I was G9 with psa of 48. I had lymph spread and surgery 3 1/2 yrs ago. My psa is still soaring but no further spread seen yet ! Good luck
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User
Posted 29 Oct 2018 at 17:46
Gemma, I can't stop you worrying but I can report that I'm still around 11 years after a Gleason 9, PSA 63 diagnosis. Keep your spirits up. All is not lost. You will know more about the prospects when you have a full diagnosis.

AC

User
Posted 29 Oct 2018 at 18:30
I’m 51 yrs old. I was G9 with psa of 48. I had lymph spread and surgery 3 1/2 yrs ago. My psa is still soaring but no further spread seen yet ! Good luck
User
Posted 29 Oct 2018 at 20:17
130? I’d love that reading!!

On diagnosis in Jan 18 my PSA was 1547, with extensive bone mets. It came down to 94 whilst on chemo, but now back up to 360+ and now on Radium 223.

However just for your info. I’m still feeling ok, playing golf, walking the dog and gardening as required.

As stated above, and yes I know it’s difficult , but try not to worry too much until you get your full diagnosis and treatment plan. Things will then calm down as you move forward into a new “normal”.

Keep the Faith

J.

User
Posted 29 Oct 2018 at 20:19
Gemma1234

Sorry that should read January 2017.

User
Posted 29 Oct 2018 at 20:27
Thank you so much guys.

I'm sorry that you're in this situation but you all seem to be managing ok which is reassuring

I spoke to a specialist nurse today who told me PSA doesn't indicate anything apart from likelihood of it being pc, not if it's spread and that many men live many year's even when it has

Thanks

 
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